Development and Initial Validation of the PROMIS® Sexual Function and Satisfaction Measures Version 2.0

Weinfurt, Kevin P.; Lin, Li; Bruner, Deborah Watkins; Cyranowski, Jill M.; Dombeck, Carrie B.; Hahn, Elizabeth A.; Jeffery, Diana D.; Luecht, Richard M.; Magasi, Susan; Porter, Laura S.; Reese, Jennifer Barsky; Reeve, Bryce B.; Shelby, Rebecca A.; Smith, Ashley Wilder; Willse, John T.; Flynn, Kathryn E.

doi:10.1111/jsm.12966

Cited by 147 publications

(148 citation statements)

References 22 publications

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“…The responses were summed for a total score with a possible range of 10–49 (https://assessmentcenter.net/Manuals.aspx). The Vaginal Discomfort scale has been shown to have good convergent validity with the Pain subscale of the Female Sexual Function Index (FSFI; r = − .85) (Weinfurt et al, 2015) and demonstrated good reliability (alpha =0.88) in the current study.…”

Section: Methodsmentioning

confidence: 59%

Loneliness Mediates the Relationship Between Pain During Intercourse and Depressive Symptoms Among Young Women

2018

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Previous research suggests that women who experience pain during intercourse also experience higher rates of depressive symptoms. Loneliness might be one factor that contributes to this relationship. We hypothesized that women who experience more severe and interfering pain during intercourse would report higher rates of loneliness and higher rates of depressive symptoms. Further, we hypothesized that loneliness would mediate the relationship between pain during intercourse and depressive symptoms. A total of 104 female participants (85.6% white, 74.03% partnered, 20.9 [3.01] years old) completed an online survey including demographic information, PROMIS Vaginal Discomfort Measure, PROMIS Depression Measure, and Revised UCLA Loneliness Scale. Pearson correlations and bootstrapped mediation analysis examined the relationships among pain during intercourse, loneliness, and depressive symptoms. Pain during intercourse, loneliness, and depressive symptoms were all significantly correlated (p < .05). Results of the mediation analysis indicated that loneliness was a significant mediator of the relationship between pain during intercourse and depressive symptoms (indirect effect = 0.077; 95% CI 0.05–0.19). After accounting for loneliness, pain during intercourse was not significantly related to depressive symptoms, suggesting that loneliness fully mediated the relationship between pain during intercourse and depressive symptoms. These findings are consistent with previous studies highlighting that pain during intercourse is related to depressive symptoms. The current study adds to that literature and suggests that more frequent and severe pain during intercourse leads to more loneliness, which then leads to increased depressive symptoms. This line of work has important implications for treating women who experience depressive symptoms and pain during intercourse.

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Section: Methodsmentioning

confidence: 59%

Loneliness Mediates the Relationship Between Pain During Intercourse and Depressive Symptoms Among Young Women

2018

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“…The SVQ went through extensive qualitative and quantitative testing with more than 350 Danish women with gynecologic cancer, as well as input from oncology clinicians. Similar to the iterative process used to develop the SVQ, the PROMIS SexFS was developed with more than 800 U.S. male and female cancer patients during active treatment or follow-up care for multiple cancer sites (Flynn, et al, 2013; Weinfurt, et al, in press). Features that set the PROMIS SexFS apart from the other identified measures include the use of item response theory (IRT) to estimate latent sexual function constructs, to calculate differential item functioning, and to assess measurement invariance for each domain.…”

Section: Discussionmentioning

confidence: 99%

Self-Reported Sexual Function Measures Administered to Female Cancer Patients: A Systematic Review, 2008–2014

Jeffery¹,

Barbera

Andersen

et al. 2015

Journal of Psychosocial Oncology

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Background A systematic review was conducted to identify and characterize self-reported sexual function (SF) measures administered to women with a history of cancer. Methods Using 2009 PRISMA guidelines, we searched electronic bibliographic databases for quantitative studies published January 2008–September 2014 that used a self-reported measure of SF, or a quality of life (QOL) measure that contained at least one item pertaining to SF. Results Of 1,487 articles initially identified, 171 were retained. The studies originated in 36 different countries with 23% from U.S.-based authors. Most studies focused on women treated for breast, gynecologic, or colorectal cancer. About 70% of the articles examined SF as the primary focus; the remaining examined QOL, menopausal symptoms, or compared treatment modalities. We identified 37 measures that assessed at least one domain of SF, eight of which were dedicated SF measures developed with cancer patients. Almost one-third of the studies used EORTC QLQ modules to assess SF, and another third used the Female Sexual Function Inventory. There were few commonalities among studies, though nearly all demonstrated worse SF after cancer treatment or compared to healthy controls. Conclusions QOL measures are better suited to screening while dedicated SF questionnaires provide data for more in depth assessment. This systematic review will assist oncology clinicians and researchers in their selection of measures of SF and encourage integration of this quality of life domain in patient care.

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“…Professional focus group moderators of the same gender as participants led discussions by following a semistructured guide developed by a multidisciplinary domain committee. The guide was based on 1) a previous guide used in focus groups with patients with cancer, 24 2) literature review, 3) input from telephone discussions with a convenience sample of physicians, advanced practice providers, and nurses (15 providers in 6 discussions) who specialized in treating patients with heart failure, diabetes, anxiety, or depression, or sexual dysfunction, 18 and 4) input from a telephone discussion with a convenience sample of experts in sex research and measurement of sexual function (2 experts).…”

Section: Methodsmentioning

confidence: 99%

“…18 Thus, the original analysis was conducted with the goal of refining item content for a self-report measure. The current research presents a new, more detailed analysis than was conducted during the original analysis, focused on elucidating the meaning of key terms to the participants in the focus groups.…”

Section: Methodsmentioning

confidence: 99%

Patients' Conceptions of Terms Related to Sexual Interest, Desire, and Arousal

DeLamater

Weinfurt

Flynn

2017

The Journal of Sexual Medicine

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Background Measurement of sexual function typically utilizes self-report, which, in order to work as intended, must use language that is understood consistently by diverse respondents. Commonly used measures employ multiple terms, primarily (sexual) interest, desire, and arousal, that may not be understood in the same way by lay people and professionals. Aim To inform self-reported measurement efforts for both research and clinical settings by examining how U.S. men and women recruited from a healthcare setting understand and interpret different terms. Methods We conducted 10 focus groups in XXXXX (N=57). Discussions were audio recorded and transcribed, and the content of the discussions was systematically analyzed in 2 phases of coding by the research team, facilitated by Nvivo qualitative analysis software. Outcomes Patient focus group discussions about the meanings and connotations of multiple terms related to sexual function, especially interest, desire, and arousal. Results Five of the groups included male participants and five included female participants. Participants characterized (sexual) interest as a cognitive phenomenon and a situational response to a specific person. Similarly, they characterized (sexual) desire as a situational, person-specific experience with some support for it as a cognitive phenomenon but more support for it as a physical phenomenon. In contrast, participants characterized sexual arousal as a physical phenomenon, occurring in response to physical or visual stimulation and not related to a specific person. Clinical Implications These results can help us understand how lay people are using and responding to these terms when they are used in clinical and research settings. Strengths & Limitations Patient participants in these groups were diverse with respect to age, gender, sexual orientation, and health, with the potential to voice diverse perspectives on sexual functioning; however the sample was limited to a single city in the southeastern United States. Conclusion The meanings of interest, desire, and arousal were defined, compared, and contrasted in the context of patient focus groups. Qualitative coding revealed that interest was considered the most “cognitive”, arousal the most “physical”, and desire somewhere in between.

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Development and Initial Validation of the PROMIS® Sexual Function and Satisfaction Measures Version 2.0

Cited by 147 publications

References 22 publications

Loneliness Mediates the Relationship Between Pain During Intercourse and Depressive Symptoms Among Young Women

Loneliness Mediates the Relationship Between Pain During Intercourse and Depressive Symptoms Among Young Women

Self-Reported Sexual Function Measures Administered to Female Cancer Patients: A Systematic Review, 2008–2014

Patients' Conceptions of Terms Related to Sexual Interest, Desire, and Arousal

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