Determinants of Successful Transitions To Community-Based Services After Traumatic Brain Injury

Poulin, Valérie; Nicole, Mélodie; Raymond, Émilie; Lamontagne, Marie-Ève; Piquer, Olivier; Durand, Benoı̂t

doi:10.1016/j.apmr.2021.07.558

Cited by 2 publications

(1 citation statement)

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“…Regardless of methodological approach, the majority of the previous investigations specific to brain injury report a predominantly female family caregiver (Gill et al, 2011; Poulin et al, 2021). This parallels findings from the National Caregiving Alliance research report Caregiving in the United States (2020), indicating that more than 60% of caregivers are women.…”

Section: Introductionmentioning

confidence: 99%

Community Caring for a Family Member With Brain Injury: Women’s Lived Experiences

O’Donoghue,

Meixner

2023

Qual Health Res

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Individuals with a brain injury often require a caregiver to live safely in a community-based setting. This role typically defaults to a woman family member. Under the auspices of a constructivist interpretive tradition that honors a desire-based approach, this study blended narrative inquiry and grounded theory to explore the lived experiences of women caring for loved ones with brain injury. Twenty women completed the semi-structured interview, electing to participate either via videoconferencing or telephone. Employing a constant comparative method, three consecutive rounds of interviews, coding, and analysis occurred. Findings revealed an overarching theme surrounding the intractable challenges and enduring triumphs of caregiving. This discovery further sub-divided into four themes. Two themes focused on traversing a fragmented system of care and managing the burden of caregiving. The remaining two entailed finding supports in family and friends and leveraging professional skillset(s) to optimize caregiving. The recommendations garnered from the women’s experiences included enhanced caregiver education with follow-up post-medical care, expanding services into the community to support caregivers and their family members appropriately, and building compassionate networks of women living the caregiving experience. Consistent with a desire-based paradigm, leveraging relationships to triumph over the challenges provided this group of women a voice to promote effective care for self, loved ones, and others.

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Section: Introductionmentioning

confidence: 99%

Community Caring for a Family Member With Brain Injury: Women’s Lived Experiences

O’Donoghue,

Meixner

2023

Qual Health Res

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Navigating disenfranchised grief: Women's experiences caring for family with brain injury

Meixner,

O'Donoghue,

Erickson

2024

J Humanistic Counseling

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A leading cause of disability, brain injury entails long‐term recovery that often necessitates in‐home caregiving provided by a spouse, partner, or parent. Women tend to shoulder such caregiving roles, yet few studies investigate the triumphs and obstacles associated with their lived experiences—including counseling and other supports. Anchored in a constructivist tradition aligned with humanistic principles, we utilized narrative inquiry and grounded theory to explore, via interviews, the experiences of 20 women caregivers to family members with brain injury. Our analyses yielded four intersected categories reinforced by a guiding perspective of disenfranchised grief: (1) experiencing dissonance, (2) navigating ambiguous loss, (3) falling in and out of isolation, and (4) losing and reclaiming personal identity. We discuss counselor education and development, individual therapy and psychoeducation, and group considerations.

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Determinants of Successful Transitions To Community-Based Services After Traumatic Brain Injury

Cited by 2 publications

References 0 publications

Community Caring for a Family Member With Brain Injury: Women’s Lived Experiences

Community Caring for a Family Member With Brain Injury: Women’s Lived Experiences

Navigating disenfranchised grief: Women's experiences caring for family with brain injury

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