Determining Personal Care Consumers' Preferences for a Consumer‐Directed Cash and Counseling Option: Survey Results from Arkansas, Florida, New Jersey, and New York Elders and Adults with Physical Disabilities

Mahoney, Kevin J.; Simon-Rusinowitz, Lori; Loughlin, Dawn M.; Desmond, Sharon M.; Squillace, Marie R.

doi:10.1111/j.1475-6773.2004.00249.x

Cited by 62 publications

(26 citation statements)

References 8 publications

(7 reference statements)

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“…28 Consumer-directed services has been found to be highly satisfactory among PAS recipients, who also prefer having relatives as their paid providers, as permitted by an increasing number of programs [5,6] . However, the use of relatives as paid providers may bring up unintended complications regarding the actual delivery of care, because of the well-documented risk of occupational injury and musculoskeletal disorders (MSDs) among PAS providers [7,8] .…”

Section: Issn 2324-7940 E-issn 2324-7959mentioning

confidence: 99%

Employment After Liver Transplantation: A Review

Huda¹,

Newcomer²,

Harrington³

et al. 2015

Transplantation Proceedings

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Personal Assistance Services (PAS) employs nearly 900,000 providers of long-term care; many are relatives hired by PAS recipients. Risk of occupational injury and musculoskeletal disorders among PAS providers is a concern and it is unknown if relatives are more vulnerable compared to non-relative providers. This paper explores whether paid relative and non-relative providers differ regarding this vulnerability, using data from a survey of PAS providers (n=855). No differences were found regarding risk of injury or musculoskeletal disorders, which suggests that PAS programs could continue offering options for recipients to hire relatives as providers, with no additional risks placed on relatives.

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Section: Issn 2324-7940 E-issn 2324-7959mentioning

confidence: 99%

Employment After Liver Transplantation: A Review

Huda¹,

Newcomer²,

Harrington³

et al. 2015

Transplantation Proceedings

View full text Add to dashboard Cite

show abstract

“…Substantial consumer interest exists in exercising increased control over HCBS (Mahoney, Simon-Rusinowitz, Loughlin, Desmond, & Squillace, 2004), especially among older adults (Simon-Rusinowitz et al, 2002). Most CD programs offer conventional long-term care supports, such as personal care and homemaker services.…”

Section: Movement Toward Consumer Direction In Long-term Care Policymentioning

confidence: 97%

Consumer Direction in Long-Term Care Policy: Overcoming Barriers to Promoting Older Adults' Opportunity for Self-Direction

Ruggiano

2012

Journal of Gerontological Social Work

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There has been a growing trend in long-term care policy to offer individuals with disabilities the option of consumer direction (CD), where responsibility of managing care and support services is transferred from agencies to care recipients, thus supporting clients' self-determination. Although CD has been accepted as an option for non-elderly individuals with disabilities, barriers persist to promoting older adults' autonomy through CD. This article reviews the incorporation of CD in long-term care policy, addresses the current barriers to providing older adults the right to self-direct, and makes recommendations for overcoming these barriers through social work practice, policy, and research.

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“…Analyses of CCDE quantitative survey data have directly or indirectly addressed many of these questions (Foster et al, 2007;Carlson et al, 2004;Mahoney et al, 2004). However, survey data can be limited in their ability to provide context and meaning.…”

Section: Purpose Of This Studymentioning

confidence: 98%

Lessons From the Arkansas Cash and Counseling Program: How the Experiences of Diverse Older Consumers and Their Caregivers Address Family Policy Concerns

Simon-Rusinowitz

Loughlin

et al. 2009

Journal of Aging & Social Policy

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This paper addresses four family policy questions that policy makers often ask about consumer-directed services, examining issues such as quality, suitability, and fraud and abuse. Responses to these questions evolved from the experiences of diverse elder consumers and their caregivers who participated in IndependentChoices, the Arkansas site of the Cash and Counseling Demonstration and Evaluation (CCDE) program. Building on CCDE evaluation survey data, this analysis of in-home interviews with participants discussing their experiences of receiving, giving, and managing care demonstrates how the program allows consumers choices so they receive the services they want. At the same time, program flexibility allows policy makers to safeguard both consumers and program resources through the use of supports such as representatives, state consultants, and fiscal intermediaries. This article demonstrates how the Cash and Counseling model can address the needs of both consumers with diverse disabilities and policy makers.

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Determining Personal Care Consumers' Preferences for a Consumer‐Directed Cash and Counseling Option: Survey Results from Arkansas, Florida, New Jersey, and New York Elders and Adults with Physical Disabilities

Cited by 62 publications

References 8 publications

Employment After Liver Transplantation: A Review

Employment After Liver Transplantation: A Review

Consumer Direction in Long-Term Care Policy: Overcoming Barriers to Promoting Older Adults' Opportunity for Self-Direction

Lessons From the Arkansas Cash and Counseling Program: How the Experiences of Diverse Older Consumers and Their Caregivers Address Family Policy Concerns

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