Developing a Very Low Vision Orientation and Mobility Test Battery (O&amp;M-VLV)

Finger, Robert P.; Ayton, Lauren N; Deverell, Lil; O’Hare, Fleur; McSweeney, Shane; Luu, Chi D; Fenwick, Eva; Keeffe, Jill; Guymer, Robyn H.; Bentley, Sharon A

doi:10.1097/opx.0000000000000891

Cited by 19 publications

(16 citation statements)

References 39 publications

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“…Data collection to address objectives 6 and 7 (establishing concurrent and predictive validity) will take longer and the following considerations will affect progress: There are no gold standard measures of functional vision for mobility or O&M to establish criterion validity, but depending on the interests of agencies and clients, comparable data might be generated from the Stuart Tactile Maps test 18 45 (spatial cognition), the Client Evaluation Tool 22 (travel skills and confidence) or personal activity monitors (distance, roaming range, activity type and travel-related stress). Adding assessment tools to VROOM and OMO will extend assessment times; O&M specialists will only fit this in as their workloads allow.…”

Section: Methodology and Methodsmentioning

confidence: 99%

“…There are no gold standard measures of functional vision for mobility or O&M to establish criterion validity, but depending on the interests of agencies and clients, comparable data might be generated from the Stuart Tactile Maps test 18 45 (spatial cognition), the Client Evaluation Tool 22 (travel skills and confidence) or personal activity monitors (distance, roaming range, activity type and travel-related stress).…”

Section: Methodology and Methodsmentioning

confidence: 99%

“…The VROOM and OMO tools were developed following bionic vision research (2011–2015), 18 30 where grounded theories about functional vision and mobility were derived from the lived experience of people with advanced retinitis pigmentosa (n=43). 9 To test proof of concept, the VROOM tool was retro-scored with a convenience sample (n=13), drawing on live observations of people selected from across the visual spectrum and video data from the bionic eye project.…”

Section: Introductionmentioning

confidence: 99%

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Optimising technology to measure functional vision, mobility and service outcomes for people with low vision or blindness: protocol for a prospective cohort study in Australia and Malaysia

Deverell¹,

Meyer

Mahmud

et al. 2017

BMJ Open

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IntroductionOrientation and mobility (O&M) specialists assess the functional vision and O&M skills of people with mobility problems, usually relating to low vision or blindness. There are numerous O&M assessment checklists but no measures that reduce qualitative assessment data to a single comparable score suitable for assessing any O&M client, of any age or ability, in any location. Functional measures are needed internationally to align O&M assessment practices, guide referrals, profile O&M clients, plan appropriate services and evaluate outcomes from O&M programmes (eg, long cane training), assistive technology (eg, hazard sensors) and medical interventions (eg, retinal implants). This study aims to validate two new measures of functional performance vision-related outcomes in orientation and mobility (VROOM) and orientation and mobility outcomes (OMO) in the context of ordinary O&M assessments in Australia, with cultural comparisons in Malaysia, also developing phone apps and online training to streamline professional assessment practices.Methods and analysisThis multiphase observational study will employ embedded mixed methods with a qualitative/quantitative priority: corating functional vision and O&M during social inquiry. Australian O&M agencies (n=15) provide the sampling frame. O&M specialists will use quota sampling to generate cross-sectional assessment data (n=400) before investigating selected cohorts in outcome studies. Cultural relevance of the VROOM and OMO tools will be investigated in Malaysia, where the tools will inform the design of assistive devices and evaluate prototypes. Exploratory and confirmatory factor analysis, Rasch modelling, cluster analysis and analysis of variance will be undertaken along with descriptive analysis of measurement data. Qualitative findings will be used to interpret VROOM and OMO scores, filter statistically significant results, warrant their generalisability and identify additional relevant constructs that could also be measured.Ethics and disseminationEthical approval has been granted by the Human Research Ethics Committee at Swinburne University (SHR Project 2016/316). Dissemination of results will be via agency reports, journal articles and conference presentations.

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Section: Methodology and Methodsmentioning

confidence: 99%

Section: Methodology and Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Optimising technology to measure functional vision, mobility and service outcomes for people with low vision or blindness: protocol for a prospective cohort study in Australia and Malaysia

Deverell¹,

Meyer

Mahmud

et al. 2017

BMJ Open

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“…Excluding preferred mobility aids may be appropriate for some clinical or laboratory studies, but it should be acknowledged that this is not an assessment of functional mobility. 109 To assess functional mobility, individuals should be free to use their primary mobility aid.…”

Section: Introductionmentioning

confidence: 99%

Harmonization of Outcomes and Vision Endpoints in Vision Restoration Trials: Recommendations from the International HOVER Taskforce

Ayton

Rizzo

Bailey

et al. 2020

Trans. Vis. Sci. Tech.

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“…Patients with RP often have difficulties with activities of daily living [14,15]. Most patients are impaired in mobility due to difficulties with navigation, orientation [16][17][18], and obstacle detection [19][20][21].…”

Section: Introductionmentioning

confidence: 99%

Validation of a vision-related activity scale for patients with retinitis pigmentosa

Costela

Pesudovs

Sandberg

et al. 2020

Health Qual Life Outcomes

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Purpose: There have been few systematic reports of vision-related activity limitations of people with retinitis pigmentosa (RP). We report a merging of data from the National Eye Institute Visual Function Questionnaire (NEI-VFQ) obtained in five previous studies. We asked whether the Vision Function Scale (VFS; Pesudovs et al., 2010) which was developed for cataract patients would apply in this new population (condition). Methods: Five hundred ninety-four individuals completed a total of 1753 questionnaires, with 209 participants providing responses over at least 4 years. Rasch analysis showed that the 15-item VFS was poorly targeted. A new instrument created by adding four driving-related items to the VFS had better targeting. As an indirect validation, VFS-plus person scores were compared to visual field area measured using a Goldmann perimeter, to the summed score for the combined 30-2 and 30/60-1 Humphrey Field Analyzer programs (HFA), to 30-Hz full-field cone electroretinogram (ERG) amplitude, and to ETDRS visual acuity. Changes in VFS-plus person scores with age and between four common heredity groups were also examined. Results: The Rasch model of responses to the 19 VFS-plus items had person and item separation of 2.66 and 24.43 respectively. The VFS-plus person scores were related to each vision measure (p < 0.001). Over a five-year period, there was a reduction in person scores of 0.5 logits (p < 0.001). Person scores fell by an average of 0.34 logits per decade (p < 0.0001). Participants with an X-linked hereditary pattern had, on average, lower person scores (p < 0.001). Conclusions: The VFS-plus instrument quantified a highly-significant annual reduction in perceived vision-related ability over a five-year period. The outcome was consistent with clinical measures of vision, and detected lower perceived vision-related ability in participants with X-linked disease. It may be of use in future studies, but this needs to be tested in a representative population sample.

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Developing a Very Low Vision Orientation and Mobility Test Battery (O&M-VLV)

Cited by 19 publications

References 39 publications

Optimising technology to measure functional vision, mobility and service outcomes for people with low vision or blindness: protocol for a prospective cohort study in Australia and Malaysia

Optimising technology to measure functional vision, mobility and service outcomes for people with low vision or blindness: protocol for a prospective cohort study in Australia and Malaysia

Harmonization of Outcomes and Vision Endpoints in Vision Restoration Trials: Recommendations from the International HOVER Taskforce

Validation of a vision-related activity scale for patients with retinitis pigmentosa

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