Dental health in children on Home Parenteral Nutrition

Kumaraguru, Nandhini; Hughes, Anna; Forbes-Penfold, D.; Evans, Victoria; Hill, Susan; Köglmeier, Jutta

doi:10.1016/j.clnesp.2015.03.035

Cited by 3 publications

(6 citation statements)

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“…Children with minimal oral intake and a delay in exposure to oral fluids and food are at high risk of dental problems. CVAD infections have been associated with poor dental hygiene and dental infections . An annual dental review is recommended.…”

Section: Monitoring Of Long‐term Complicationsmentioning

confidence: 99%

Monitoring of long‐term parenteral nutrition in children with intestinal failure

Zemrani

Bines

2019

JGH Open

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Pediatric intestinal failure (IF) is a rare and complex condition associated with significant morbidity and mortality. It is defined as the reduction of gut mass or function below the minimal needed for absorption of nutrients and fluid to sustain life and growth. Since the advent of specialized multidisciplinary intestinal rehabilitation centers, IF management has considerably evolved in the last years, but serious complications of long‐term parenteral nutrition (PN) can occur. Main complications include intestinal failure‐associated liver disease, growth failure, body composition imbalance, central venous access complications, micronutrient deficiencies and toxicities, metabolic bone disease, small intestinal bacterial overgrowth, and renal disease. With improvement in survival rates of patients over the last 20 years, emphasis should be on limiting IF‐related comorbidities and improving quality of life. Close monitoring is pivotal to ensuring quality of care of these patients. The care of children with chronic IF should involve a comprehensive monitoring plan with flexibility for individualization according to specific patient needs. Monitoring of children on long‐term PN varies significantly across units and is mainly based on experience, although few guidelines exist. This narrative review summarizes the current knowledge and practices related to monitoring of children with IF. The authors also share their 20‐year experience at the Royal Children's Hospital in Melbourne Australia on this topic.

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Section: Monitoring Of Long‐term Complicationsmentioning

confidence: 99%

Monitoring of long‐term parenteral nutrition in children with intestinal failure

Zemrani

Bines

2019

JGH Open

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“…These alterations could lead to premature loss of primary teeth. The reduced intake of food by the mouth with the absence of the masticatory movements could impact teeth development, especially in children, inducing abnormalities such as shape anomalies, enamel defects, staining, and gingivitis (Kumaraguru et al, 2016;Olczak-Kowalczyk et al, 2014;Vanderhoof & Young, 2001;Wright et al, 1991).…”

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confidence: 99%

“…Other features documented are delayed dentition which could also affect oral food introduction in those patients (Kumaraguru et al, 2016).…”

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confidence: 99%

“…Parenteral nutrition seems to be associated with a higher risk of developing gum inflammation in children (Kumaraguru et al, 2016;Olczak-Kowalczyk et al, 2014;Wright et al, 1991), and in adult life, it could lead to reluctance to seek dental evaluation (Lee et al, 2013).…”

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confidence: 99%

“…Other features documented are delayed dentition which could also affect oral food introduction in those patients (Kumaraguru et al, 2016). Parenteral nutrition seems to be associated with a higher risk of developing gum inflammation in children (Kumaraguru et al, 2016; Olczak‐Kowalczyk et al, 2014; Wright et al, 1991), and in adult life, it could lead to reluctance to seek dental evaluation (Lee et al, 2013).…”

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confidence: 99%

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Oral health in pediatric short bowel syndrome

et al. 2022

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Determinants of dental care use in patients with rare diseases: a qualitative exploration

et al. 2023

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Background Oral health is an inherent part of overall health as an important physiological crossroad of functions such as mastication, swallowing or phonation; and plays a central role in the life of relationships facilitating social and emotional expression.Our hypothesis was that in patients with rare diseases, access to dental care could be difficult because of the lack of professionals who know the diseases and accept to treat the patients, but also because some patients with cognitive and intellectual disabilities could not find adequate infrastructure to assist in managing their oral health. Methods This study employed a qualitative descriptive design including semi-structured interviews using guiding themes. The transcripts were reviewed to identify key themes and interviews were performed until the data were saturated and no further themes emerged. Results Twenty-nine patients from 7 to 24 years old were included in the study of which 15 patients had an intellectual delay. The results show that access to care is complicated more by aspects concerning intellectual disability than by the fact that the disease is rare. Oral disorders are also an obstacle to the maintenance of their oral health. Conclusion The oral health of patients with rare diseases, can be greatly enhanced by a pooling of knowledge between health professionals in the various sectors around the patient’s care. It is essential that this becomes a focus of national public health action that promotes transdisciplinary care for the benefit of these patients.

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Dental health in children on Home Parenteral Nutrition

Cited by 3 publications

References 0 publications

Monitoring of long‐term parenteral nutrition in children with intestinal failure

Monitoring of long‐term parenteral nutrition in children with intestinal failure

Oral health in pediatric short bowel syndrome

Determinants of dental care use in patients with rare diseases: a qualitative exploration

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