Developing a Living with Hope Program for Caregivers of Family Members with Advanced Cancer

Duggleby, Wendy; Wright, Karen; Williams, Allison; Degner, Lesley F.; Cammer, Allison; Holtslander, Lorraine

doi:10.1177/082585970702300104

Cited by 49 publications

(61 citation statements)

References 34 publications

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“…Additionally, 31% ( n = 15) of the interventions targeted caregivers of patients with specific cancer diagnoses (i.e., breast (Christensen, 1983; Bultz et al, 2000; Northouse et al, 2005; Badger et al, 2007; Budin et al, 2008; Baucom et al, 2009), prostate (Manne et al, 2004; Campbell et al, 2006; Northouse et al, 2007), brain (Horowitz et al, 1996), hematopoietic stem cell transplantation (HSCT) (Bevans et al, 2010), and lung tumors (Goldberg & Wool, 1985), and pediatric cancers (Sahler et al, 2002; Stehl et al, 2009)). Additionally, 29% ( n = 14) of the interventions specifically targeted ICs of patients who had advanced disease/were receiving palliative care (Walsh & Schmidt, 2003; Cameron et al, 2004; Harding et al, 2004; Hudson et al, 2005, 2008; Keefe et al, 2005; McMillan et al, 2005; Milberg et al, 2005; Northouse et al, 2005; Carter, 2006; Kissane et al, 2006; Duggleby et al, 2007; Walsh et al, 2007; Bowman et al, 2009), whereas the remaining 71% ( n = 35) enrolled ICs of patients who were heterogeneous with regard to their disease stage.…”

Section: Resultsmentioning

confidence: 99%

“…Only one intervention specifically targeted existential concerns of ICs (Duggleby et al, 2007), whereas several others acknowledged the importance of existential issues, including the importance of finding meaning through the cancer caregiving experience (Toseland et al, 1995; Scott et al, 2004; Northouse et al, 2005; Kozachik et al, 2006; McLean et al, 2008). Our group (Applebaum, 2011) has developed a meaning-centered psychotherapy for informal cancer caregivers, designed to enhance meaning and ultimately reduce suffering.…”

Section: Future Directionsmentioning

confidence: 99%

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Care for the cancer caregiver: A systematic review

2012

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Objective Informal caregivers (ICs) are relatives, friends, and partners who have a significant relationship with and provide assistance (i.e., physical, emotional) to a patient with a life-threatening, incurable illness. The multidimensional burden that results from providing care to a patient with cancer is well documented, and as a result, a growing number of psychosocial interventions have been developed specifically to address this burden. The purpose of the present study was to characterize the state of the science of psychosocial interventions for informal cancer caregivers. Method A comprehensive systematic review of interventions for cancer caregivers was conducted via an electronic literature search of publications between 1980 and January 13, 2011. A final sample of 49 interventions was reviewed in detail. Results The interventions, which varied in terms of modality and patient population, fell into the following eight categories: psychoeducation, problem-solving/skills building interventions, supportive therapy, family/couples therapy, cognitive-behavioral therapy, interpersonal therapy, complementary and alternative medicine interventions, and existential therapy. Benefits and disadvantages of each of the categories are discussed, with special attention given to studies that produced null findings. Significance of results Beyond specific techniques, structured, goal-oriented, and time-limited interventions that are integrative appear to be the most feasible and offer the greatest benefits for ICs of cancer patients. Future studies are needed to examine the specific benefits and challenges of delivering interventions in alternative modalities (Internet, Skype) so that the needs of a greater number of ICs may be addressed.

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Section: Resultsmentioning

confidence: 99%

Section: Future Directionsmentioning

confidence: 99%

Care for the cancer caregiver: A systematic review

2012

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“…16,28,29 Results While in total, 5 interventions described in 24 publications fulfilled the inclusion criteria and were included in this review, many interventions identified during the literature search did not fulfill the inclusion criteria. Exclusions involved not being structured by time and/or content, 30-47 not being focused on palliative care or exclusively focused on bereavement, 48-71 focused on early-stage cancer [72][73] or recurrent breast cancer, 74 not including minor children/parents, [75][76][77][78] or not being evaluated in an empirical study [79][80][81][82][83] (listed regarding first inclusion criterion that did not fit). For reasons and corresponding numbers of exclusions dependent on the stage of the process, see Figure 1.…”

Section: Inclusion Criteria and Assessment Of Study Qualitymentioning

confidence: 99%

Minor Children of Palliative Patients: A Systematic Review of Psychosocial Family Interventions

Kühne

Krattenmacher²,

Beierlein³

et al. 2012

Journal of Palliative Medicine

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Although the whole family is affected by a parent's palliative disease, palliative care research does not yet routinely consider patients' minor children. Children's and adolescents' psychosocial functioning may be impaired during prolonged parental disease with poor prognosis. Therefore, more and more health care providers are establishing clinical initiatives for families of palliative patients with minor children. However, the number of these family interventions, as well as their theoretical and empirical backgrounds and evidence base, has yet to be determined. The purpose of this study was to systematically review structured and published interventions for this target group, as well as empirical studies on these interventions. The evidence base and impact of interventions on families were considered. Literature published between 1980 and present focusing on psychosocial family-, child- or parent-centered interventions during palliative care was retrieved from PsycINFO®, Embase, MEDLINE®, CINAHL®, and PSYNDEX databases. Five interventions met the inclusion criteria. Programs focused on different populations, had diverse empirical and theoretical backgrounds and features, and were evaluated by studies of varying methodological quality. This systematic review illustrates the lack of well designed and elaborated intervention concepts and evaluation studies in this field, highlighting the necessity of conceptual and methodological rigor to inform clinical practice on a sustainable basis in the future.

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“…For instance, a family member or friend can provide sporadic relief from caregiving duties as well as psychological support to both the patient and the caregiver. 7,31 In some studies, caregivers reported feeling reassured when they had a source of support and received assistance, including information and financial, emotional, and practical support. 12 Therefore, healthcare professionals should encourage caregivers to request and receive assistance from family, friends, and formal caregivers.…”

Section: N Discussionmentioning

confidence: 97%