Developing community-based health education strategies with family history: Assessing the association between community resident family history and interest in health education

Prom‐Wormley, Elizabeth; Clifford, James S.; Bourdon, Jessica L.; Barr, Peter B.; Blondino, Courtney; Ball, Kevin M.; Montgomery, Joshua; Davis, Jonathan K.; J, Real; Edwards, Alexis C.; Thiselton, Dawn L.; Creighton, Gwen Corley; Wilson, De’Nisha; Newbille, Cynthia

doi:10.1016/j.socscimed.2019.02.011

Cited by 14 publications

(13 citation statements)

References 71 publications

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“…According to the Health Belief Model, a concept described and used in prior literature [35], this perceived threat influences motivation towards prevention and behaviour change. Family history and perceived threat, reflecting the combination of perceived personal risk of a disorder and its perceived severity, could increase interest in prevention and diagnostic testing [36] but also cause anxiety and decrease motivation [36,37]. With regard to cognitive disorders, previous qualitative research demonstrated that fear and stigma could motivate older adults towards prevention [13] but also make them passiveand even prevent from seeking help when worried (Akenine et al, unpublished observations).…”

Section: Discussionmentioning

confidence: 99%

Experiences of dementia and attitude towards prevention: a qualitative study among older adults participating in a prevention trial

et al. 2020

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Background: A better insight into older adults' understanding of and attitude towards cognitive disorders and their prevention, as well as expectations and reasons for participation in prevention trials, would help design, conduct, and implement effective preventive interventions. This qualitative study aimed at exploring the knowledge and perceptions of cognitive disorders and their prevention among participants in a prevention trial. Methods: Semi-structured interviews were conducted among the participants of a multinational randomised controlled trial testing the efficacy of a lifestyle-based eHealth intervention in preventing cardiovascular disease or cognitive decline in community dwellers aged 65+. Participants were probed on their reasons for participation in the trial and their views on general health, cardiovascular disease, ageing, and prevention. The subset of data focusing on cognitive disorders (15 interviewees; all in Finland) was considered for this study. Data were analysed using content analysis. Results: Participants' knowledge of the cause and risk factors of cognitive disorders and prevention was limited and superficial, and a need for up-to-date, reliable, and practical information and advice was expressed. Cognitive disorders evoked fear and concern, and feelings of hopelessness and misery were frequently expressed, indicating a stigma. Strong heredity of cognitive disorders was a commonly held belief, and opinions on the possibility of prevention were doubtful, particularly in relation to primary prevention. Family history and/or indirect experiences of cognitive disorders was a recurrent theme and it showed to be linked to both the knowledge of and feelings associated with cognitive disorders, as well as attitude towards prevention. Indirect experiences were linked to increased awareness and knowledge, but also uncertainty about risk factors and possibility of prevention. Distinct fear and concerns, particularly over one's own cognition/risk, and high motivation towards engaging in prevention and participating in a prevention trial were also identified in connection to this theme.

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Section: Discussionmentioning

confidence: 99%

Experiences of dementia and attitude towards prevention: a qualitative study among older adults participating in a prevention trial

et al. 2020

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“…However, two other studies demonstrated that a family history of diabetes, anxiety, depression and high blood pressure is positively associated with risk awareness and risk-reducing behaviour (17,21). The self-perceived risk (e.g., perceived severity and perceived susceptibility) of developing a certain disease might mediate the association between having a family history and interest in health education to adopt a healthy behaviour (17).…”

Section: Motivation For Dementia Risk Assessment and Reductionmentioning

confidence: 97%

“…Two studies did not identify a difference in risk-reducing behaviour (e.g., trying to stop smoking, increasing physical activity) between individuals with and without a family history of cardiovascular disease (20,22). However, two other studies demonstrated that a family history of diabetes, anxiety, depression and high blood pressure is positively associated with risk awareness and risk-reducing behaviour (17,21). The self-perceived risk (e.g., perceived severity and perceived susceptibility) of developing a certain disease might mediate the association between having a family history and interest in health education to adopt a healthy behaviour (17).…”

Section: Motivation For Dementia Risk Assessment and Reductionmentioning

confidence: 98%

“…However, despite their increased motivation to adopt healthy behaviour, our ndings show that having a parent with dementia causes anxiety and might form a barrier to assess their risk and adopt healthy behaviour. Previous ndings about whether having a family history has a positive effect on the motivation to adopt a healthy lifestyle appear to be contradictory (17,(20)(21)(22). Two studies did not identify a difference in risk-reducing behaviour (e.g., trying to stop smoking, increasing physical activity) between individuals with and without a family history of cardiovascular disease (20,22).…”

Section: Motivation For Dementia Risk Assessment and Reductionmentioning

confidence: 98%

“…The participants in the current study worried about developing dementia themselves. Previous literature has shown that individuals with a parental family history have a higher perceived risk of developing dementia than individuals without a parental family history (17)(18)(19). According to the HBM, perceived risk is one of the determinants in uencing the probability of adopting healthy behaviour (6).…”

Section: Motivation For Dementia Risk Assessment and Reductionmentioning

confidence: 99%

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Knowledge, Beliefs and Attitudes Towards Dementia and Dementia Risk Reduction Among Descendants of People with Dementia: A Qualitative Study Using Focus Group Discussions

Vrijsen

Maeckelberghe

Broekstra

et al. 2021

Preprint

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Background Individuals with a parental family history of dementia have an increased risk of developing dementia because they share their genes as well as their psychosocial behaviour. Due to this increased risk and their experience with dementia, they may be particularly eager to receive information regarding dementia risk reduction (DRR). This study evaluated the knowledge, beliefs and attitudes towards dementia and DRR among descendants of people with dementia.Method Using a semi-structured topic guide, three focus group discussions were conducted consisting of 12 female (80%) and 3 male (20%) descendants of people with dementia with a mean age of 48.8 ± 12.0 years. Focus group discussions were audio recorded and transcribed. Each transcript was analysed thoroughly, and where appropriate, a code was generated and assigned by two researchers independently. Then, similar codes were grouped together and categorized into themes.Results The items in the topic guide could only be addressed after participants had been given the opportunity to share their experiences of having a parent with dementia. Participants were unaware or uncertain about the possibility of reducing the risk of developing dementia and therefore hesitant to assess their dementia risk without treatment options in sight. Moreover, participants indicated that their general practitioner only gave some information on heritability, not on DRR. Although participants identified a large number of modifiable risk factors as a group during the group discussions, they were eager to receive more information on dementia and DRR. In the end, participants adopted a more positive attitude towards a DRR program and provided suggestions for the development of future DRR programs.Conclusions Although the research aim was to evaluate the knowledge, beliefs and attitudes towards dementia and DRR, sharing experiences of having a parent with dementia seemed a prerequisite for considering participants’ own risk of developing dementia and participating in a DRR program. Knowledge of dementia and DRR was limited. Due to unawareness of the possibility of reducing dementia risk, participants were hesitant about assessing their dementia risk. Group discussions positively changed the perception of dementia risk assessment and participants’ willingness to participate in a DRR program.

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Assessing Stakeholder Perceptions of the Utility of Genetic Information for the Clinical Care of Mental Health Disorders: We Have a Will but Need to See the Way

Bourdon

Hettema

Prom‐Wormley

et al. 2020

Adm Policy Ment Health

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Developing community-based health education strategies with family history: Assessing the association between community resident family history and interest in health education

Cited by 14 publications

References 71 publications

Experiences of dementia and attitude towards prevention: a qualitative study among older adults participating in a prevention trial

Experiences of dementia and attitude towards prevention: a qualitative study among older adults participating in a prevention trial

Knowledge, Beliefs and Attitudes Towards Dementia and Dementia Risk Reduction Among Descendants of People with Dementia: A Qualitative Study Using Focus Group Discussions

Assessing Stakeholder Perceptions of the Utility of Genetic Information for the Clinical Care of Mental Health Disorders: We Have a Will but Need to See the Way

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Developing community-based health education strategies with family history: Assessing the association between community resident family history and interest in health education

Cited by 14 publications

References 71 publications

Experiences of dementia and attitude towards prevention: a qualitative study among older adults participating in a prevention trial

Experiences of dementia and attitude towards prevention: a qualitative study among older adults participating in a prevention trial

Knowledge, Beliefs and&nbsp;Attitudes Towards Dementia and Dementia Risk Reduction Among Descendants of People with Dementia: A&nbsp;Qualitative Study Using Focus Group Discussions

Assessing Stakeholder Perceptions of the Utility of Genetic Information for the Clinical Care of Mental Health Disorders: We Have a Will but Need to See the Way

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Knowledge, Beliefs and Attitudes Towards Dementia and Dementia Risk Reduction Among Descendants of People with Dementia: A Qualitative Study Using Focus Group Discussions