Developing the Content of a New Quality of Life Questionnaire for
                        Children with Hearing Loss

Raj, Lavanya J; Swarnakumari, P; Martina, Turin

doi:10.5463/dcid.v25i2.295

Cited by 2 publications

(8 citation statements)

References 11 publications

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“…Several papers described the setup of the environment during focus groups, including the use of a "nonclinical environment," "quiet cozy rooms," and the effort to "approximate a normal social context." 44,47,[51][52][53][54] Table 5 describes interview features. Interviews were described as being "flexible," 41,42 "open-ended," 42,43,[54][55][56][57][58][59][60][61][62][63][64] "friendly and relaxed," 15 and "free-ranging."…”

Section: Resultsmentioning

confidence: 99%

“…44,47,[51][52][53][54] Table 5 describes interview features. Interviews were described as being "flexible," 41,42 "open-ended," 42,43,[54][55][56][57][58][59][60][61][62][63][64] "friendly and relaxed," 15 and "free-ranging." 44 They varied in duration from 5 to 15 to 30 minutes.…”

Section: Resultsmentioning

confidence: 99%

“…45 One measure used interviews for feasibility issues with the younger age groups, 68 and 3 used the techniques in parallel. 28,54,69 Focus groups with experts were also used in conjunction with interviews with children to create interview topic guides 46,70 and to identify missing items from interviews. 46,71 The majority of instruments did not include children under age 5 years in the development process.…”

Section: Resultsmentioning

confidence: 99%

“…Multiple instruments used sex-stratified focus groups that, with the sensitive nature of some of the subject matter, may help eliminate social pressures experienced by some children and adolescents. 51,52,54,59,69 The Glasgow Epilepsy Outcome Scale focus groups provided an opportunity for participants to write down any sensitive information that they did not want to share with the whole group. 37 This approach could be particularly helpful in focus groups related to specific conditions with sensitive or potentially embarrassing aspects (such as loss of bowel or bladder control).…”

Section: Developmental Considerationsmentioning

confidence: 99%

See 3 more Smart Citations

Engaging the Voices of Children: A Scoping Review of How Children and Adolescents Are Involved in the Development of Quality-of-Life–Related Measures

et al. 2021

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Developmental Considerationsmentioning

confidence: 99%

See 2 more Smart Citations

Engaging the Voices of Children: A Scoping Review of How Children and Adolescents Are Involved in the Development of Quality-of-Life–Related Measures

et al. 2021

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“…The earlier paper (Raj et al, 2014) described how children with hearing loss and other stakeholders participated in the content development of the IHL-C by identifying the impact of the hearing problem on their daily lives and psychosocial well-being. Approximately 421 elicited problem statements, grouped into 7 domain areas, were reduced to 220 statements through a process of merging statements which had similar semantic meaning and context.…”

Section: Instrument Developmentmentioning

confidence: 99%

The Development of a New Quality of Life Questionnaire for Children with Hearing Loss - The Impact of Hearing Loss on Children (IHL-C): Field Testing and Psychometric Evaluation

Raj

Pitchai

2015

DCID

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Purpose:To report the development of user-defined, multidimensional, psychometrically sound Quality of Life questionnaires -Impact of Hearing Loss on Children -IHL-C 69 and Brief IHL-C for children with hearing loss, in two languages -Tamil and English.Methods: 421 problem statements from previous qualitative studies were reduced to a 220-item questionnaire with 7 domains (educational implications, social integration, psycho-social well-being, speech, language and communication, family relationships, leisure time activities and general functioning). After field testing, the domain of leisure time activities was dropped, resulting in a 103-item self-administered questionnaire with 6 domains. This 103-item questionnaire was translated from Tamil to English, and self-administered by children with hearing loss (11-18 years of age) in Special schools (n=100) and Integrated schools (n=100), as well as by normal controls in Integrated schools (n=200). Standard methods were used for item reduction and to evaluate psychometric properties. Results: Psychometric item reduction produced the 69-item IHL-C69 (long version) and 48-item Brief IHL-C (brief version) questionnaires. Psychometric evaluation showed that all the domains of both the questionnaires had goodacceptability, high internal consistency (alpha >0.80; intrinsic validity >0.80) and test-retest reliability (0.86).The questionnaires significantly distinguished between the children with hearing loss and the normal controls. The domains of Vol. 26, No.1, 2015; doi 10.5463/DCID.v26i1.386 www.dcidj.org 26both the questionnaires showed moderate evidence of convergent validity, and discriminant validity derived through hypotheses testing showed mixed results. The translation validity was also determined. Conclusion:The IHL-C 69 and Brief IHL-C are reliable and valid user-defined, multidimensional questionnaires, available for the first time in both Tamil and English languagesin Tamil Nadu, India. Designed to analyse the impact of hearing loss and to determine the quality of life of children with hearing loss, the questionnaires could be used to prioritise the goals for rehabilitation intervention for these children.Psycho-social Well-being: Present age, age at the time of school admission, ordinal position, onset of hearing loss, type of school and type of family were seen to influence the psycho-social well-being of children with hearing loss. Children in the age group of 12 -14 years exhibited good psycho-social wellbeing compared to children between 14 -15 years and between 15-18 years of age. Again, the psycho-social well-being of children admitted in school before the age of 5 was better than that of children admitted later. The psycho-social well-being of firstborn children was better than that of children in other ordinal positions. The onset of hearing loss was responsible for differences among the children. Those who had congenital onset showed better psycho-social well-being than those who had adventitious hearing loss. Similarly, CHL in Special schools had ...

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Developing the Content of a New Quality of Life Questionnaire for Children with Hearing Loss

Abstract: ABSTRACT

Cited by 2 publications

References 11 publications

Engaging the Voices of Children: A Scoping Review of How Children and Adolescents Are Involved in the Development of Quality-of-Life–Related Measures

Engaging the Voices of Children: A Scoping Review of How Children and Adolescents Are Involved in the Development of Quality-of-Life–Related Measures

The Development of a New Quality of Life Questionnaire for Children with Hearing Loss - The Impact of Hearing Loss on Children (IHL-C): Field Testing and Psychometric Evaluation

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