Development and Evaluation of a Cancer Information Web Portal: The Impact of Design and Presentation on User Engagement

Schilling, K; McDaniel, Anna M.

doi:10.1080/15398285.2010.501736

Cited by 2 publications

(3 citation statements)

References 33 publications

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“…In the following pages, we provide background information on the original portal and the critique offered in a prior review that we subsequently used as a starting-point for our redesign and discovery process (Schilling and McDaniel 2010). We go on to present non-linear modeling (Martinec and Van Leeuwen 2009) as an analytic tool to assess and revise Web site navigation as well as content configuration and distribution.…”

Section: Introductionmentioning

confidence: 99%

“…When a user clicks the button reporting ''some numbness and tingling that keeps me from doing some things,'' the Web site displays a yellow background indicating that, as with a yellow stoplight, caution should be used when moving forward (IU School of Nursing Burdette Cancer Portal 2014). Schilling and McDaniel (2010) also recommended revising long web pages by ''reconfiguring lists'' of information (255). Specifically, they advised reducing the number of lists, shortening their length, and adding annotations-all print-centric solutions to problems posed by expansive content (256).…”

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confidence: 99%

“…These changes augment and improve print-centric approaches using non-linear modeling. Schilling and McDaniel (2010) framed interaction in terms of helping ''audiences increase understanding and comprehension'' by appealing to ''multiple learning styles and skill levels'' through content that has ''interactive functions'' (255). The experience of interaction may be enhanced by paying close attention to ''interactivity'' or a text's capacity to respond to actions performed by a user.…”

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An Alternative to Print-Centric Design for Online Health Literacy: The Redevelopment of a Cancer Information Portal

Buchenot

Traversa

Comer

et al. 2014

Journal of Consumer Health On the Internet

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Despite the increasing use of online health literacy resources, scholars and practitioners assess Web sites based on readability measures such as sentence length, word choice, and other ''print-centric'' features to the exclusion of features unique to online media. In this article, we offer an alternative approach that accounts for multiple modes of communication and non-linear arrangement-features that characterize online media. To demonstrate this approach, we detail a recent project to redesign a cancer patient web portal. Included in our discussion of the project is a heuristic tool for designing web navigation as well as detailed examples of reworded content.

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Section: Introductionmentioning

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An Alternative to Print-Centric Design for Online Health Literacy: The Redevelopment of a Cancer Information Portal

Buchenot

Traversa

Comer

et al. 2014

Journal of Consumer Health On the Internet

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Consumer Health Informatics Research: A Scoping Review of Informatics, Information Science and Engineering Literature (Preprint)

Smith¹,

Yu²,

Maestre³

et al. 2020

Preprint

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BACKGROUND Informatics tools for consumers and patients are important vehicles for facilitating engagement, and the field of consumer health informatics is an key space for exploring the potential of these tools. To understand research findings in this complex and heterogeneous field, a scoping review can help not only to identify, but to bridge, the array of diverse disciplines and publication venues involved. OBJECTIVE The goal of this systematic scoping review was to characterize the extent; range; and nature of research activity in consumer health informatics, focusing on the contributing disciplines of informatics; information science; and engineering. METHODS Four electronic databases (Compendex, LISTA, Library Literature, and INSPEC) were searched for published studies dating from January 1, 2008, to June 1, 2015. Our inclusion criteria specified that they be English-language articles describing empirical studies focusing on consumers; relate to human health; and feature technologies designed to interact directly with consumers. Clinical applications and technologies regulated by the FDA, as well as digital tools that do not provide individualized information, were excluded. RESULTS We identified 271 studies in 63 unique journals and 22 unique conference proceedings. Sixty-five percent of these studies were found in health informatics journals; 23% in information science and library science; 15% in computer science; 4% in medicine; and 5% in other fields, ranging from engineering to education. A single journal, the Journal of Medical Internet Research, was home to 36% of the studies. Sixty-two percent of these studies relied on quantitative methods, 55% on qualitative methods, and 17% were mixed-method studies. Seventy percent of studies used no specific theoretical framework; of those that did, Social Cognitive Theory appeared the most frequently, in 16 studies. Fifty-two studies identified problems with technology adoption, acceptance, or use, 38% of these barriers being machine-centered (for example, content or computer-based), and 62% user-centered, the most frequently mentioned being attitude and motivation toward technology. One hundred and twenty-six interventional studies investigated disparities or heterogeneity in treatment effects in specific populations. The most frequent disparity investigated was gender (13 studies), followed closely by race/ethnicity (11). Half the studies focused on a specific diagnosis, most commonly diabetes and cancer; 30% focused on a health behavior, usually information-seeking. Gaps were found in reporting of study design, with only 46% of studies reporting on specific methodological details. Missing details were response rates, since 59% of survey studies did not provide them; and participant retention rates, since 53% of interventional studies did not provide this information. Participant demographics were usually not reported beyond gender and age. Only 17% studies informed the reader of their theoretical basis, and only 4 studies focused on theory at the group, network, organizational or ecological levels—the majority being either health behavior or interpersonal theories. Finally, of the 131 studies describing the design of a new technology, 81% did not involve either patients or consumers in their design. In fact, while consumer and patient were necessarily core concepts in this literature, these terms were often used interchangeably. The research literature of consumer health informatics at present is scattered across research fields; only 49% of studies from these disciplines is indexed by MEDLINE and studies in computer science are siloed in a user interface that makes exploration of that literature difficult. CONCLUSIONS Few studies analyzed in this scoping review were based in theory, and very little was presented in this literature about the life context, motives for technology use, and personal characteristics of study participants.

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Development and Evaluation of a Cancer Information Web Portal: The Impact of Design and Presentation on User Engagement

Cited by 2 publications

References 33 publications

An Alternative to Print-Centric Design for Online Health Literacy: The Redevelopment of a Cancer Information Portal

An Alternative to Print-Centric Design for Online Health Literacy: The Redevelopment of a Cancer Information Portal

Consumer Health Informatics Research: A Scoping Review of Informatics, Information Science and Engineering Literature (Preprint)

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