Development and evaluation of iManage: A self‐management app co‐designed by adolescents with sickle cell disease

Abstract

A mobile app prototype co-designed by AYAs with SCD may be a useful tool for engaging them in self-management strategies designed to improve health.

Impact of a transition program with navigator on loss to follow‐up, medication adherence, and appointment attendance in hemoglobinopathies

“…Rates of depression in children and adolescents with SCD are as high as 46% . AYA with SCD also report low levels of motivation to engage in self‐management behaviors due to lack of confidence and anxiety about how their condition may impact their ability to achieve future goals and milestones . Other reasons for poor disease self‐management in this population include low self‐efficacy and cognitive deficits resulting from stroke or silent cerebral infarct .…”

Virtual reality as complementary pain therapy in hospitalized patients with sickle cell disease

“…16 Patients with SCD welcome the utilization of technology to help manage their disease, and therefore virtual reality (VR), a newer complementary therapy that has not been tested in this population, holds promise. [17][18][19] From a neurobiological standpoint, it is hypothesized that VR decreases pain by decreasing both attention to pain and the emotion related to pain sensation. 20 Diversion of attention to pain through use of VR hypothetically decreases the anterior cingulate cortex response to the pain sensation, modulating efferent descending pain fibers.…”

Aplicativos móveis para o manejo da doença falciforme: revisão integrativa

“…Crosby LE et al (6) Gupta N et al (15) Schatz J et al (16) -The intervention with smartphone support represented more active coping attempts.…”

“…Applications were found to be useful in managing pain monitoring and adhering to the use of medications, supporting users to develop strategies for coping with their illness, improving their communication with health professionals and their intra and interpersonal relationships. (6)(7)(8)14,16,(18)(19)(20)(21)(22) The most recent studies pointed out the need for applications targeting people with sickle cell disease to cater for the sociocultural and clinical demands of the users, their technology expertise, their frequency of access and internet use, type of device used and barriers encountered. Authors also indicate that health professionals who are experts in sickle cell disease should also participate in the development process of mobile applications, by validating the contents as well as evaluating their usability.…”

“…Mobile applications allow people with sickle cell disease to acquire more knowledge about their health condition, monitor their symptoms and treatment, and become more autonomous in order to perform their self-care. (6)(7)(8) Currently, emerging technologies, such as mobile applications with the feature of Animated Communicational Agents, also known as Avatars, are an important tool in healthcare. Mobile applications with Avatars have been modeled to perform one-on-one interventions and user-oriented guidelines that are now supported in the user's daily care needs.…”