Development and evaluation of an internet-based cognitive behavioral therapy intervention for anxiety and depression in adults with cystic fibrosis (eHealth CF-CBT): An international collaboration

Verkleij, Marieke; Georgiopoulos, Anna M.; Friedman, Deborah I.

doi:10.1016/j.invent.2021.100372

Cited by 20 publications

(30 citation statements)

References 30 publications

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“…Despite the challenges of providing CF care during a pandemic, access to psychological care provided by CF MHCs increased dramatically when delivered via telehealth, a change in clinical practice that could potentially be sustained after the pandemic. Furthermore, evidence is accumulating that delivering psychological interventions via telehealth is feasible, acceptable, and effective for pwCF [ 16 , [24] , [25] , [26] , [27] ]. These results also mirror the resource needs documented by MHCs, which included availability of electronic screening programs (digital links with screening tools, EMR links), access to telehealth technology, efficient scheduling, and space and privacy to conduct telehealth sessions.…”

Section: Discussionmentioning

confidence: 99%

Impact of COVID-19 on mental health: Effects on screening, care delivery, and people with cystic fibrosis

Smith

Georgiopoulos

Mueller

et al. 2021

Journal of Cystic Fibrosis

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Background Depression and anxiety are two to four times more prevalent in people with CF (pwCF) than the general population. COVID-19 may exacerbate mental health challenges, increasing demand for psychological services, while decreasing their availability. We assessed the impact of the pandemic on depression and anxiety in pwCF, including how COVID-19 affected the frequency of mental health screening and the types of services provided. Methods A 38‐item internet survey, completed in June 2020, assessed how COVID-19 affected: 1) the mental health clinician's role and screening processes; 2) barriers to screening and resource needs; 3) impact of COVID-19 on depression and anxiety, and 4) positive outcomes and confidence in sustaining mental health screening and treatment, including telehealth services, after the pandemic. Results Responses were obtained from 131 of the 289 US CF programs. Overall, 60% of programs (n=79) continued mental health screening and treatment, although less frequently; 50% provided individual tele-mental health interventions, and 9% provided telehealth group therapy. Clinically elevated depression symptoms (PHQ-9≥10; moderate to severe), were found in 12% of 785 pwCF, with 3.1% endorsing suicidal ideation. Similarly, elevated anxiety (moderate to severe; GAD-7≥10) was found in 13% of pwCF (n=779). Conclusions The COVID-19 pandemic created an opportunity to implement innovative solutions to disruptions in mental health screening and treatment in CF programs. We found that pwCF had increased access to psychological interventions during the pandemic via telehealth, supporting the continued integration of tele-mental health screening and treatment into CF care.

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Section: Discussionmentioning

confidence: 99%

Impact of COVID-19 on mental health: Effects on screening, care delivery, and people with cystic fibrosis

Smith

Georgiopoulos

Mueller

et al. 2021

Journal of Cystic Fibrosis

Self Cite

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“… 48 eHealth tools and eHealth interventions had played an important role in the prevention, diagnosis and treatment of many chronic diseases, such as obesity, 49 rheumatic disease, 50 hypertension, 51 depression, 52 diabetes, 53 cancer patients, 54 psychosis 55 and so on. The population involved included the elderly, 56 adults 57 and children. 58 …”

Section: Discussionmentioning

confidence: 99%

A bibliometric analysis on global eHealth

Hua

Chen

2022

DIGITAL HEALTH

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Background The current coronavirus disease 2019 pandemic highlights the potential of eHealth. Drawing the knowledge map of eHealth research through data mining and visual analysis technology was helpful to systematically present the research status and future trends of global academic circles. Methods Based on the web of Science Core Collection (SCIE/SSCI) database, using bibliometric theory and visual analysis technology, this work analyzed the global eHealth research publications from 2000 to 2021, and introduced the interdisciplinary characteristics, hot topics and future trends in this field. Results A total of 10188 authors, 891 journals, 3586 institutions, 98 countries using 12 languages had conducted eHealth research in the world. The United States, the Netherlands, Australia and the United Kingdom were the main forces and international cooperation. However, the international co-operation between Eastern and Western countries was still relatively few. The frontier of global eHealth research mainly focused on #0eHealth innovation, #1physical activity, #2generalised anxiety disorder, #3lightweight authentication protocol, #4 eHealth information, #5technology readiness, #6 ehealth literacy scale, #7family carer, #8citance analysis, #9 guiding patient. Clusters #3 lightweight authentication protocol and #9 guiding patient were the latest clusters, indicating the research trend and direction of eHealth in the future. Conclusions Cooperation network framework at the regional, national and global levels and the cooperation of multidisciplinary teams with complementary backgrounds and expertise were needed to realize the in-depth popularization and application of eHealth knowledge. Interdisciplinary international cooperation should be the trend of eHealth research in the future.

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“…System can transfer live images to specialist physician. 85 Depression, anxiety, distress affect adherence to treatment regimes, which in turn affect health and quality of life (eg, distress of parents of newly diagnosed children with haemophilia 27 ) Internet delivered cognitive-behavioural therapy sessions, eHealth CF-CBT guided by a qualified therapist for people with cystic fibrosis experiencing depression or anxiety 62 Lack of highquality information on all aspects of the rare disease Information that is readable, accessible and from a credible source (eg, lack of specific information on rare and congenital anaemias 59 ) Newborn Screening Connect (NBS Connect) provides highquality information for parents of children diagnosed with a disorder included in the newborn screening panel performed routinely in the USA 43 Information available in your language, appropriate for your culture (eg, Canadian haemophilia resources in English and French 58 76 ) Online education package for congenital hypogonadotropic hypogonadism and the olfacto-genital syndrome is available in 20 European languages. Readability score meets recommended level.…”

Section: Chronic Diseases Requiring Selfmanagementmentioning

confidence: 99%

Needs of people with rare diseases that can be supported by electronic resources: a scoping review

et al. 2022

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ObjectivesRare diseases are characterised by low incidence, often with little evidence for effective treatments. Isolated patients and specialist centres for rare diseases are increasingly connected, thanks to the internet. This scoping review aimed to identify issues facing people with a rare disease that authors report may be addressed by electronic resources (mobile applications, websites, social media platforms, telehealth and online portals).DesignScoping review guided by the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) guidelines.Data sourcesMedline, Embase and PsycInfo were searched, supplemented by hand searches of selected journals, in July 2021.Eligibility criteriaPeer-reviewed literature in English was searched using terms for rare disease (incidence <1:2000), electronic modalities (eg, mobile phone) and patient support terms. No date limit was set. Conference abstracts were included.Data extraction and synthesisData extracted: rare disease/group of diseases, name of the e-resource, need identified in the patient cohort, features of the e-resource, any other findings or observations of interest. From this, a framework was developed synthesising features across diseases and resources.ResultsSeventy-two papers were found (from 383). Fifty-six electronic resources were described in 64 papers, while 12 papers were exploratory studies. Cystic fibrosis (n=28) was the most frequently addressed, followed by haemophilia (n=16).Four domains and 23 subdomains of needs were extracted from the papers. The domains of needs were: support for self-management, access to high-quality information, access to appropriate specialist services, and social support. Subdomains are sometimes related to needs of individual rare diseases (eg, social isolation due to infection risk in people with cystic fibrosis). Fifteen electronic resources were identified that supported parents of children with rare disorders.ConclusionsWhile it can be argued that rare diseases, per se, may be no less distressing or onerous to care for than a high prevalence disease, rare diseases have unique features: the lengthy odyssey to find a diagnosis, then appropriate specialists, the lack of evidence around effective treatments, guidelines or access to knowledgeable general health service providers. Designers of electronic resources are urged to consult key stakeholders to enhance the effectiveness and usability of resources for people with a rare disease.

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Development and evaluation of an internet-based cognitive behavioral therapy intervention for anxiety and depression in adults with cystic fibrosis (eHealth CF-CBT): An international collaboration

Cited by 20 publications

References 30 publications

Impact of COVID-19 on mental health: Effects on screening, care delivery, and people with cystic fibrosis

Impact of COVID-19 on mental health: Effects on screening, care delivery, and people with cystic fibrosis

A bibliometric analysis on global eHealth

Needs of people with rare diseases that can be supported by electronic resources: a scoping review

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