Development and evaluation of tools and an intervention to improve patient- and carer-centred outcomes in Longer-Term Stroke care and exploration of adjustment post stroke: the LoTS care research programme

Abstract

This report should be referenced as follows: Programme Grants for Applied ResearchISSN 2050-4322 (Print) ISSN 2050-4330 (Online) This journal is a member of and subscribes to the principles of the Committee on Publication Ethics (COPE) (www.publicationethics.org/).Editorial contact: nihredit@southampton.ac.ukThe full PGfAR archive is freely available to view online at www.journalslibrary.nihr.ac.uk/pgfar. Print-on-demand copies can be purchased from the report pages of the NIHR Journals Library website: www.journalslibrary.nihr.ac.uk Criteria for inclusion in the Programme Grants for Applied Research journalReports are published in Programme Grants for Applied Research (PGfAR) if (1) they have resulted from work for the PGfAR programme, and (2) they are of a sufficiently high scientific quality as assessed by the reviewers and editors. Programme Grants for Applied Research programmeThe Programme Grants for Applied Research (PGfAR) programme, part of the National Institute for Health Research (NIHR), was set up in 2006 to produce independent research findings that will have practical application for the benefit of patients and the NHS in the relatively near future. The Programme is managed by the NIHR Central Commissioning Facility (CCF) with strategic input from the Programme Director.The programme is a national response mode funding scheme that aims to provide evidence to improve health outcomes in England through promotion of health, prevention of ill health, and optimal disease management (including safety and quality), with particular emphasis on conditions causing significant disease burden.For more information about the PGfAR programme please visit the website: http://www.nihr.ac.uk/funding/programme-grants-forapplied-research.htm This reportThe research reported in this issue of the journal was funded by PGfAR as project number RP-PG-0606-1128. The contractual start date was in September 2007. The final report began editorial review February 2013 and was accepted for publication in November 2013. As the funder, the PGfAR programme agreed the research questions and study designs in advance with the investigators. The authors have been wholly responsible for all data collection, analysis and interpretation, and for writing up their work. The PGfAR editors and production house have tried to ensure the accuracy of the authors' report and would like to thank the reviewers for their constructive comments on the final report document. However, they do not accept liability for damages or losses arising from material published in this report.This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, CCF, NETSCC, PGfAR or the Department of Health. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect th...

Poststroke Trajectories: The Process of Recovery Over the Longer Term Following Stroke

“…In this study, we adopted a longitudinal, grounded theory approach (Charmaz, 2006) to explore poststroke trajectories and the factors that were understood to shape them. This study was part of a larger study), which aimed to improve outcomes after stroke by addressing the longer-term needs of community-dwelling stroke survivors and their carers in the United Kingdom (Forster et al, 2014).…”

Healthcare utilization after stroke in Canada- a population based study

“…Impaired functional health, higher financial income, younger age, emotional distress [8], pre-stroke dependency [7], living arrangement, social circumstances [7] and access to a physician [6] have been associated with the use of healthcare services after stroke. Stroke survivors living at home have reported unmet needs in several domains, including mobility, mood, communication, health provision after discharge and managing stroke-related problems [13, 14]. These factors could plausibly affect healthcare utilization after stroke but their association has never been established.…”

Recovery From a Subarachnoid Hemorrhage

“…Other adjustments will be needed as the patient adapts to a new way of functioning post-trauma (Forster et al, 2014). For example, Forster et al (2014) identified four possible post-stroke patient outcomes: (a) disruption, adjustment, and acceptance; (b) cycles of disruption, adjustment, and acceptance; (c) disruption without adjustment and acceptance; and (d) continuing ongoing decline. The patient may need, and benefit from, continued therapy and/ or counseling.…”