Depression and Anxiety Among Partner and Offspring Carers of People With Dementia: A Systematic Review

Watson, Brittany; Tatangelo, Gemma; McCabe, Marita P.

doi:10.1093/geront/gny049

Cited by 79 publications

(81 citation statements)

References 42 publications

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“…There are many stages to caring and indeed the nature and type of care varies depending on the needs of the person receiving the care (São José, 2018). Many studies have reported the negative impact of care-giving, particularly on those who care for people living with dementia who may experience clinical depression or anxiety or other less-severe psychological impacts (Cross et al, 2018; Ryan et al, 2018; Wang et al, 2018; Watson et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

An exploration of the experiences of informal carers supporting a relative living with dementia during and after the move to technology-enriched supported accommodation

et al. 2019

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The aim of this study was to explore the experiences of family carers supporting a relative living with dementia during and after the move to technology-enriched supported accommodation (TESA). The paper explores the informal carers (ICs) roles, the factors prompting the move to TESA, alongside their perceptions of their relatives’ experience of the move and of life in a technology-enriched environment. Within a qualitative study 25 semi-structured interviews were conducted with ICs and data were analysed following a thematic approach. Four themes were identified, reflecting the shift in roles and identity of both ICs and persons living with dementia. The move to TESA was linked to a perceived reduction in care-giving pressures, with positive outcomes reported for both the ICs and the people living with dementia. Smart home technologies in the facilities did not appear to impact on the decision-making during transition, however, they were valued as part of the lived experience for the people living with dementia within the TESA facilities. These findings are relevant to policy makers, commissioners and providers of services to highlight the engagement of all stakeholders in the provision of care for people living with dementia and their families early from diagnosis in order to facilitate person-centred practices in community settings.

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Section: Introductionmentioning

confidence: 99%

An exploration of the experiences of informal carers supporting a relative living with dementia during and after the move to technology-enriched supported accommodation

et al. 2019

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“…Existing evidence shows conflicting results on whether caring for a dependent older person impacts negatively on the physical and emotional health of the caregiver [7,8]. The negative emotional consequences are the most important, with anxiety being one of those with the greatest impact and transcendence [9,10].…”

Section: Introductionmentioning

confidence: 99%

Coping and Anxiety in Caregivers of Dependent Older Adult Relatives

Pérez-Cruz

Parra-Anguita

López‐Martínez

et al. 2019

IJERPH

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The aim of this study was to analyze the relationship between coping and anxiety in caregivers of dependent older adult relatives. A cross-sectional study was carried out in the province of Jaén (Andalusia, Spain). The convenience sample consisted of 198 family caregivers of dependent older adults. The main measurements were anxiety (Hamilton scale), coping (Brief COPE), subjective burden (Caregiver Strain Index), objective burden and sex of the caregiver. The main analyses were bivariate analysis using the Pearson correlation coefficient, and multivariate analysis using multiple linear regression. An independent regression model was developed for anxiety and each type of coping, adjusting for sex, subjective burden and objective burden. Our results demonstrate that anxiety was negatively associated with planning (partial r = −0.18), acceptance (partial r = −0.22) and humor (partial r = −0.20), and it was positively associated with self-distraction (partial r = 0.19), venting (partial r = 0.22), denial (partial r = 0.27) and self-blame (partial r = 0.25). Planning, acceptance and humor coping strategies may be protective factors of anxiety. Strategies such self-management, relief, denial and self-blame may be risk factors for anxiety.

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“…Although many family carers nd their role rewarding, caring responsibilities can incur a signi cant psychological and physical burden. Unless they are well resourced and supported, carers may nd themselves at heightened risk of depression and anxiety, and consequently with poor quality of life [2]. A consequence of unalleviated caregiver burden may be earlier admission to residential care for the person with dementia, leading to a lower quality of life for them and increased pressure on social care services.…”

Section: Background and Rationalementioning

confidence: 99%

Pilot Randomised Evaluation of Singing in Dementia (PRESIDE): Protocol for a Two-Arm, Parallel Group Randomised Controlled Feasibility Study with Waiting-List Control

Dowson

Schneider

Guo

et al. 2020

Preprint

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BackgroundAs the number of people living with dementia grows, so does the need to provide them with adequate psychosocial support. Many people with dementia live at home with family carers, who also require social and emotional support to cope with their role. Community group singing has received attention for its potential to support people with dementia and their carers. It is postulated that singing can improve cognitive function, strengthen the bonds between care partners, and help to establish social support networks. However, there is a lack of rigorous evidence of singing’s benefits for this population. This study aims to test the feasibility of a randomised controlled trial of community singing in dementia, to pave the way for a larger, conclusive study.MethodsThe PRESIDE study is designed as a two-arm, parallel group randomised trial with a waiting list control. Dyads consisting of a person with dementia (n=80) and their carer (n=80) will be recruited. Each dyad will be randomised either to attend 10 weeks of community group singing sessions straight away, or to wait for three months before attending the sessions. The singing sessions will be led by experienced professional musicians and will last about 90 minutes, including time for socialising. The primary outcome of this study is the attainment of feasibility criteria around recruitment, retention and the acceptability of the waiting list control. Secondary outcomes include the quality of life, mood, cognition, and musical engagement of the person with dementia, and quality of life, mood, and experiences/challenges of the carer. These data will be collected during home visits at baseline, and three and six months post-baseline. DiscussionDespite growing public interest in the positive effects of singing, and encouraging findings from qualitative and non-randomised quantitative studies, there is a lack of rigorous evidence. This is the first randomised controlled trial of community group singing for people with dementia. If the results favour a full trial, conclusively demonstrating the effectiveness of group singing could positively affect the opportunities available to community-dwelling people with dementia and their carers.Trial RegistrationUnique identification number in ISRCTN registry: ISRCTN10201482 https://www.isrctn.com/ISRCTN10201482. Date registered: 12/05/2020

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Depression and Anxiety Among Partner and Offspring Carers of People With Dementia: A Systematic Review

Cited by 79 publications

References 42 publications

An exploration of the experiences of informal carers supporting a relative living with dementia during and after the move to technology-enriched supported accommodation

An exploration of the experiences of informal carers supporting a relative living with dementia during and after the move to technology-enriched supported accommodation

Coping and Anxiety in Caregivers of Dependent Older Adult Relatives

Pilot Randomised Evaluation of Singing in Dementia (PRESIDE): Protocol for a Two-Arm, Parallel Group Randomised Controlled Feasibility Study with Waiting-List Control

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