Determinants in Stakeholder Opinions About Telemedicine in Palliative Care: A Scoping Review

Vergès, Àngels Salvador; Sánchez, María Victoria Cusí; Grigera, Paz Bossio; Agulló, Carles Fàbrega; Costa, Fernando Gomes da; Trullas, Adrià Serra; Abejas, Abel García

doi:10.1089/tmj.2021.0441

Cited by 10 publications

(8 citation statements)

References 33 publications

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“…The emphasis on self‐management support of the current study was consistent with Salvador Vergès et al., (2021) notion, who designed WeChat platform‐based “lung cancer forum” supporting postoperative patients with lung cancer after chemotherapy. While Salvador Vergès et al., (2021) reported the effect in improving patients' sleep quality, health performance and self‐perceived burden, the development process of the forum content was more up‐to‐down approach, different from the current study's bottom‐up process.…”

Section: Discussionsupporting

confidence: 83%

“…With regard to the content, while LuCApp was mainly on symptom monitoring and iEXHALE and pulmonary rehabilitation programs were exercise focussed (Bray et al., 2018; Henshall & Davey, 2020; Park et al., 2019), the content included in the “symptom self‐management” public account was more broad with knowledge dissemination and skills teaching in managing symptoms, role and emotion challenges that had been consistently reported in previous studies as unmet supportive care needs by patients with lung cancer (Brown et al., 2015; Husain et al., 2013; Li & Girgis, 2006; Sanders et al., 2010). The emphasis on self‐management support of the current study was consistent with Salvador Vergès et al., (2021) notion, who designed WeChat platform‐based “lung cancer forum” supporting postoperative patients with lung cancer after chemotherapy. While Salvador Vergès et al., (2021) reported the effect in improving patients' sleep quality, health performance and self‐perceived burden, the development process of the forum content was more up‐to‐down approach, different from the current study's bottom‐up process.…”

Section: Discussionsupporting

confidence: 83%

“…These feedback indicated that the mHealth itself could benefit most, but certain in‐person assistance was still in need to support self‐management. The notion of combining the mHeath and face‐to‐face contact has also been illustrated in palliative care settings (Salvador Vergès et al., 2021).…”

Section: Discussionmentioning

confidence: 99%

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Development of mobile health–based self‐management support for patients with lung cancer: A stepwise approach

Lou

et al. 2022

Nursing Open

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Aim To develop self‐management support platform on mobile for Chinese patients with lung cancer. Design A stepwise approach with combination of methods. Methods Literature review was carried out to construct preliminary framework and develop detailed content for self‐management modules. A semistructured interview was conducted to elicit preference in the content and platform of self‐management modules with 15 patients with lung cancer. Delphi study was performed to evaluate and improve the content of modules with 13 experts. A pilot study was conducted to test the mobile health–based self‐management support modules with 13 patients with lung cancer. Results A social network software‐based WeChat public account “Symptom Self‐Management” for patients with lung cancer was developed and preliminarily tested with positive feedback. Three modules were designed and presented, including symptom management (cancer‐related fatigue, cough, dyspnoea, pain, nausea and vomiting), emotion management and role management. Conclusion This study showed that patients with lung cancer have diversified supportive care needs after discharge. A bottom‐up and stepwise approach to develop mobile health–based self‐management support tool has shown to be feasible and valuable. Theory guidance, user requirement exploration, evidence‐based information and expert evaluation are key elements of the process. Implications for Practice The WeChat Public Account “Symptom Self‐Management” could be used as sustainable platform to support patients with lung cancer in dealing with common challenges. It provides professional information, self‐assessment tools, self‐management skills and peer‐support platform. Information presented in both text and audio forms enables patients' easy access to the platform.

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Section: Discussionsupporting

confidence: 83%

Section: Discussionsupporting

confidence: 83%

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Development of mobile health–based self‐management support for patients with lung cancer: A stepwise approach

Lou

et al. 2022

Nursing Open

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“…Patients are increasingly willing to adopt TN systems to improve home care and daily self-management. An essential step towards wider adoption of these systems is to increase regulatory compliance, better define stakeholder responsibilities [ 88 , 93 ] and improve the necessary complementarity of TN with routine face-to-face care [ 94 , 95 ]. Evidence from studies shows that access to TN services can be limited by aspects related to a healthcare organisation, such as the poor reorganisation of roles and workflows and a lack of training for healthcare and administrative staff and patients.…”

Section: Discussionmentioning

confidence: 99%

Ethical, Legal, Organisational and Social Issues of Teleneurology: A Scoping Review

Torres‐Castaño

Abt-Sacks

Toledo-Chávarri

et al. 2023

IJERPH

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Background: Neurological disorders are the leading cause of disability and the second leading cause of death worldwide. Teleneurology (TN) allows neurology to be applied when the doctor and patient are not present in the same place, and sometimes not at the same time. In February 2021, the Spanish Ministry of Health requested a health technology assessment report on the implementation of TN as a complement to face-to-face neurological care. Methods: A scoping review was conducted to answer the question on the ethical, legal, social, organisational, patient (ELSI) and environmental impact of TN. The assessment of these aspects was carried out by adapting the EUnetHTA Core Model 3.0 framework, the criteria established by the Spanish Network of Health Technology Assessment Agencies and the analysis criteria of the European Validate (VALues In Doing Assessments of healthcare TEchnologies) project. Key stakeholders were invited to discuss their concerns about TN in an online meeting. Subsequently, the following electronic databases were consulted from 2016 to 10 June 2021: MEDLINE and EMBASE. Results: 79 studies met the inclusion criteria. This scoping review includes 37 studies related to acceptability and equity, 15 studies developed during COVID and 1 study on environmental aspects. Overall, the reported results reaffirm the necessary complementarity of TN with the usual face-to-face care. Conclusions: This need for complementarity relates to factors such as acceptability, feasibility, risk of dehumanisation and aspects related to privacy and the confidentiality of sensitive data.

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“…Some studies have reviewed the application of digital health for specific types of cancers, that is, breast cancer [ 13 ], prostate cancer [ 14 ], melanoma [ 15 ], and hematologic malignancy [ 16 ]. Although digital health is applicable across the cancer continuum, reviews were limited to the postoperative phase [ 13 ], survivorship [ 17 , 18 ], and palliative care [ 7 , 19 , 20 ]. There exists a single digital health review that spans across pediatric patients’ cancer continuum (from treatment to survivorship) [ 11 ].…”

Section: Introductionmentioning

confidence: 99%

Digital Health Interventions for Adult Patients With Cancer Evaluated in Randomized Controlled Trials: Scoping Review

Lee¹,

Kim²,

Kim³

et al. 2023

J Med Internet Res

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Background Digital care has become an essential component of health care. Interventions for patients with cancer need to be effective and safe, and digital health interventions must adhere to the same requirements. Objective The purpose of this study was to identify currently available digital health interventions developed and evaluated in randomized controlled trials (RCTs) targeting adult patients with cancer. Methods A scoping review using the JBI methodology was conducted. The participants were adult patients with cancer, and the concept was digital health interventions. The context was open, and sources were limited to RCT effectiveness studies. The PubMed, CINAHL, Embase, Cochrane Library, Research Information Sharing Service, and KoreaMed databases were searched. Data were extracted and analyzed to achieve summarized results about the participants, types, functions, and outcomes of digital health interventions. Results A total of 231 studies were reviewed. Digital health interventions were used mostly at home (187/231, 81%), and the web-based intervention was the most frequently used intervention modality (116/231, 50.2%). Interventions consisting of multiple functional components were most frequently identified (69/231, 29.9%), followed by those with the self-manage function (67/231, 29%). Web-based interventions targeting symptoms with the self-manage and multiple functions and web-based interventions to treat cognitive function and fear of cancer recurrence consistently achieved positive outcomes. More studies supported the positive effects of web-based interventions to inform decision-making and knowledge. The effectiveness of digital health interventions targeting anxiety, depression, distress, fatigue, health-related quality of life or quality of life, pain, physical activity, and sleep was subject to their type and function. A relatively small number of digital health interventions specifically targeted older adults (6/231, 2.6%) or patients with advanced or metastatic cancer (22/231, 9.5%). Conclusions This scoping review summarized digital health interventions developed and evaluated in RCTs involving adult patients with cancer. Systematic reviews of the identified digital interventions are strongly recommended to integrate digital health interventions into clinical practice. The identified gaps in digital health interventions for cancer care need to be reflected in future digital health research.

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Determinants in Stakeholder Opinions About Telemedicine in Palliative Care: A Scoping Review

Cited by 10 publications

References 33 publications

Development of mobile health–based self‐management support for patients with lung cancer: A stepwise approach

Development of mobile health–based self‐management support for patients with lung cancer: A stepwise approach

Ethical, Legal, Organisational and Social Issues of Teleneurology: A Scoping Review

Digital Health Interventions for Adult Patients With Cancer Evaluated in Randomized Controlled Trials: Scoping Review

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