Depression and health-related quality of life after discharge and associated factors in childhood cancer patients in Japan

Wakimizu, Rie; Hiraga, Noriko; Furuya, Kinji; Fukushima, Takashi; Tsuchida, Masahiro; Koike, Kenichi; Yamamoto, Terumi

doi:10.5582/bst.2011.v5.6.264

Cited by 7 publications

(9 citation statements)

References 19 publications

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“…Health–related quality of life (HRQOL) tends to be low in children with chronic conditions in Japan [ 3 – 5 ]. Factors include strains related to the management of the illness, increased frequency of hospital visits, and problems in life at school and at home [ 6 , 7 ]. HRQOL is widely recognized as an important patient-reported outcome (PRO) in the clinical setting as it is critical for understanding the trajectories of health and illness, impacts of treatment, and issues of non-adherence in children with special health care needs [ 8 ].…”

Section: Introductionmentioning

confidence: 99%

Assessing health-related quality of life in Japanese children with a chronic condition: validation of the DISABKIDS chronic generic module

Sasaki

Kakee

Morisaki

et al. 2018

Health Qual Life Outcomes

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BackgroundThis study examined the reliability and validity of the Japanese versions of the DISABKIDS-37 generic modules, a tool for assessing the health–related quality of life (HRQOL) of children and adolescents with a chronic condition.MethodsThe study was conducted using a sample of 123 children/adolescents with a chronic medical condition, aged 8–18 years, and their parents. Focus interviews were performed to ensure content validity after translation. The classical psychometric tests were used to assess reliability and scale intercorrelations. The factor structure was examined with confirmatory factor analysis (CFA). Convergent validity was assessed by the correlation between the total score and the sub-scales of DISABKIDS-37 as well as the total score of KIDSCREEN-10.ResultsBoth the children/adolescent and parent versions of the score showed good to high internal consistency, and the test-retest reliability correlations were r = 0.91 or above. The CFA revealed that the modified models for all domains were better fit than the original 37 item scale model for both self-report and proxy-report. Moderate to high positive correlations were found for the associations within DISABKIDS-37 sub-scales and between the subscales and total score, except for the treatment sub-scale, which correlated weakly with the remaining sub-scales. The total score of the child-reported version of KIDSCREEN-10 correlated significantly and positively with the total score and all the sub-scales of the child-reported version of DISABKIDS-37 except the Treatment sub-scale in adolescents.ConclusionsThe modified models of Japanese version of DISABKIDS generic module were psychometrically robust enough to assess the HRQOL of children with a chronic condition.Electronic supplementary materialThe online version of this article (10.1186/s12955-018-0911-1) contains supplementary material, which is available to authorized users.

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Section: Introductionmentioning

confidence: 99%

Assessing health-related quality of life in Japanese children with a chronic condition: validation of the DISABKIDS chronic generic module

Sasaki

Kakee

Morisaki

et al. 2018

Health Qual Life Outcomes

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“…Two studies were conducted in South America in Brazil (Coça et al, 2019; Scarpelli et al, 2008). There are 12 studies conducted in Asia, of which three studies in Japan(Sato et al, 2014; Tsuji et al, 2011; Wakimizu et al, 2011), three studies in Taiwan (Tsai et al, 2013; Wu et al, 2013, 2016), two studies in China (Li et al, 2010, 2013b), two studies in South Korea (Kim & Yi, 2013; Sohn et al, 2017), one in Indonesia (Sitaresmi et al, 2008) and one in Iran (Zahed & Koohi, 2020). Nine studies were conducted in Europe, of which three studies in the UK (Canning et al, 2014; D’Urso et al, 2018; Michel et al, 2010), two studies in Switzerland (Gianinazzi et al, 2013; Landolt et al, 2003), two studies in Italy (Adduci et al, 2012; Tremolada et al, 2016), one in the Netherlands (Gordijn et al, 2013), and one in Portugal (Martins et al, 2018).…”

Section: Resultsmentioning

confidence: 99%

Prevalence of Anxiety, Depression, and Post-Traumatic Stress Disorder among Children and Adolescents with Cancer: A Systematic Review and Meta-Analysis

Al-Saadi

Chan

Al-Azri

2022

Journal of Pediatric Hematology/Oncology Nursing

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Assessment of psychological and emotional disorders is an important indicator of well-being among children and adolescents with cancer. This review aimed to determine the prevalence rates of three major psychological disorders in this population, including anxiety, depression, and post-traumatic stress disorder (PTSD). Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines were followed. Various databases were searched to identify cross-sectional studies assessing anxiety, depression, and PTSD among children and adolescents with cancer. The Joanna Briggs Institute checklist was used to assess research quality. Of the 40 studies included in the literature review, 33 measured anxiety, 28 focused on depression, and nine assessed PTSD. A total of 18 studies were incorporated into the meta-analysis, with pooled prevalence rates of anxiety, depression and PTSD found to be 13.92% (n = 1,971; 95% confidence interval [CI] = 10.23–18.07%), 20.43% (n = 1,990, 95% CI = 13.85–27.93%), and 20.90% (n = 755, 95% CI = 13.28–29.73%), respectively. Mental health and psychological interventions are essential for children and adolescents diagnosed with cancer. Future work should be undertaken in different regions, such as the Middle East or Africa, or South America when assessing the prevalence of psychological disorders in children and adolescents diagnosed with cancer.

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“…Negative mental states are known to be transmitted between parents and children who are treated in psychiatric hospitals . Moreover, the bond between CCS and their families is said to generally be stronger than normal . No reports have been found, however, on agreement rates relating to anxiety in CCS and CCS parents.…”

Section: Discussionmentioning

confidence: 99%

“…20 Moreover, the bond between CCS and their families is said to generally be stronger than normal. 21 No reports have been found, however, on agreement rates relating to anxiety in CCS and CCS parents. Although more detailed surveys need to be conducted in the future, the current survey suggests that CCS parents have a broad understanding of the anxieties experienced by CCS.…”

Section: Late Effectsmentioning

confidence: 99%

Childhood cancer survivors: Anxieties felt after treatment and the need for continued support

Iwai

Shimada

Iwai

et al. 2017

Pediatrics International

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Depression and health-related quality of life after discharge and associated factors in childhood cancer patients in Japan

Cited by 7 publications

References 19 publications

Assessing health-related quality of life in Japanese children with a chronic condition: validation of the DISABKIDS chronic generic module

Assessing health-related quality of life in Japanese children with a chronic condition: validation of the DISABKIDS chronic generic module

Prevalence of Anxiety, Depression, and Post-Traumatic Stress Disorder among Children and Adolescents with Cancer: A Systematic Review and Meta-Analysis

Childhood cancer survivors: Anxieties felt after treatment and the need for continued support

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