Developing, Implementing, and Evaluating a Handbook for Parents of Pediatric Hematology/Oncology Patients

Abstract

This article details the development of a parent handbook for pediatric hematology and oncology patients. The planning and content development are discussed. Adult learning principles were incorporated throughout the handbook. Use of the handbook in a pediatric cancer center is described. Both subjective and objective methods were used to evaluate the handbook. Results from the evaluation verify the value of the handbook to parents and give direction for future revisions of the handbook.

A Survey of Pediatric Oncology Nurses’ Perceptions of Parent Educational Needs

“…A job analysis survey conducted by the Association of Pediatric Oncology Nurses (APON) identified "teaching parents about blood counts" as the most frequently occurring nursing care activity (Association of Pediatric Oncology Nurses, 1995). As this educational process comprises such a large component of pediatric oncology nursing care, nurses have developed strategies to coordinate and streamline the educational process (Forte & Clark, 1999;Heiney & Wells, 1995;Kelly, 1997;Kline, 1996;Patterson, 1993;Pediatric Oncology Group Nursing Committee, 1995;Wallace et al, 1984). Unfortunately, the patient's constant movement across the continuum of care with different care providers makes it difficult to ensure that all critical aspects of the educational program have been delivered and comprehended by the parent.…”

Malignant Pediatric Bone Tumors - Treatment & Management

“…It's the role of the ONN to assess absorption of information given at this initial appointment and continually update and reteach families about their child's disease and treatment throughout the care continuum (Heiney and Wells 1995 ). Families are asked to bring their notebook for all admissions to enable teaching throughout treatment.…”