Developing core patient‐reported outcomes in maternity: PRO‐Maternity

Mahmud, Ayesha; Morris, Edward; Johnson, Sidney M.; Ismail, KM

doi:10.1111/1471-0528.12901

Cited by 25 publications

(26 citation statements)

References 4 publications

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“…They differ from satisfaction surveys by reporting objective patient experiences. In general, PREMs measure the process of care provision, while PROMs are measures of clinical care effectiveness [ 5 ].…”

Section: Introductionmentioning

confidence: 99%

Patient reported outcome measures for use in pregnancy and childbirth: a systematic review

Dickinson

McCauley

Smith

et al. 2019

BMC Pregnancy Childbirth

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Background Globally, an increasing number of women give birth in a healthcare facility. Improvement in the quality of care is crucial if preventable maternal mortality and morbidity are to be reduced. A Patient Reported Outcome Measure (PROM) can be used to measure quality of care and provide new information on the impact that treatment or interventions have on patient’s self-assessed health and health-related quality of life. We conducted a systematic review to identify which condition-specific PROMs are currently available for use in pregnancy and childbirth, and to evaluate whether these could potentially be used to assess the quality of care provided for women using maternity services. Methods We searched for articles relating to the use of PROMs related to care during pregnancy, childbirth, the postnatal period and women’s health more generally using PsycINFO, CINAHL, Medline and Web of Science databases as well as “grey literature”, with no date limit. Any PROM identified was reviewed with regards to development, use, and potential applicability to assess quality of maternity care provision. A narrative synthesis was used to summarise findings. Results Six papers were identified; two related to aspects of pregnancy (hyperemesis gravidarum and gestational diabetes), and four related to childbirth and the postnatal period (obstetric haemorrhage and postnatal depression). Within these papers, a total of 14 different tools were identified, which assessed a variety of aspects of physical, psychological and social health, or were generic tools, not specific to childbirth. One PROM addressed childbirth generally, however, it did not ask for or provide specific outcome measures but required women to identify and then assess what they considered the most important areas in their life affected by childbirth. Conclusions To date, there is no PROM agreed which would be suitable as patient reported outcome measure for the assessment of the quality of care women receive during pregnancy or after childbirth. However, there are a variety of available assessment tools which could potentially be helpful in developing new and existing PROMs for maternity care.

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Section: Introductionmentioning

confidence: 99%

Patient reported outcome measures for use in pregnancy and childbirth: a systematic review

Dickinson

McCauley

Smith

et al. 2019

BMC Pregnancy Childbirth

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“…[5][6][7] Even though in this setting, PROMs could add considerable value to patient care and quality improvement, as its general population consists of relatively healthy women at low risk for mortality or severe morbidity, and multiple professional organizations combine planned and acute care in a short time period. 8,9 The International Consortium for Health Outcomes Measurement (ICHOM) published a standard outcome set for Pregnancy and Childbirth (PCB), which has recently been translated to Dutch and validated in the Netherlands. [10][11][12] This standard set comprises clinical outcomes, patientreported outcome measures, and patient-reported experience measures (PREM), assessed with a questionnaire regarding health status and experiences with care at five different timepoints in pregnancy and the postpartum period.…”

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confidence: 99%

“…However, to date, knowledge and experience to collect and use PROMs or PREMs routinely in perinatal care are lacking, and little is known about time investment and response burden of the PCB outcome set for both women and obstetric care professionals. 7,9 At this moment, unfamiliarity and uncertainty seem to hinder the implementation of its patientreported measures in perinatal clinical practice. 11 Therefore, the aim of this study was to assess the feasibility of implementing the PCB outcome set, by piloting the process of collecting its PROM and PREM questionnaires and discuss the responses as part of usual care (ie, the pilot intervention).…”

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confidence: 99%

A feasibility study of implementing a patient‐centered outcome set for pregnancy and childbirth

Depla

Ernst-Smelt

Poels

et al. 2020

Health Science Reports

116

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Background and Aims Patient‐reported outcome and experience measures (PROM and PREM) can facilitate shared decision making and hold potential to improve healthcare quality. However, their adoption in perinatal care is still limited. The International Consortium for Health Outcomes Measurement (ICHOM) developed a Pregnancy and Childbirth (PCB) outcome set, including PROM and PREM questionnaires. We studied the feasibility to use these PROMs/PREMs in Dutch perinatal care, addressing both women's and professionals' perspective. Methods Patients and professionals in primary and hospital care participated. Women under care at one of five timepoints for PROM/PREM collection of the PCB set (2 during pregnancy, 3 postpartum) were e‐mailed a questionnaire and discussed their answers with their obstetric professional the next regular visit. Compliance was recorded. After discussing the PROMs/PREMs, usability and experience were assessed with separate surveys amongst women and professionals. Results Of 26 women approached, 21 completed and discussed their PROM/PREM questionnaire. Mean questionnaire completion rate was 97%. Average reported time completing the questionnaires was 10 minutes; most women (90%) stated this was acceptable. Women preferred completing questionnaires digitally and discuss their answers with an obstetric professional rather than other care professionals, also 6 months postpartum. Over half of women agreed PROMs/PREMs supported shared decision making (58%), ability to raise issues (60%), and patient‐clinician relationship (52%). Six professionals participated: two obstetricians, two clinical midwives, and two community midwives. Most professionals experienced sufficient time to discuss the responses, except at 6 months postpartum. They knew what items to discuss but did not always feel responsible to act upon them. Professionals agreed PROMs/PREMs supported symptom detection and personalized care. Conclusions Patients and obstetric professionals consider the PCB set a feasible instrument for PROM/PREM assessment, with good compliance, acceptability and usability. Important determinants of successful implementation are a well‐equipped ICT‐tool, agreements regarding professionals' responsibilities and how outcomes are discussed or acted upon.

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“…The 10 most frequently measured events they identified in the literature are summarized below: As described above, the use of PROMs to capture information on patients' health and wellbeing has been widespread in many therapeutic areas. In maternity care, PROMs could be used to capture outcomes important to women with a holistic rather than strictly clinical assessment of their health throughout pregnancy, labour, and the postpartum period [47]. However, to date little work has been done in terms of systematic use of PROMs in maternity care even though initiatives are currently ongoing at international (through ICHOM [48]) and national levels (through the Pregnancy register).…”

Section: Selection Of Indicatorsmentioning

confidence: 99%

Inter-hospital variations in health outcomes in childbirth care in Sweden: a register-based study

Mesterton

Brommels

Ladfors

et al. 2018

International Journal for Quality in Health Care

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Developing core patient‐reported outcomes in maternity: PRO‐Maternity

Cited by 25 publications

References 4 publications

Patient reported outcome measures for use in pregnancy and childbirth: a systematic review

Patient reported outcome measures for use in pregnancy and childbirth: a systematic review

A feasibility study of implementing a patient‐centered outcome set for pregnancy and childbirth

Inter-hospital variations in health outcomes in childbirth care in Sweden: a register-based study

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