Determinants of caregiving burden and quality of life of informal caregivers of African stroke survivors: literature review

Badaru, Umaru Muhammad; Ogwumike, Omoyemi Olubunmi; Adeniyi, Ade Fatai; Nelson, Ekechukwu E.

doi:10.1515/ijdhd-2016-0041

Cited by 22 publications

(19 citation statements)

References 24 publications

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“…More than four-fifth care providers were women (80.7%) more than half (56.0%) were daughter-in-laws. Studies from many other countries also show that the main caregivers of the elderly were women [24][25][26][27]. Daughters-in-law were the caregivers in a significant number of households in our study, as found in studies in India [28][29][30].…”

Section: Discussionsupporting

confidence: 83%

Caregiver Burden among Informal Caregivers of Rural Older Persons in Nepal

Khanal¹,

2020

J Health Care and Research

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Background: Today, people are living longer than ever before due to advances in education, technology, medicine, food distribution, and public health. Longevity has also resulted in a caregiving burden in the family living together. The purpose of this paper is to analyze the situation of the elderly caregiving burden in Nepal. Methods: This is a cross-sectional study carried out in a rural area of Nepal. The total sample size for this study was 150 older persons 65 years and above. The caregiving burden was measured through the widely used scale Zarit Burden Interview (ZBI). Results: Mean age of the care recipients (elderly) was 78.46 (±7.78) years and the mean age of the care provider was 46.6 (±46) years. The mean score of the caregiving burden was 12.89 (±5.7). The majority of the caregiver has reported little or no burden (88%), 10% mild to the moderate burden, 1.33% moderate to severe burden and only one respondent (0.67%) has reported severe burden. Marital status, ethnicity, religion, living arrangement, and functional limitations on activities on daily living were significant variables related to caregiving burden. Conclusion: This study shows the caregiving burden is quite low among Nepalese care providers living in a rural area. Given the growing number of elderly people, there is an urgent need to care for the wellbeing of dependent older people and their families.

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Section: Discussionsupporting

confidence: 83%

Caregiver Burden among Informal Caregivers of Rural Older Persons in Nepal

Khanal¹,

2020

J Health Care and Research

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“…These findings highlight the financial burden associated with taking care of patients with disabilities. The involvement of young people among caregivers in physical rehabilitation programs is associated with low income and poor outcomes among stroke survivors in Africa [24,25]. Insufficient provision of basic needs of stroke survivors increases the psychological burden reflected by depression and anxiety.…”

Section: Discussionmentioning

confidence: 99%

The psychological burden in survivors of stroke and caregivers dyads in Kinshasa (Democratic Republic of Congo): a cross-sectional study

Gmb

et al. 2021

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Background: Stroke exposes the patients and the caregivers to the development of burden in terms of health, economic and social costs. Few studies have focused on the relationship between the psychological burden and the level of disability in stroke survivors and caregiver dyads. Methods: This cross-sectional study aimed at determining the psychological burden of stroke in patients and caregivers in Kinshasa. 85 stroke survivors and caregivers dyads were screened using the Hospital Anxiety and Depression Scale, the Zarit Burden Inventory, and the Rankin’s modified Scale to determine respectively the depression, the anxiety in stroke survivors as well as the caregivers’ psychological burden. Results: Up to fifty percent of survivors of stroke had a severe disability, associated with a high risk of the occurrence of the psychological burden. Nearly eighty-five percent of caregivers showed a moderate psychological burden. The stroke survivors developed more depression than anxiety. Caregivers developed more likely anxiety and depression than stroke survivors. Conclusions: There is a positive relationship between the psychological burden in caregivers and the level of disability in stroke survivors far from the acute phase of the stroke. Healthcare providers working with the survivors of stroke should assess for anxiety and depression in caregivers.

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“…These include the fear of stigma, discrimination and abuse, and possible dissolution of romantic relationships associated with being a PLWHA. Importantly, there is fear of the perception that an HIV-positive diagnosis is a death warrant [16,76]. In Ghana, complying with WHO/United Nations' norms means that by the policy of the Ghana Health Service, HIV testing is provided to all pregnant women who report to orthodox healthcare centres for antenatal care on registration, although they could opt-out.…”

Section: Discussionmentioning

confidence: 99%

Immediate reactions of newly-diagnosed HIV-positive persons to the initial news of being HIV-positive: Implications for public health

Owusu¹

2020

Preprint

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Background: Ready acceptance of the first news of HIV-positive diagnosis is a known personal and public health safety-net. Its beneficial effects include prompt commencement and sustenance of HIV-positive treatment and care, better management of transmission risk, and disclosure of the HIV-positive status to significant others. Yet, no known study has explored this topic in Ghana; despite Ghana’s generalised HIV/AIDS infection rate. Existing studies have illuminated the effects of such reactions on affected significant others; not the infected.Methods: This paper studied qualitatively the initial reactions of 26 persons living with HIV/AIDS upon receiving the initial news of their diagnosis. Sample selection was combined purposive and random, from two hospitals in a district in Ghana heavily affected by HIV/AIDS. The paper applied the theory of hopelessness.Results: As expected, the vast majority of respondents reacted to the initial announcement of their HIV-positive infection with a myriad of negative psychosocial reactions, including thoughts of committing suicide. A few, however, received the news with resignation. For the vast majority of respondents, having comorbidities from AIDS prior to the diagnosis primarily shaped their initial reactions to it. This was followed by having/having had an HIV-positive spouse/partner, and exposure to health education on HIV/AIDS on TV particularly. Receiving counselling from healthcare workers mostly facilitated their transitioning to self-acceptance of their HIV-positive status.Conclusions: Although the first news of an HIV-positive diagnosis was immobilising to most respondents, the trauma faded, paving the way for beneficial public health actions. The findings do not wholly support earlier propositions of the theory of hopelessness. Rather, results indicate that both internal and external insecurities can trigger hopelessness in persons living with HIV/AIDS. The results imply the critical need for continuous education on HIV/AIDS by public health advocates, using mass media, particularly, TV. This should continuously emphasise the need for voluntary counseling and testing and the fact that once infected, prevention of further transmission, and immediate seeking and adhering to healthcare are important. These can prevent comorbidities and death from HIV infection. Healthcare workers in VCTs should empathise with persons who are informed of their HIV-positive status for the first time.

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Determinants of caregiving burden and quality of life of informal caregivers of African stroke survivors: literature review

Cited by 22 publications

References 24 publications

Caregiver Burden among Informal Caregivers of Rural Older Persons in Nepal

Caregiver Burden among Informal Caregivers of Rural Older Persons in Nepal

The psychological burden in survivors of stroke and caregivers dyads in Kinshasa (Democratic Republic of Congo): a cross-sectional study

Immediate reactions of newly-diagnosed HIV-positive persons to the initial news of being HIV-positive: Implications for public health

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