Depression and anxiety levels of the mothers of children and adolescents with left ventricular assist devices

Özbaran, Burcu; Köse, Sezen; Yağdı, Tahir; Engin, Çağatay; Erermiş, Serpil; Yazıcı, Kemal Utku; Noyan, Ayşın; Özbaran, Mustafa

doi:10.1111/j.1399-3046.2012.01755.x

Cited by 15 publications

(18 citation statements)

References 24 publications

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“…15, 22 In the case of LVADs, caregiving has been associated with increases in depression, anxiety, and post traumatic stress disorder. 9, 10, 23 The findings of this meta-synthesis suggest that LVAD caregivers are at high risk for nearly all these negative outcomes.…”

Section: Discussionmentioning

confidence: 90%

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The Perceptions of Important Elements of Caregiving for a Left Ventricular Assist Device Patient

Magid

Jones

Allen

et al. 2016

Journal of Cardiovascular Nursing

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Background The use of a left ventricular assist device (LVAD) is becoming increasingly common in patients with end-stage heart failure. Many LVAD programs require patients to have a caregiver prior to receiving a device. There are few studies exploring the experience, burden, and impacts on caregivers of patients with LVADs. Objectives The aim of this study was to synthesize the qualitative literature regarding what caregiver’s perceptions about caring for an adult LVAD patient. Methods We searched Medline, CINAHL, PsychInfo and Web of Science to find English articles on the topic of LVAD caregiver’s perceptions. The articles were then synthesized using a formal process of qualitative meta-synthesis. Results Eight articles met criteria for inclusion. The meta-synthesis across the articles resulted in eight themes categorized under three domains. Many of the articles suggested a longitudinal process of caregiving with perceptions largely dependent upon the time of interview in relation to the LVAD. The first domain of caregiving is the “early” stage covering life before the LVAD through the procedure. This phase is characterized by the pre-LVAD “emotional rollercoaster,” the decision seen as “no option,” and the thought of “leave it [the LVAD] at the hospital.” The second domain is the “middle” stage covering the timeframe following discharge from the hospital. This phase is characterized by fragility of the patient, recognition of a need to adapt, and a transformed life. The final domain is “late LVAD” and describes how late in the LVAD process, the LVAD indication (bridge to transplant or destination therapy) brings in to focus what is important to caregivers. Conclusions Existing literature indicates that the LVAD caregiver experience is intense, burdensome, and the need to adapt to a new life. Given the burdens caregivers experience, clinicians and future research should explore strategies to support these important individuals.

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Section: Discussionmentioning

confidence: 90%

“…9, 10 One study of 27 spouses of patients with BTT LVADs reported that 26% met clinical criteria for post-traumatic stress disorder including avoidance and hyper-arousal. 9 Multiple qualitative studies have also been conducted to better understand LVAD caregiver experience.…”

Section: Introductionmentioning

confidence: 99%

The Perceptions of Important Elements of Caregiving for a Left Ventricular Assist Device Patient

Magid

Jones

Allen

et al. 2016

Journal of Cardiovascular Nursing

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“…This places inevitable pressure on even the most resilient of families, who often become pulled apart as parents split the care of the hospitalized child and maintenance of the home, finances and a degree of normality for other siblings. In a small study assessing levels of depression of parents whose children were on a VAD, half of mothers were moderately depressed . In a qualitative study, Gilmore and Newall identified that there is a lack of information to prepare families and children for the anticipated course of treatment on VAD support .…”

Section: Implications For the Familymentioning

confidence: 99%

Waiting for transplant: Physical, psychosocial, and nutritional status considerations for pediatric candidates and implications for care

Anthony

Annunziato

Fairey

et al. 2014

Pediatric Transplantation

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The waiting period for an organ transplant has been described as a time of tremendous uncertainty and vulnerability, posing unique challenges and stressors for pediatric transplant candidates and their families. It has been identified as the most stressful stage of the transplant journey, yet little attention has been given to the physical, psychological, or social impact of the waiting period in the literature. In this review, we discuss the physical, nutritional, and psychosocial implications of the waiting period for child and adolescent transplant candidates and the impact on their parents and siblings. We identify areas for future research and provide recommendations for clinical practice to support children, adolescents, and families during the waiting period.

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“…Participants then completed the both subscales of the State‐Trait Anxiety Inventory (STAI) . The STAI State and Trait subscales are scored out of 80 and have been used to assess baseline (trait) and illness‐related (state) parental distress related to childhood illness . The internal consistency of the STAI is high, ranging from 0.86 in high school students to 0.95 in military recruits.…”

Section: Methodsmentioning

confidence: 99%

Video Discharge Instructions for Acute Otitis Media in Children: A Randomized Controlled Open‐label Trial

Belisle

Dobrin

Elsie

et al. 2019

Academic Emergency Medicine

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Background Thirty percent of children with acute otitis media (AOM) experience symptoms < 7 days after initiating treatment, highlighting the importance of comprehensive discharge instructions. Methods We randomized caregivers of children 6 months to 17 years presenting to the emergency department (ED) with AOM to discharge instructions using a video on management of pain and fever to a paper handout. The primary outcome was the AOM Severity of Symptom (AOM‐SOS) score at 72 hours postdischarge. Secondary outcomes included caregiver knowledge (10‐item survey), absenteeism, recidivism, and satisfaction (5‐item Likert scale). Results A total of 219 caregivers were randomized and 149 completed the 72‐hour follow‐up (72 paper and 77 video). The median (IQR) AOM‐SOS score for the video was significantly lower than paper, even after adjusting for preintervention AOM‐SOS score and medication at home (8 [7–11] vs. 10 [7–13], respectively; p = 0.004). There were no significant differences between video and paper in mean (±SD) knowledge score (9.2 [±1.3] vs. 8.8 [±1.8], respectively; p = 0.07), mean (±SD) number of children that returned to a health care provider (8/77 vs. 10/72, respectively; p = 0.49), mean (±SD) number of daycare/school days missed by child (1.2 [±1.5] vs. 1.1 [±2.1], respectively; p = 0.62), mean (±SD) number of workdays missed by caregiver (0.5 [±1] vs. 0.8 [±2], respectively; p = 0.05), or median (IQR) satisfaction score (5 [4–5] vs. 5 [4–5], respectively; p = 0.3). Conclusions Video discharge instructions in the ED are associated with less perceived AOM symptomatology compared to a paper handout.

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Depression and anxiety levels of the mothers of children and adolescents with left ventricular assist devices

Cited by 15 publications

References 24 publications

The Perceptions of Important Elements of Caregiving for a Left Ventricular Assist Device Patient

The Perceptions of Important Elements of Caregiving for a Left Ventricular Assist Device Patient

Waiting for transplant: Physical, psychosocial, and nutritional status considerations for pediatric candidates and implications for care

Video Discharge Instructions for Acute Otitis Media in Children: A Randomized Controlled Open‐label Trial

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