Development and preliminary evaluation of an animation (simplifyKDPI) to improve kidney transplant candidate understanding of the Kidney Donor Profile Index

Abstract

Background Transplant candidates are reluctant to accept kidneys from high Kidney Donor Profile Index (KDPI) donors. Incomplete understanding can lead to transplant delays for older transplant candidates. Patients need access to understandable information to make more informed decisions about KDPI. Methods We developed a KDPI‐specific animation with input from six stakeholder groups and conducted a one‐group pre‐post study with 60 kidney transplant candidates for feasibility and acceptability to improve participant KDPI knowledge, understanding, decisional self‐efficacy, and willingness to accept a KDPI > 85% kidney. Data were compared using McNemar's test and Wilcoxon signed‐rank test. Results Compared with pre‐animation scores, post‐animation scores were significantly higher for KDPI knowledge for the entire cohort (4.6 vs 6.1, P < .001) and across different levels of age, educational attainment, health literacy, vintage, and technology access. The frequency of positive responses increased pre‐post animation for KDPI understanding (55% vs 83%, P < .001) and decisional self‐efficacy (47% vs 75%, P < .001). However, willingness to accept KDPI > 85% kidneys (32% vs 36%, P = .83) increased by 2%. After viewing simplifyKDPI, >90% indicated positive ratings on ease of watching, understanding, and engaging. Conclusion In collaboration with stakeholders, an educational animation about KDPI was developed that was well‐received and is promising to impact knowledge.

Video education to facilitate patient outreach about living kidney donation: A proof of concept

“…Set specific concerns score for the entire cohort decreased immediately post-intervention by -21% (2.8-2.2, r = -. 19) and 3 weeks later by -29% (2.8-2.0; r = -.24) (Table 2).…”

“…KidneyTIME consists of 12 videos that describe the live kidney donation (LKD) process, benefits, and risks, two videos that describe kidney transplant evaluation and listing, one video about kidneys with risk factors for blood‐borne disease transmission, 17 and two videos each covering deceased‐donor kidney allocation 18 and the Kidney Donor Profile Index, 19 as alternatives to LDKT. For the purposes of this feasibility study, the donation specific content was organized within a behavioral and time sequenced context into four sets: LKD eligibility, LKD evaluation, LKD donation, and LKD recovery.…”

Pragmatic solutions to enhance self-management skills in solid organ transplant patients: systematic review and thematic analysis

“…Multimedia-based programs to educate transplant patients were employed in four papers. Two studies created educational animation programs to improve self-management behaviors in kidney transplant patients in two different formats [48,49]. Video-based programs were developed in two studies to improve medication adherence and symptom management in renal transplantation [50,51].…”

“…Metrics related to system and program usage included ease of use (22 studies) [28, 32-35, 38, 40, 41, 44, 46, 49, 53, 58, 59, 61, 63, 65-69], usefulness (24 studies) [28, 29, 33-35, 38, 40, 41, 44-46, 48, 53, 58, 59, 63, 65-67], usage rate (nine studies) [33,38,40,41,55,58,[64][65][66], trustiness or reliability (11 studies) [28, 29, 32, 37, 41, 44-46, 48, 49, 61], adherence to system recommendation (10 studies) [28,29,33,38,41,45,65,67,68], acceptability (21 studies) [29, 33-35, 38, 40, 41, 45, 46, 48, 49, 53-55, 58, 61, 65, 66], and intention to use (17 studies) [29,30,34,35,37,38,40,41,48,49,58,61,64,65,67]. All of these indicators, based on their effectiveness in the reviewed studies, are described in Table 4.…”

Using Focus Groups to Understand Dialysis Staff Perspectives on Delivering Transplant Education

“…10,[12][13][14] Individuals with end-stage kidney disease have indicated a willingness to learn transplant information from videos 15 and have rated educational videos highly. 12,[16][17][18] Video education may equip a broader range of dialysis staff with the tools to deliver education. However, dialysis center staff perspectives about using video to enhance patient education about kidney transplantation are unknown.…”