Determining the variables associated to clean intermittent self-catheterization adherence rate: one-year follow-up study

Girotti, M; MacCornick, Sarita; Perissé, Humberto; Batezini, Nelson; Almeida, Fernando G.

doi:10.1590/s1677-55382011000600013

Cited by 47 publications

(75 citation statements)

References 16 publications

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“…21,22 This high rate may reflect the immediate effect felt by patients—management of leaks, improved sleep, etc.—even though the technique is invasive. Despite involving a learning phase and patient adherence, ISC is considered simple and straightforward.…”

Section: Discussionmentioning

confidence: 99%

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Treatment discontinuation in multiple sclerosis: The French Web-based survey ALLIANCE

Donzé¹,

Malapel²,

Kwiatkowski

et al. 2015

Multiple Sclerosis Journal - Experimental, Translational and Cl

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BackgroundIn multiple sclerosis (MS), treatment discontinuation leads to a higher risk of relapse, poorer quality of life and greater economic impact.ObjectiveThe objective of this work is to evaluate treatment discontinuation in MS, the reasons for this and the reasons for treatment resumption.MethodsA French national Web-based survey was carried out between May and August 2011. A total of 602 MS patients answered a questionnaire on sociodemographic data, medical follow-up, disease-modifying therapies (DMTs), symptomatic treatments, care given, factors involved in treatment discontinuation and reasons for resuming treatment.ResultsAmong 413 patients using DMTs, 54% have considered discontinuing their treatment, primarily because of anger (61%), side effects (61%) and fatigue (57%). Sixty-eight patients have actually discontinued their treatment because of side effects (43%), lack of observed outcomes (32%), exasperation (29%) or fatigue (29%). The reasons for symptomatic treatment discontinuation were fear of addiction (32%–46%) and lack of efficacy (28%–45%). Physiotherapy was discontinued because of fatigue (37%), stress (34%) or inefficiency (31%). According to patients, treatment discontinuation could have been prevented by psychological support, care team empathy and support from family.ConclusionThe major factor that could prevent treatment discontinuation is psychological support. Initiating and monitoring treatment in MS leads to emotional and personality changes, requiring adaptations that may improve compliance.

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Section: Discussionmentioning

confidence: 99%

“…Despite involving a learning phase and patient adherence, ISC is considered simple and straightforward. 22 Van Achterberg et al. 23 highlighted the importance of psychological factors and emphasized the need to identify lack of knowledge of the technique, fears and feelings of shame associated with urinary catheters.…”

Section: Discussionmentioning

confidence: 99%

Treatment discontinuation in multiple sclerosis: The French Web-based survey ALLIANCE

Donzé¹,

Malapel²,

Kwiatkowski

et al. 2015

Multiple Sclerosis Journal - Experimental, Translational and Cl

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“…15 Girotti et al identified female gender, neurogenic voiding function and age less than 40 years as factors predicting strong adherence to ISC, while about half of evaluated male patients and patients with nonneurogenic bladder were noncompliant. 16 …”

Section: Discussionmentioning

confidence: 99%

“…7,16,18 To our knowledge none has specifically addressed the role of ISD in a non-neurogenic male population with obstructing urethral lesions. Our patient population is unique in that all men had normal sensation and an otherwise anatomically normal urinary tract.…”

Section: Discussionmentioning

confidence: 99%

Poor Quality of Life in Patients with Urethral Stricture Treated with Intermittent Self-Dilation

et al. 2014

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Purpose We assessed patient perceptions of regular intermittent self-dilation in men with urethral stricture. Materials and Methods We constructed and distributed a visual analog questionnaire to evaluate intermittent self-dilation via catheterization by men referred for urethral stricture management at a total of 4 institutions. Items assessed included patient duration, frequency, difficulty and pain associated with intermittent self-dilation as well as interference of intermittent self-dilation with daily activity. The primary outcome was patient perceived quality of life. Multivariate analysis was performed to assess factors that affected this outcome. Results Included in the study were 85 patients with a median age of 68 years, a median of 3.0 years on intermittent self-dilation and a median frequency of 1 dilation per day. On a 1 to 10 scale the median intermittent self-dilation difficulty was 5.0 ± 2.7, the median pain score was 3.0 ± 2.7 and median interference with daily life was 2.0 ± 1.3. Overall quality of life in patients with stricture was poor (median score 7.0 ± 2.6 with poor quality of life defined as 7 or greater). On univariate analysis younger age (p <0.01), interference (p = 0.03), pain (p <0.01) and difficulty performing intermittent self-dilation (p = 0.03) correlated with poor quality of life in a statistically significant manner. On multivariate analysis only difficulty catheterizing (p <0.01) and younger age (p = 0.05) were statistically significant predictors. Patients with stricture involving the posterior urethra had a statistically significant increase in difficulty and decrease in quality of life (each p = 0.04). Conclusions Most patients with urethral stricture who are on intermittent selfdilation rate difficulty and pain as moderate, and inconvenience as low but report poor quality of life.

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“…Several studies from centers that practice CISC have shown that a younger age also positively influenced adherence to CISC 13,14. Similarly, in reviewing the success rate of intermittent self-catheterization among 309 patients with a mean age of 62 years, Parsons et al recorded a success rate of 86% for patients younger than 65 years and 82% for those 65 years and older 15…”

Section: Discussionmentioning

confidence: 99%

Reducing the burden of regular indwelling urinary catheter changes in the catheter clinics: the opinion of patients and relatives on the practice of self-catheterization

Nnabugwu¹,

Udeh²,

Enivwenae³

et al. 2014

PPA

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BackgroundClean intermittent self-catheterization is accepted worldwide as a standard of care for patients with long-standing need for urinary bladder decompression. Evidence of its routine practice in our low-resource setting is lacking, leading to increasing number of patients with a long-standing indwelling urinary catheter.ObjectiveTo seek the opinion of patients already using indwelling catheters regarding the practice of self-catheterization.Patients and methodsOver a 4-month period, the opinion of every patient and patient’s relative that attended the regular urinary catheter clinic was sought using an intern-administered questionnaire. The data was analyzed using SPSS version 20.ResultsA total of 108 patients completed the questionnaire. Age range was 16–100 years with a mean of 62.2±15.5 years. Only 30.5% of the patients had formal education beyond the primary level. The median cost for change of the indwelling catheter was 1,325 naira ($8.28 US) with a range of 500–4,000 naira ($3.13–$25 USD). Analysis showed that: 70.8% of patients aged under 60 years/60.6% of those with formal education beyond primary level/61.9% of those wearing catheters for <3 months would give consent for training in self-catheterization. Higher cost of catheter change did not influence the decision to consider self-catheterization. Of the 59 patient relatives who completed the questionnaire, 63% of those younger than 50 years old and 69.2% of those with tertiary education would be willing to undertake training to administer self-catheterization.ConclusionA select group of patients and accompanying relatives in our low-resource setting are willing to learn and practice self-catheterization.

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Determining the variables associated to clean intermittent self-catheterization adherence rate: one-year follow-up study

Cited by 47 publications

References 16 publications

Treatment discontinuation in multiple sclerosis: The French Web-based survey ALLIANCE

Treatment discontinuation in multiple sclerosis: The French Web-based survey ALLIANCE

Poor Quality of Life in Patients with Urethral Stricture Treated with Intermittent Self-Dilation

Reducing the burden of regular indwelling urinary catheter changes in the catheter clinics: the opinion of patients and relatives on the practice of self-catheterization

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