Developing and pilot-testing a Finding Balance Intervention for older adult bereaved family caregivers: A randomized feasibility trial

Holtslander, Lorraine; Duggleby, Wendy; Teucher, Ulrich; Cooper, Dan M.; Bally, Jill; Solar, Jessica; Steeves, Megan

doi:10.1016/j.ejon.2016.01.003

Cited by 24 publications

(45 citation statements)

References 37 publications

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“…Of these, two used randomly assigned comparison groups. 44,47 Apart from significant between-group differences in self-reported coping for a creative writing intervention, 44 differences were non-significant for all other outcomes. The other five studies were uncontrolled before and after studies, further limiting their evidence.…”

Section: Evidence For Effectivenessmentioning

confidence: 91%

“…(Volunteer) 63 Similar therapeutic impacts were observed in 11 studies which evaluated group-based interventions 44,47,50,51, 58,60,61,64,72,74,76 and a self-led writing intervention. 44 In a Complicated Grief Group Therapy intervention, it was observed how participant interpretations of the death transitioned from negative to positive over the course of the treatment. 58 More generally, the sharing of experiences helped service users to understand their grief experiences as normal 44,60,61,72,76 and as a process or journey.…”

Section: Evidence On the Impact Of Interventionsmentioning

confidence: 99%

“…Supportive counselling 63,70 Informal home visits 73 Volunteer bereavement support/befriending services 70,71 Peer/self-led Finding Balance writing tool 44 Social groups (face to face) 74 Social groups (online) 50…”

Section: Volunteer Ledmentioning

confidence: 99%

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The impacts and effectiveness of support for people bereaved through advanced illness: A systematic review and thematic synthesis

et al. 2020

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Background: Bereavement support is a key component of palliative care, with different types of support recommended according to need. Previous reviews have typically focused on specialised interventions and have not considered more generic forms of support, drawing on different research methodologies. Aim: To review the quantitative and qualitative evidence on the effectiveness and impact of interventions and services providing support for adults bereaved through advanced illness. Design: A mixed-methods systematic review was conducted, with narrative synthesis of quantitative results and thematic synthesis of qualitative results. The review protocol is published in PROSPERO ( www.crd.york.ac.uk/prospero , CRD42016043530). Data sources: The databases MEDLINE, Embase, PsycINFO, CINAHL and Social Policy and Practice were searched from 1990 to March 2019. Studies were included which reported evaluation results of bereavement interventions, following screening by two independent researchers. Study quality was assessed using GATE checklists. Results: A total of 31 studies were included, reporting on bereavement support groups, psychological and counselling interventions and a mix of other forms of support. Improvements in study outcomes were commonly reported, but the quality of the quantitative evidence was generally poor or mixed. Three main impacts were identified in the qualitative evidence, which also varied in quality: ‘loss and grief resolution’, ‘sense of mastery and moving ahead’ and ‘social support’. Conclusion: Conclusions on effectiveness are limited by small sample sizes and heterogeneity in study populations, models of care and outcomes. The qualitative evidence suggests several cross-cutting benefits and helps explain the impact mechanisms and contextual factors that are integral to the support.

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Section: Evidence For Effectivenessmentioning

confidence: 91%

Section: Evidence On the Impact Of Interventionsmentioning

confidence: 99%

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The impacts and effectiveness of support for people bereaved through advanced illness: A systematic review and thematic synthesis

et al. 2020

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“…Several specific interventions tailored for widowed older adults have been developed to address their mental health difficulties (Holtslander et al, ; Nam, ; Schut, Stroebe, & Bout, J. v. d.,, & Keijser, J., ; Supiano & Luptak, ). Increasing attention has been paid to group bereavement intervention, because group intervention is cost‐effective and may provide a supportive environment and reduce the social isolation that is particularly prevalent among older adults (Piper et al, ; Supiano & Luptak, ).…”

Section: Discussionmentioning

confidence: 99%

Predictive factors for differential changes in grief symptoms following group bereavement intervention for Chinese widowed older adults

Xiu

Chow

Tang

2020

Clin Psychology and Psychoth

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This study aimed to delineate changes in the patterns of prolonged grief severity in widowed adults following group bereavement interventions and to identify the predictive factors impacting these patterns. We performed a secondary analysis of data from a randomized trial of 125 Chinese widowed older adults who participated in either LOGBI or DPGBI. Self-ratings of prolonged grief symptoms via Inventory of Complicated Grief (ICG) were subjected to latent class growth analysis to identify subgroups according to symptomatic changes among baseline, posttreatment, and 8-week follow-up. Multinomial regression analysis examined whether participant classification could be predicted by demographics, loss-related characteristics, and the relationship with the deceased and baseline symptom severity. In the results, intervention sample comprised 96 completers with an attendance greater than 60%. A three-class categorization yielded the best model fit for changes in prolonged grief severity for both randomized and intervention samples:improved class (41.6% in the randomized sample, 42.8% in the intervention sample), partial responded class (48.1%/45.5%), and relapse class (10.3%/11.8%). Older widowed adults experiencing a high level of grief at baseline and bereavement following chronic illness had an elevated risk of symptomatic relapse after the completion of intervention. These findings indicated that Chinese widowed adults experienced different changing patterns of prolonged grief severity following group bereavement interventions. Practically, widowed adults with a higher risk of symptomatic relapse might need more intensive or longer term intervention or follow-up support.

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“…This focus on the necessity of support is often missing from most theories of grief, where the individual tasks [ 60 ] become the main focus. More research is needed to identify tools and interventions to assess support and the most appropriate interventions [ 61 ] to offer. The third most common theme of “stumbling blocks” also related to support that negatively influenced caregivers in bereavement.…”

Section: Discussionmentioning

confidence: 99%

Honoring the voices of bereaved caregivers: a Metasummary of qualitative research

et al. 2017

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BackgroundFamily caregiving in the context of advanced disease in particular, can be physically and emotionally taxing. Caregivers can subsequently face bereavement exhausted with few supports, limited resources and a significant proportion will develop negative psychological and social outcomes. Although some research has attended to the bereavement experiences of family caregivers who had cared for a person requiring palliative care, a comprehensive qualitative understanding of the impact of caregiving on bereavement has not been articulated. The purpose of this study was to conduct a qualitative metasummary to explore the experiences of bereaved family caregivers of people who received palliative care services, regardless of their underlying disease.MethodsSandelowski and Barroso’s qualitative metasummary method was utilized: 1287 articles were identified through extensive database searches (i.e. – MEDLINE, PsychINFO, and CINAHL) and reviewed to determine if they fit the criteria. Those included in the review were assessed for study quality. Findings from each study were then thematically coded and a frequency of themes was calculated.ResultsThe sample consisted of 47 qualitative studies. A total of 15 themes emerged. In descending order of frequency, the 15 themes were: the individual emotions of serenity, sadness, guilt, uncertainty, trauma, escape, and anger; post-loss experiences that helped the caregiver in bereavement; post-loss experiences that hindered; practical life changes; caregiver role identity; pre-loss experiences that helped; pre-loss experiences that hindered; caregiver context; and a need for different kinds of supports. Three key findings emerged from the themes: (1) many different aspects of the caregiving experience impact the bereavement experience, (2) every bereavement experience is unique, and (3) a variety of supports must be developed and made available to caregivers to meet these unique needs.ConclusionsBased on the metasummary findings, changes are needed in practice and policy to ensure the health and well-being of the family caregiver is maintained by offering support both during caregiving and bereavement.

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Developing and pilot-testing a Finding Balance Intervention for older adult bereaved family caregivers: A randomized feasibility trial

Cited by 24 publications

References 37 publications

The impacts and effectiveness of support for people bereaved through advanced illness: A systematic review and thematic synthesis

The impacts and effectiveness of support for people bereaved through advanced illness: A systematic review and thematic synthesis

Predictive factors for differential changes in grief symptoms following group bereavement intervention for Chinese widowed older adults

Honoring the voices of bereaved caregivers: a Metasummary of qualitative research

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