Depression Among Caregivers of Stroke Survivors

Berg, Anu; Palomäki, Heikki; Lönnqvist, Jouko; Lehtihalmes, Matti; Kaste, Markku

doi:10.1161/01.str.0000155690.04697.c0

Cited by 198 publications

(215 citation statements)

References 24 publications

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“…Thus, we conclude that the results of the current study may be generalized to the partners of any cancer patient, and we hypothesize that the partners of patients with cardiovascular disease and other severe, chronic disorders might also be at an increased risk for affective disorders. 40 A further potential limitation in the current study is lack of information regarding cause of death, which may have influenced our results. In some elderly people, death may occur from non-cancer-related, even in those in whom breast cancer was previously diagnosed.…”

Section: Discussionmentioning

confidence: 90%

Increased risk of severe depression in male partners of women with breast cancer

Nakaya

Saito-Nakaya

Bidstrup

et al. 2010

Cancer

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BACKGROUND: A few small studies published to date have suggested that major psychosocial problems develop in the partners of cancer patients; however, to the authors' knowledge, no studies to date have addressed their risk for severe depression. In a retrospective cohort study, the risk for hospitalization with an affective disorder of the male partners of women with breast cancer was investigated, using unbiased, nationwide, population-based information. METHODS: Followed were 1,162,596 men born between 1925 and 1973 who were aged 30 years at study entry, resided in Denmark between 1994 and 2006, had no history of hospitalization for an affective disorder, and had lived continuously with the same partner for at least 5 years. A Cox regression analysis included detailed clinical information regarding the diagnosis and treatment of breast cancer and on annually updated socioeconomic and healthrelated indicators obtained from national administrative and disease registers. RESULTS: During the 13 years of follow-up, breast cancer was diagnosed in the partners of 20,538 men. On multivariable analysis, men whose partner was diagnosed with breast cancer were found to be at an increased risk of being hospitalized with an affective disorder (hazards ratio, 1.39; 95%confidence interval, 1.20-1.61), with a dose-response pattern for the severity of breast cancer. Furthermore, men whose partner died after breast cancer had a significant, 3.6-fold increase in risk for an affective disorder when compared with men whose partner survived breast cancer. CONCLUSIONS: The results of the current study supported the hypothesis that men whose partner had breast cancer were at an increased risk for hospitalization with an affective disorder. Cancer 2010;116:5527-34.

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Section: Discussionmentioning

confidence: 90%

Increased risk of severe depression in male partners of women with breast cancer

Nakaya

Saito-Nakaya

Bidstrup

et al. 2010

Cancer

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“…L'influence des caractéristiques sociodémographiques des malades sur les réactions émotionnelles des aidants femmes et hommes mériterait elle aussi d'être approfondie, tout comme la gravité de leurs séquelles suite à l'AVC, qui ont amené 21 % de la population de notre étude à être reconnus dépendants par la Caisse Nationale de Santé luxembourgeoise. Il a par ailleurs été observé que les aidants informels de patients AVC masculins rapportent une satisfaction inférieure à l'égard de la vie [6] et sont plus souvent dépressifs [12] que les aidants de victimes d'AVC féminines. Cette observation n'est pas exclusive à l'AVC puisqu'une détresse plus importante est également observée chez les aidants de patients schizophrènes masculins [37].…”

Section: Discussionunclassified

“…Réduction de leur champ d'indépendance, diminution de leurs activités de loisirs et temps passé à prodiguer des soins, les responsabilités nouvelles apparaissent comme des sources de stress [7], d'anxiété [8], de souffrances psychologiques [9] et de dépression [10], d'autant plus si la santé des aidants informels était déjà fragile avant l'événement [11]. La fréquence de la dépression est plus élevée chez les aidants que chez les patients, notamment s'ils vivent en couple avec la victime d'AVC [12]. Quant aux membres des familles, ils modifient leur manière de résoudre les problèmes, de communiquer, de s'impliquer affectivement et de définir leurs rôles [13].…”

Section: Introductionunclassified

Prendre soin des personnes après AVC : réactions émotionnelles des aidants informels hommes et femmes

Bucki¹,

Spitz²,

Baumann³

2012

Santé Publique

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Résumé : Deux ans après la survenue d'un accident vasculaire cérébral (AVC), les réactions émotionnelles des aidants informels hommes et femmes et leurs répercussions sociales et psychologiques ont été analysées. 62 dyades patient (64,4 ans) / aidant informel (59,3 ans) ont répondu à domicile à un questionnaire administré par un enquêteur : 1) déficiences résiduelles de l'AVC classées selon l'American Heart Association Stroke Outcome Classification ; 2) réactions émotionnelles du 'Caregiver Reaction Assessment' ; 3) évolution de la répartition des activités au sein du foyer familial. Les retombées de l'aide affectent davantage les femmes que les hommes sur l'état de santé, l'organisation de l'emploi du temps et le manque de soutien familial. Les femmes se sentent « fatiguées » (50 % vs 12,5 % des hommes), ne parviennent pas à « trouver du temps pour se détendre » (35,7% vs 6,3 %) et estiment que « les autres se sont déchargés sur elles » (35,7 % vs 11,8 %). Plus qu'avant la survenue de l'AVC, elles estiment assurer les responsabilités au sein du foyer (37,5 % vs 5,9 %). En revanche, les hommes déclarent « prendre plaisir à s'occuper » des patient-e-s (93,8 % vs 67,9 % chez les femmes) et organiser plus qu'avant des loisirs tels que les vacances (29 % vs 5,6 %) et les invitations d'amis (20,6 % vs 10,5 %). L'épuisement des aidants, en particulier des femmes, les définit aujourd'hui comme une « population à risque ». Des interventions comme le trialogue et le counseling devraient permettre aux professionnels de mieux répondre à leurs besoins.Mots-clés : Soutien informel -accident cérébrovasculaire -femme -homme. Summary:The objective of this study was to assess the emotional response to caregiving among stroke caregivers and to assess the social and psychological impact of strokes on households two years after the event. Questionnaires were administered to 62 patient (64.4 years old)/caregiver (59.3 years old) dyads. The survey focused on: 1) residual impairments, based on the American Heart Association Stroke Outcome Classification; 2) the Caregiver Reaction Assessment (CRA -24 items -5 dimensions); and 3) changes in the division of household tasks (seven items). Although male and female caregivers care for patients with similar residual impairments, the study found that female caregivers were more likely to be affected by the impact of caregiving on their health and schedule and by lack of family support. Women were more likely to feel "tired all the time" (50% vs. 12.5%), to struggle to "find time to relax" (35.7% vs. 6.3%) and to feel that "others dumped caring onto them" (35.7% vs. 11.8%). Since the onset of stroke, women had also taken on more responsibilities in the household (37.5% vs. 5.9%), while men were more likely to "enjoy caring" for patients (93.8% vs. 67.9%) and to have become more involved in organizing holidays (29% vs. 5.6%) and seeing friends (20.6% vs. 10.5%). Because of the high level of exhaustion, particularly among women, caregivers are a high-risk population for the healthcare system. In...

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“…The health condition of the family member affects depression [59][60][61] . According to Berg et al [65] , depression of the family member is connected to the severity of the disorder of the patient, and the depression of the family member will be predicted best by their reaction during the acute phase of the disorder. In the study of Shanmugham et.…”

Section: Resultsmentioning

confidence: 99%

The everyday life of adult family members of working aged survivors of stroke during the first year after the stroke – an integrative review

Lehto¹,

Kylmä²,

Åstedt‐Kurki³

2013

Clinical Nursing Studies

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The purpose of this integrative review was to describe the everyday life of adult family members of working aged survivors of stroke during the first year after the occurrence of the stroke. The studies were researched from Medline, Cinahl, PsycINFO, Medic and Linda databases. The data consisted of 40 articles which were published in scientific journals during [2007][2008][2009][2010][2011][2012]. The quality of the articles were assessed with the critical appraisal tools JBI QARI and JBI MAStARI [1] . The articles were analyzed with thematic analysis. The everyday life of adult family members included initially becoming the family member of a survivor of stroke, living as their family member, and eventually coming to terms with life with the survivor of a stroke. Becoming the family member meant living in a focused state of chaos, trying to be strong for the loved one, and going forward in life. It also emphasized the need to rebuild and find a balance in the shadow of the illness and the needs of this complex situation. Coming to terms with the changed life situation of the family member consisted of trying to stabilize emotional wellbeing amid bouts of anxiety and depression. The results of this research should help nurses to better meet the needs of family members at the right time in order to help them deal with expected problems. There is much evidence about older caregivers' needs, but only scant evidence about younger caregivers and their working aged relatives, especially just after the stroke. This integrative literature review gives important information about the everyday life of family members of working aged survivors of stroke and helps nurses to better understand them and their needs.

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Depression Among Caregivers of Stroke Survivors

Cited by 198 publications

References 24 publications

Increased risk of severe depression in male partners of women with breast cancer

Increased risk of severe depression in male partners of women with breast cancer

Prendre soin des personnes après AVC : réactions émotionnelles des aidants informels hommes et femmes

The everyday life of adult family members of working aged survivors of stroke during the first year after the stroke – an integrative review

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