Developing a regional healthcare information network

Williams, M. Howard; Venters, G; Marwick, David

doi:10.1109/4233.924809

Cited by 20 publications

(8 citation statements)

References 4 publications

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“…Of the 47 hospital trusts in Scotland, more than half have fully operational sites integrated into SHOW, or are preparing them [12]. All of the Headquarter organisations of the National Health Service in Scotland have SHOW sites that are fully operational or in preparation.…”

Section: Resultsmentioning

confidence: 99%

Co-operative Health Information Networks in Europe: Experiences from Greece and Scotland

Tambouris¹,

Williams²,

Makropoulos³

2000

J Med Internet Res

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BackgroundInternet technology is transforming the general approach to communication and dissemination of information in the field of healthcare. However, it is also creating problems in terms of finding information, and knowing what credibility to place on the information found. The chaotic nature of the World Wide Web (WWW) and the simplistic approach adopted by search engines can make the task of finding relevant information difficult, and the user can waste considerable amounts of time on the process. Even when information is found, there is no general quality assurance process that can guarantee the credibility of the resulting information.ObjectiveThe aim of this research was to develop an approach for establishing co-operative health information networks (CHINs) with different focuses, which can be used in different parts of Europe. The resulting CHINs would provide organised healthcare information and support comprehensive and integrated sets of healthcare telematic services for a broad range of users. Such developments would reduce the difficulties of finding information and knowing what credibility to ascribe to it.MethodsA common approach has been developed based on drawing together contributions from the major healthcare service providers in the region. Standard structures are recommended so that information is presented in a uniform way. Appropriate mechanisms ensure adequate security and a level of quality assurance for the end user.ResultsSince 1996, CHINs have been developed in six European countries as part of a European Union (EU) project. This paper presents the overall approach adopted, and the achievements in two different regions of Europe (Greece and Scotland). Although the circumstances in these two regions are very different, in both cases the resulting CHIN has proved successful.ConclusionsCHINs offer a solution to the difficulty of finding relevant health information on the Internet and guaranteeing its credibility. They can be used in different ways in different regions, and have major benefits for both information providers and end users.

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Section: Resultsmentioning

confidence: 99%

Co-operative Health Information Networks in Europe: Experiences from Greece and Scotland

Tambouris¹,

Williams²,

Makropoulos³

2000

J Med Internet Res

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“…. , 295.04} or {296.00, 296.01, 296.02}, which effectively limits the re-identification probability to 1 2 . In addition, the distribution of Bipolar I disorder and Schizophrenia is the same as in the original data shown in Fig.…”

Section: Contributionsmentioning

confidence: 99%

“…E LECTRONIC medical record (EMR) systems are increasingly adopted in the U.S. [1], Europe [2], and Asia [3] and contain large volumes of patient-level data, including demographics, diagnosis information, and laboratory results. Such data have been used in automating the workflow of healthcare and are becoming an invaluable source for performing biomedical analysis and decision making [4]- [6].…”

Section: Introductionmentioning

confidence: 99%

Utility-Aware Anonymization of Diagnosis Codes

Loukides

Gkoulalas-Divanis

2013

IEEE J. Biomed. Health Inform.

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The growing need for performing large-scale and low-cost biomedical studies has led organizations to promote the reuse of patient data. For instance, the National Institutes of Health in the US requires patient-specific data collected and analyzed in the context of Genome-Wide Association Studies (GWAS) to be deposited into a biorepository and broadly disseminated. While essential to comply with regulations, disseminating such data risks privacy breaches, because patients genomic sequences can be linked to their identities through diagnosis codes. This work proposes a novel approach that prevents this type of data linkage by modifying diagnosis codes to limit the probability of associating a patients identity to their genomic sequence. Our approach employs an effective algorithm that uses generalization and suppression of diagnosis codes to preserve privacy and takes into account the intended uses of the disseminated data to guarantee utility. We also present extensive experiments using several datasets derived from the Electronic Medical Record (EMR) system of the Vanderbilt University Medical Center, as well as a large-scale case-study using the EMRs of 79K patients, which are linked to DNA contained in the Vanderbilt University biobank. Our results verify that our approach generates anonymized data that permit accurate biomedical analysis in tasks including case count studies and GWAS.

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“…This requires a canonical content standard for medical information. Such only exists in regional healthcare information networks (RHIN) [15]. Considering large-scale inter-institutional processes, it is necessary to strictly separate decision support from the cooperative workflow and the necessary coordination work.…”

Section: B Content and Decision Support Versus Coordinationmentioning

confidence: 99%

The Alpha-Flow Use-Case of Breast Cancer Treatment - Modeling Inter-institutional Healthcare Workflows by Active Documents

Neumann

Lenz

2010

2010 19th IEEE International Workshops on Enabling Technologies: Infrastructures for Collaborative Enterprises

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In healthcare, inter-institutional process support implicates decentralized and ad-hoc workflows. From the perspective of system integration, the autonomy of the sites which are participating in a healthcare network is mostly untouchable. Traditional activity-oriented workflow models or content-oriented workflow models do not provide adequate support in such system environments and workflow scenarios. The objective of the alpha-Flow approach is to enable distributed, ad-hoc process support with initially unknown sets of actors and institutions. In its document-oriented workflow model, electronic documents become active documents and act as software agents as the primary means of coordination. This paper details the healthcare use-case for the alpha-Flow model by the example of cooperative breast-cancer treatment scenarios.

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Developing a regional healthcare information network

Cited by 20 publications

References 4 publications

Co-operative Health Information Networks in Europe: Experiences from Greece and Scotland

Co-operative Health Information Networks in Europe: Experiences from Greece and Scotland

Utility-Aware Anonymization of Diagnosis Codes

The Alpha-Flow Use-Case of Breast Cancer Treatment - Modeling Inter-institutional Healthcare Workflows by Active Documents

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