Developing a Tissue Donation Advocacy Program in a Rural Emergency Department

Sebach, Aaron M.; D, McDowell

doi:10.1016/j.jen.2011.01.013

Cited by 5 publications

(6 citation statements)

References 4 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…11 Health professionals may be reluctant to offer tissue donation information to individuals recently notified of a loved one's sudden death, fearing that it might cause the TDFM to experience an adverse bereavement process. 12,13 The knowledge and attitude of the professional can affect donation decisions. If health professionals do not refer donors, are reluctant to provide information, or do not feel adequately trained to provide support, potential donor families may not have the opportunity to make a donation decision.…”

Section: Personal and Professional Barriers To Obtaining Tissue Donationmentioning

confidence: 99%

“…11 Further, some staff believe that offering donation information close to death notification may cause the TDFM to experience a more difficult bereavement process. 12,13 Therefore, the aim of this quantitative study was to analyze the bereavement process for TDFMs 3 times in a 25-month period after the death of a loved one.…”

Section: Personal and Professional Barriers To Obtaining Tissue Donationmentioning

confidence: 99%

See 1 more Smart Citation

The Bereavement Process of Tissue Donors' Family Members: Responses of Grief, Posttraumatic Stress, Personal Growth, and Ongoing Attachment

2014

View full text Add to dashboard Cite

The results of this study may reinforce the positive meaning that tissue donors' family members can find in tissue donation. Findings also demonstrate that the bereavement process corroborates contemporary bereavement and attachment theories. Health professionals are encouraged to seek donations with less worry that tissue donors' family members will experience adverse outcomes during bereavement.

show abstract

Section: Personal and Professional Barriers To Obtaining Tissue Donationmentioning

confidence: 99%

Section: Personal and Professional Barriers To Obtaining Tissue Donationmentioning

confidence: 99%

The Bereavement Process of Tissue Donors' Family Members: Responses of Grief, Posttraumatic Stress, Personal Growth, and Ongoing Attachment

2014

View full text Add to dashboard Cite

show abstract

“…8 They may have concerns that they will adversely affect the bereavement process by discussing donations with family members. 9, 10 Corr and Coolican 11 suggest that professionals have important roles in donation and transplant and must be knowledgeable about bereavement, grief, and mourning to better assist FDMs in the process.…”

Section: Literature Reviewmentioning

confidence: 99%

“…However, in reviewing the program, the authors stated that families were receptive to discussing tissue donation in the emergency department. 10 Researchers have sought to identify factors that motivate family members to authorize tissue donation when a loved one dies, but few studies have addressed how family members give meaning to donation when they have had time to reflect on their decision and are immersed in grief. Findings from studies of the reasons why family members are motivated to donate tissues indicate that they are likely to authorize donation if they have explicit verbal or written instructions from their deceased loved one [18][19][20][21][22][23] or presume that the donor would have chosen to donate.…”

Section: Tissue Donationmentioning

confidence: 99%

Making Meaning in the Legacy of Tissue Donation for Donor Families

2013

View full text Add to dashboard Cite

show abstract

“…53,54 There are low levels of support for this option on the Organ Donor Register (ODR) with ED being the most 'restricted' option (individuals can restrict which organ and tissue they would donate) on the ODR. 55 There is also evidence of HCP reluctance to raise the issue of tissue donation as part of usual EoLC discussions [56][57][58][59] despite national guideline recommendations, 8,[60][61][62] and a failure to recognise potential donors due to poor knowledge among HCPs of the medical contraindications and donor suitability criteria. 63,64…”

Section: Supply Of Eye Tissue Is a Global Concernmentioning

confidence: 99%

Eye donation from palliative and hospice care contexts: the EDiPPPP mixed-methods study

Long-Sutehall,

Bracher,

Mollart

et al. 2023

Health Soc Care Deliv Res

View full text Add to dashboard Cite

Background Over 2 million people in the United Kingdom are living with sight loss with costs to the United Kingdom economy reported as £4.34 billion annually. Conditions that lead to sight loss and impaired vision can be treated if eye tissue is available for corneal transplantation, reconstructive surgery and research into eye diseases. Supply of eye tissue (only available via eye donation) is currently insufficient to meet demand; therefore, new routes are needed. Hospice and hospital-based Palliative Care Services have been reported as potential donation sources of this tissue. Objectives To: (1) scope the size and clinical characteristics of the potential eye donation population from research sites; (2) map the donation climate of each research site; (3) identify factors that enable or challenge service providers to consider the option of eye donation from a local and national perspective; (4) identify service users’ views regarding the option of eye donation and the propriety of discussing eye donation; and (5) develop and pilot an empirically based intervention designed to change behaviours in relation to eye donation. Design A 36-month mixed-methods, multicentre study undertaking three work packages. Settings Three hospice care and three hospital-based palliative care services situated in the North, Midlands and the South of England (one service of each type per region). Participants Work package 1 – 105 service providers. Work package 2 – 62 service users, and 156 service providers in the national survey. Work package 3 – 21 expert consultees (patient and public involvement, cross discipline). Data sources Scoping review, retrospective note review, qualitative interviews/focus groups, participant observation, secondary analysis of primary data, national survey, transparent expert consultation. Results Potential: The retrospective notes review demonstrated that of 1199 deceased patients’ notes, 553 (46%) patients met the criteria for eye donation (56%, n = 337 in hospice care service settings and 36%, n = 216 in hospital palliative care service). Practice: Less than 4% of all cases agreed as eligible for donation had been approached or referred for eye donation. Eye donation is not currently an embedded practice at local and national levels. Perceptions: Service providers were motivated to discuss eye donation but lacked opportunity and capability. Service users were willing and able to hold conversations about eye donation but were not aware of the option and had not had the option discussed with them. Preferences: Service users wanted to be offered the option of eye donation, and service providers wanted bespoke education and training related to eye donation. Evaluation of the developed intervention STEPS – Support Toolkit for Eye donation in Palliative care Settings will follow implementation of the full intervention (expected to begin in October 2022). Limitations Due to the significant impact of the COVID-19 pandemic on clinical sites, partner organisations and national service providers, only two elements of the developed intervention have been pilot tested for proof of concept and the response rate to the national survey was low (8%). Conclusions Significant potential exists for eye donation from hospice care and hospital palliative care services; however, individual and organisational behaviour as well as information system-based changes are needed to maximise this potential. Future work Evaluation of the STEPS – Support Toolkit for Eye donation in Palliative care Settings; Research exploring the wider public knowledge and views regarding eye donation; research exploring the use of language by National Health Service Blood and Transplant-Tissue and Eye Services in their public-facing infographics, communications and campaigns (specifically the use of the term eye donation). Trial registration This trial is registered as ISRCTN14243635: Eye donation from palliative care and hospice care settings. Funding details This project was funded by the National Institute for Health and Care Research (NIHR) Health and Social Care Delivery Research programme (17/49/42) and will be published in full in Health and Social Care Delivery Research; Vol. 11, No. 20. See the NIHR Journals Library website for further project information.

show abstract

Developing a Tissue Donation Advocacy Program in a Rural Emergency Department

Cited by 5 publications

References 4 publications

The Bereavement Process of Tissue Donors' Family Members: Responses of Grief, Posttraumatic Stress, Personal Growth, and Ongoing Attachment

The Bereavement Process of Tissue Donors' Family Members: Responses of Grief, Posttraumatic Stress, Personal Growth, and Ongoing Attachment

Making Meaning in the Legacy of Tissue Donation for Donor Families

Eye donation from palliative and hospice care contexts: the EDiPPPP mixed-methods study

Contact Info

Product

Resources

About