Developing a quality of life instrument in patients with psoriasis: the Psoriasis Quality of Life Questionnaire (PQLQ)

İnanır, Işıl; Aydemi̇r, Ömer; Gündüz, Kamer; Danacı, Ayşen Esen; Türel, Aylin

doi:10.1111/j.1365-4632.2005.02448.x

Cited by 16 publications

(15 citation statements)

References 28 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Psoriasis is a chronic disease of the skin that affects approximately 2% of the global population [1]. Primary manifestations of psoriasis include itchiness, pain, and presence of thick red scaling skin lesions that may develop in each body area [2][3][4].…”

Section: Introductionmentioning

confidence: 99%

Acceptance of Illness, Satisfaction with Life, Sense of Stigmatization, and Quality of Life among People with Psoriasis: A Cross-Sectional Study

Kowalewska

Cybulski

Jankowiak

et al. 2020

Dermatol Ther (Heidelb)

View full text Add to dashboard Cite

Section: Introductionmentioning

confidence: 99%

Acceptance of Illness, Satisfaction with Life, Sense of Stigmatization, and Quality of Life among People with Psoriasis: A Cross-Sectional Study

Kowalewska

Cybulski

Jankowiak

et al. 2020

Dermatol Ther (Heidelb)

View full text Add to dashboard Cite

“…The Dermatology Life Quality Index (DLQI) [7] and the Skindex 29 [8], generic questionnaires for dermatology, have been used for psoriasis. As well as other disease specific questionnaires like the Psoriasis Disability Index (PDI) [9], the Impact of Psoriasis questionnaire (IPSO) [10], the 12-Item Psoriasis Quality of Life Questionnaire (PQoL-12) [11], the Psoriasis Index of Quality of Life (PSORIQOL) [12], the Psoriasis Life Stress Inventory (PLSI) [13], and the Questionnaire on Experience with Skin Complaints (SF-QES) [14]. …”

Section: Introductionmentioning

confidence: 99%

Validation of a new tool to assess health-related quality of life in psoriasis: the PSO-LIFE questionnaire

Daudén

Herrera

Puig

et al. 2012

Health Qual Life Outcomes

View full text Add to dashboard Cite

BackgroundSeveral questionnaires have been used to measure health related quality of life (HRQoL) in patients with psoriasis, few have been adapted for use in Spain; none of them was developed specifically for the Spanish population. The purpose of the study was to validate and assess the sensitivity to change of a new questionnaire to measure HRQOL in patients with psoriasis (PSO-LIFE).MethodsObservational, prospective, multicenter study performed in centers around Spain. Patients with active or inactive psoriasis completed the PSO-LIFE together with other Dermatology Quality of Life Index (DLQI) and Psoriasis Disability Index (PDI). A control group of patients with urticaria or atopic dermatitis was also included. Internal consistency and test-retest reliability of the PSO-LIFE were assessed by calculating Cronbach’s alpha and Intraclass Correlation Coefficient (ICC). Validity was assessed by examining factorial structure, the capacity to discriminate between groups, and correlations with other measures. Sensitivity to change was measured using effect sizes.ResultsThe final sample included for analysis consisted of 304 patients and 56 controls. Mean (SD) age of psoriasis patients was 45.3 (14.5) years compared to 38.8 (14) years for controls (p < 0.01). Cronbach’s alpha for the PSO-LIFE was 0.95 and test-retest reliability using the ICC was 0.98. Factor analysis showed the questionnaire to be unidimensional. Mean (SD) PSO-LIFE scores differed between patients with psoriasis and controls (64.9 [22.5] vs 69.4 [17.3]; p < 0.05), between those with active and inactive disease (57.4 [20.4] vs 76.4 [20.6]; p < 0.01), and between those with visible and non-visible lesions (63.0 [21.9] vs. 74.8 [23.9]; p < 0.01). The correlation between PSO-LIFE and PASI scores was moderate (r = −0.43) while correlations with DLQI and PDI dimensions ranged from moderate to high (between 0.4 and 0.8). Effect size on the PSO-LIFE in patients reporting ‘much improved’ health status at study completion was 1.01 (large effect size).ConclusionsThe present results provide substantial support for the reliability, validity, and responsiveness of the PSO-LIFE questionnaire in the population for which it was designed.

show abstract

“…Toplumda s›k görülen bu hastal›k, görünür bölgeleri etkilemekte, kafl›nt› gibi yak›nmalara neden olmakta ve nükslerle giden kronik bir süreç izlemektedir. Bu nedenle psoriasis hastalar›nda, hastal›¤a ba¤l› kronik stresin neden oldu¤u psikolojik s›k›nt›, utanma, çekinme, depresyon, sosyal ve fiziksel aktivitelerde k›s›tlanma gibi pek çok psikososyal sorunlarla karfl›laflmaktad›r [3][4][5] . Bu etkiler her zaman hastal›¤›n klinik fliddeti ile korele olmayabilir ve hafif fliddetteki deri bulgular› bile a¤›r psikososyal bozukluklara yol açabilir 6,7 .…”

Section: Giriflunclassified

The Turkish Version of the Psoriasis Disability Index: A Validation and Reliability Study

Fisek¹,

Gökdemir²,

Köşlü³

et al. 2011

TURKDERM

View full text Add to dashboard Cite

ÖzetAmaç: Psoriasis vulgaris, hastalar›n yaflam kalitesini önemli ölçüde etkileyen kronik bir hastal›kt›r. Hastal›¤a özgü gelifltirilen ilk ölçek olan "Psoriasis ‹fllev Kayb› ‹ndeksi" (P‹K‹), pek çok dilde geçerlilik ve güvenilirli¤ini kan›tlam›fl ve klinik çal›flmalarda kullan›lm›flt›r. Bu çal›flmada amac›m›z, P‹K‹'ni Türkçeye çevirerek, dilimizde geçerlili¤ini ve güvenilirli¤ini araflt›rmakt›. Gereç ve Yöntem: Ölçek, uluslararas› çeviri basamaklar› izlenerek Türkçeye çevrildi. Hastalar›n Psoriasis alan fliddet indeksi (PAfi‹) skorlar›, demografik ve klinik bulgular› kaydedildi. Güvenilirlik analizi için "iç yap› tutarl›l›¤›" ve "test-tekrar test" metotlar› kullan›ld›. Ölçekteki her bir soru ve alt gruplar için Cronbach alfa katsay›s› ve madde-toplam puan korelasyonlar› hesapland›. Geçerlilik analizi için, "Dermatoloji Yaflam Kalite ölçe¤i"(DYKÖ) ile karfl›laflt›rma yöntemi kullan›ld›. Elde edilen P‹K‹ skorlar›, hastalar›n demografik bulgular› ve klinik özellikleri ile karfl›laflt›r›ld›. Bulgular: Çal›flmaya 161 psoriasis hastas› al›nd›. ‹çyap› tutarl›l›k ölçümünde tüm alt ölçeklerin Cronbach alfa katsay›s› 0,61-0,79 aras›nda de¤iflmekte olup, tüm anket için 0,88 olarak hesapland›. Test-tekrar test güvenilirli¤inde, her bir soru için korelasyon katsay›s› 0,366-0,775 aras›nda de¤iflmekte olup, toplam P‹K‹ skoru için korelasyon katsay›s› r=0,854 olarak hesapland› (p<0,001). Geçerlilik analizleri için, ortalama P‹K‹ ve DYKÖ skorlar› aras›ndaki iliflki araflt›r›ld› ve her iki ölçek aras›nda korelasyon katsay›s› r= 0,674 bulundu (p<0,05). Sonuç: Çal›flmam›z, yap›lan güvenilirlik ve geçerlilik ölçümleri sonucunda P‹K‹'nin Türk psoriasis hastalar› için uygun bir ölçek oldu¤unu göstermektedir. (Türkderm 2011; 45: 24-8) Anahtar Kelimeler: Dermatoloji yaflam kalite ölçe¤i, psoriasis, psoriasis ifllev kayb› indeksi, yaflam kalitesi, türkçe versiyon Summary Background and Design: Several instruments are available for assessing impairment and disability associated with psoriasis. The first psoriasis-specific quality of life questionnaire, Psoriasis Disability Index (PDI), has been translated to many different languages and used in studies all around the world. The aim of this study was to translate the PDI into Turkish and to validate the Turkish version of the PDI and its use for Turkish psoriasis patients, as well as to examine the specific contribution of demographic and clinical features to the PDI. Material and Method: The questionnaire was translated into Turkish by using appropriate translation steps. The socio-demographic data and the Psoriasis Area and Severity Index (PASI) scores of the patients were recorded. For reliability analysis, internal consistency and test-retest method were used. The Cronbach's alpha coefficient and item-total statistics were calculated for each question and subscales. For validation, the questionnaire was compared with the Dermatology Life Quality Index (DLQI). Results: A total of 161 psoriasis patients were included in the study. For internal consistency, Cronbach's alpha coefficient...

show abstract

Developing a quality of life instrument in patients with psoriasis: the Psoriasis Quality of Life Questionnaire (PQLQ)

Abstract: The questionnaire consisting of 17 items was found to be suitable for both epidemiologic and clinical trials.

Cited by 16 publications

References 28 publications

Acceptance of Illness, Satisfaction with Life, Sense of Stigmatization, and Quality of Life among People with Psoriasis: A Cross-Sectional Study

Acceptance of Illness, Satisfaction with Life, Sense of Stigmatization, and Quality of Life among People with Psoriasis: A Cross-Sectional Study

Validation of a new tool to assess health-related quality of life in psoriasis: the PSO-LIFE questionnaire

The Turkish Version of the Psoriasis Disability Index: A Validation and Reliability Study

Contact Info

Product

Resources

About