Design of a Trustworthy and Resilient Data Sharing Platform for Healthcare Provision

Abstract

Healthcare data sharing platforms have been gaining prominence over the last decade, especially with the emergence of technologies dedicated to increase system security and users' privacy. Moreover, these platforms are becoming less centralised as time progresses, with need for more data from a variety of locations and settings to be transferred between authorised parties. These requirements also include legal and ethical concerns when creating such solution. Through data sharing, organisations can gain access to previously unknown information or higher quality data, share research findings, and make decisions based on larger (and hopefully more representative) datasets. Such platform should be resilient to attack or loss of data and be able to recover quickly and efficiently from unexpected events. This paper focuses on the blend of emerging technologies (data lake and blockchain) in a design to provide secure and resilient data sharing to only those patients and healthcare professionals authorised to access it across multiple European countries.