Developing an Easy Read Version of the Adult Social Care Outcomes Toolkit (ASCOT)

Abstract

The process demonstrated the benefits of involving people with intellectual disabilities in the design and testing of data collection instruments. Adequately adapted questionnaires can be useful tools to collect information from people with intellectual disabilities in survey research; however, its limitations must be recognized.

Easy read and accessible information for people with intellectual disabilities: Is it worth it? A meta‐narrative literature review

“…They suggest that staff and supporters themselves can present barriers to disabled people in terms of distribution of resources and their use to promote free and unbiased decision making by people with intellectual disabilities. 32 The findings of this group were more ambivalent than Group 1.…”

“…These authors of the nine papers in this group described projects where the opinions of people with intellectual disabilities were foregrounded as reviewers of accessible information resources (one or many) that had been created elsewhere. In four cases, authors were part of independent research teams who had been commissioned to review a specific resource . Participants were in many cases associated with self‐advocacy organizations or those that worked with people with intellectual disabilities as coresearchers …”

“…Authors drew attention to power imbalances between people with intellectual disabilities and others (carers and paid staff). They suggest that staff and supporters themselves can present barriers to disabled people in terms of distribution of resources and their use to promote free and unbiased decision making by people with intellectual disabilities …”

“…In four cases, authors were part of independent research teams who had been commissioned to review a specific resource. 21,[30][31][32] Participants were in many cases associated with self-advocacy organizations 31,33 or those that worked with people with intellectual disabilities as coresearchers. 34,35 The authors of these papers were more likely to align explicitly with the social model of disability.…”

Messung von Lebensqualität im Kontext stationärer Pflege

“…regionaler Ebene zur Verfügung zu stellen. Das Instrument liegt in verschie denen Versionen (zum individuellen Ausfüllen, als Beobachtungsversion) sowie in einfacher Sprache vor (Turnpenny et al 2015). Auch eine Proxy-Ver sion wurde kürzlich entwickelt, mit der andere Personen im Namen der Nutzer und Nutzerinnen sozialer Dienstleistungen antworten können (Rand et al 2017 (Forder et al 2016).…”