Development and structural validation of a shortened version of the Participation Scale

Stevelink, Sharon; Hoekstra, Trynke; Nardi, Susilene Maria Tonelli; Zee, Carlijn H. van der; Banstola, Nand Lal; Premkumar, R; Nicholls, Peter; Brakel, Wim H. van

doi:10.3109/09638288.2012.656793

Cited by 19 publications

(15 citation statements)

References 36 publications

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“…Lund et al suggested a separate scale for work-related items for the Impact on Participation and Autonomy scale (39). Regarding the Participation scale, best model fit was also found for a separate scale with workrelated items (40,41). The methodology used in the present study offers a valid alternative to the exclusion or separation of problematic (but regarding content validity, important) items.…”

Section: Dimensionality Of the User-participationmentioning

confidence: 66%

Metric properties of the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in persons with spinal cord injury living in Switzerland

Mader¹,

Post²,

Ballert³

et al. 2016

J Rehabil Med

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The Restrictions and Satisfaction scales of the USER-Participation showed satisfactory metric properties. The Frequency scale showed fewer optimal properties, but nonetheless provides important additional information regarding participation. Conversion tables were performed to transform USER-Participation raw scores into a 0-100 interval scale using Rasch-based ability estimates for use in epidemiological studies.

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Section: Dimensionality Of the User-participationmentioning

confidence: 66%

Metric properties of the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in persons with spinal cord injury living in Switzerland

Mader¹,

Post²,

Ballert³

et al. 2016

J Rehabil Med

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show abstract

“…The results of the Rasch model analysis revealed that the Participation Scale is not unidimensional because the unexplained variance in the first contrast was greater than 2 in the PCAR. A previous study on the validation of the Participation Scale showed that the Participation Scale should be conceived as a two-factor model that consists of “work-related participation” (three items) and “general participation” (15 items) [ 32 ]. Our current study also indicates that work-related participation should be regarded as a distinct factor.…”

Section: Discussionmentioning

confidence: 99%

Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs

Chung

Lam

2018

Health Qual Life Outcomes

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BackgroundThe World Health Organization has asserted the importance of enhancing participation of people with disabilities within the International Classification of Functioning, Disability and Health framework. Participation is regarded as a vital outcome in community-based rehabilitation. The actualization of the right to participate is limited by social stigma and discrimination. To date, there is no validated instrument for use in Chinese communities to measure participation restriction or self-perceived stigma. This study aimed to translate and validate the Participation Scale and the Explanatory Model Interview Catalogue (EMIC) Stigma Scale for use in Chinese communities with people with physical disabilities.MethodsThe Chinese versions of the Participation Scale and the EMIC stigma scale were administered to 264 adults with physical disabilities. The two scales were examined separately. The reliability analysis was studied in conjunction with the construct validity. Reliability analysis was conducted to assess the internal consistency and item-total correlation. Exploratory factor analysis was conducted to investigate the latent patterns of relationships among variables. A Rasch model analysis was conducted to test the dimensionality, internal validity, item hierarchy, and scoring category structure of the two scales.ResultsBoth the Participation Scale and the EMIC stigma scale were confirmed to have good internal consistency and high item-total correlation. Exploratory factor analysis revealed the factor structure of the two scales, which demonstrated the fitting of a pattern of variables within the studied construct. The Participation Scale was found to be multidimensional, whereas the EMIC stigma scale was confirmed to be unidimensional. The item hierarchies of the Participation Scale and the EMIC stigma scale were discussed and were regarded as compatible with the cultural characteristics of Chinese communities.ConclusionThe Chinese versions of the Participation Scale and the EMIC stigma scale were thoroughly tested in this study to demonstrate their robustness and feasibility in measuring the participation restriction and perceived stigma of people with physical disabilities in Chinese communities. This is crucial as it provides valid measurements to enable comprehensive understanding and assessment of the participation and stigma among people with physical disabilities in Chinese communities.

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“…The validity of this scale has been tested and found to be adequate in several Asian countries [40–42]. A shortened version of the Participation scale, the Participation Scale Short, has 13 items (score 0–5, min-max total score 0–65) [43]. This is the version we applied.…”

Section: Methodsmentioning

confidence: 99%

The Impact of a Rights-Based Counselling Intervention to Reduce Stigma in People Affected by Leprosy in Indonesia

et al. 2016

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BackgroundThis paper assesses the impact of a counselling intervention on reducing leprosy-related stigma in Cirebon District, Indonesia. The unique features of this intervention are its rights-based approach, the underlying Cognitive Behavioural Therapy (CBT) model, the three types of counselling and the lay and peer counsellors who were involved.Methodology/principal findingsMixed methods (e.g. three scales, interviews, focus group discussions and reflection notes) were used to assess the impact of the intervention, which ran over a two-year period. There was a control area with no interventions. The study participants were people affected by leprosy and other key persons (e.g. family members). The sample size differs per method, for example, data regarding 67 counselling clients and 57 controls from a cohort, and notes from 207 counselling clients were examined. The notes showed that most clients faced stigma on a daily basis, whether internalized, anticipated and/or enacted. A significant reduction was found between the before and after total scores of the SARI Stigma Scale (p-value < 0.001), Participation Scale Short (p-value < 0.001) and WHO Quality of Life score (p-value < 0.001) among the counselling clients. While there is also an effect in the control group, it is much larger in the intervention group. Qualitative data indicates that knowledge and rights trigger change. Clients took steps to improve their life such as re-connecting with neighbours, helping in household activities and applying for jobs. Challenges include the wish to conceal their condition.Conclusion/significanceThe findings show that the counselling intervention was effective in reducing stigma, promoting the rights of people with leprosy and facilitating their social participation. More research is needed on how to create a more sustainable intervention, preferably structurally embedded in the health or social services.

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Development and structural validation of a shortened version of the Participation Scale

Cited by 19 publications

References 36 publications

Metric properties of the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in persons with spinal cord injury living in Switzerland

Metric properties of the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in persons with spinal cord injury living in Switzerland

Validation of two scales for measuring participation and perceived stigma in Chinese community-based rehabilitation programs

The Impact of a Rights-Based Counselling Intervention to Reduce Stigma in People Affected by Leprosy in Indonesia

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