Development and Preliminary Evaluation of IRD-1-2-3: An Animated Video to Inform Transplant Candidates About Increased Risk Donor Kidneys

Abstract

following resources were identified as useful starting points for the animation. The Organ Procurement and Transplant Network website (https://optn.transplant.hrsa.gov/media/2116/guidance_increased_risk_organ_offers_20170327.pdf) provides a 16-page guidance document for providers on explaining risk relating to the use of IRD organs; however the document was not written for lay audiences. We drew on this resource when creating our initial draft content, text script, and storyboards. During video development we became aware of two more resources addressing increased risk donors. The Explore Transplant & Living Donation website (exploretransplant.org) provided detailed and comprehensive information about increased-risk donor kidneys via a narrated animated video (within the 'My Transplant Coach' video series). The video is 3 minutes and 41 seconds in duration but is text and graph heavy and does not describe the option of a candidate declining a kidney without losing their position on the list. The Inform Me website provides comprehensive information about increased-risk kidneys to a lay audience (https://informme.cbits.northwestern.edu/system/app2.html) in a 25 to 45 minute program that includes print materials, motion graphics, infographics, quiz questions, and narrated videos of transplant providers or kidney transplant recipients spanning 11 to 95 seconds in duration. The transplant and referring provider videos used a recorded interview without accompanying images. Motion graphics and infographics were provided without accompanying narration and are text heavy. We drew on these resources while refining our video.

Do patient decision aids help people who are facing decisions about solid organ transplantation? A systematic review

“…Overall, 83% of patients found the PDA helped them to decide (Table S9). 85%–100% of patients would recommend the PDA to someone else 35,37,42 . All three studies including clinician participants found that the majority considered the PDA acceptable 35,38,39 .…”

“…The acceptability of the PDA (whether it helped users make a decision) was examined in nine studies 32,34–39,42,45 . Overall, 83% of patients found the PDA helped them to decide (Table S9).…”

“…Despite this, the effectiveness of PDAs for transplantation has not been systematically analyzed, thus it is unclear whether they are effective in this field. There are an increasing number of PDAs for organ transplantation including some in current use 32–47 . It is therefore necessary to assess whether PDAs are effective for knowledge and decisions about organ transplantation.…”

Video education to facilitate patient outreach about living kidney donation: A proof of concept

“…KidneyTIME consists of 12 videos that describe the live kidney donation (LKD) process, benefits, and risks, two videos that describe kidney transplant evaluation and listing, one video about kidneys with risk factors for blood‐borne disease transmission, 17 and two videos each covering deceased‐donor kidney allocation 18 and the Kidney Donor Profile Index, 19 as alternatives to LDKT. For the purposes of this feasibility study, the donation specific content was organized within a behavioral and time sequenced context into four sets: LKD eligibility, LKD evaluation, LKD donation, and LKD recovery.…”

Using Focus Groups to Understand Dialysis Staff Perspectives on Delivering Transplant Education

“…10,[12][13][14] Individuals with end-stage kidney disease have indicated a willingness to learn transplant information from videos 15 and have rated educational videos highly. 12,[16][17][18] Video education may equip a broader range of dialysis staff with the tools to deliver education. However, dialysis center staff perspectives about using video to enhance patient education about kidney transplantation are unknown.…”