Dental care access among individuals with Down syndrome: a Malaysian scenario

Rahim, Farah S alwa Abdul; Mohamed, Alizae Marny Fadzlin Syed; Nor, Murshida Marizan; Saub, Roslan

doi:10.3109/00016357.2014.936036

Cited by 11 publications

(20 citation statements)

References 16 publications

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“…Four studies measured coverage of dental services, all of which focussed on children with intellectual disabilities Khatib et al and Al Habeshneh et al found lower previous dental attendance for children with intellectual disability in Egypt, and Jordan respectively [ 37 , 38 , 39 ]. Oredugba et al and Rahim et al found no difference in any dental treatment received amongst children with intellectual disability in Nigeria and Malaysia respectively [ 40 ].…”

Section: Resultsmentioning

confidence: 99%

A Systematic Review of Access to General Healthcare Services for People with Disabilities in Low and Middle Income Countries

Bright

Kuper

2018

IJERPH

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Background: A systematic review was undertaken to explore access to general healthcare services for people with disabilities in low and middle-income countries (LMICs). Methods: Six electronic databases were searched in February 2017. Studies comparing access to general healthcare services by people with disabilities to those without disabilities from LMICs were included. Eligible measures of healthcare access included: utilisation, coverage, adherence, expenditure, and quality. Studies measuring disability using self-reported or clinical assessments were eligible. Title, abstract and full-text screening and data extraction was undertaken by the two authors. Results: Searches returned 13,048 studies, of which 50 studies were eligible. Studies were predominantly conducted in sub-Saharan Africa (30%), Latin America (24%), and East Asia/Pacific (12%). 74% of studies used cross-sectional designs and the remaining used case-control designs. There was evidence that utilisation of healthcare services was higher for people with disabilities, and healthcare expenditure was higher. There were less consistent differences between people with and without disabilities in other access measures. However, the wide variation in type and measurement of disability, and access outcomes, made comparisons across studies difficult. Conclusions: Developing common metrics for measuring disability and healthcare access will improve the availability of high quality, comparable data, so that healthcare access for people with disabilities can be monitored and improved.

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Section: Resultsmentioning

confidence: 99%

A Systematic Review of Access to General Healthcare Services for People with Disabilities in Low and Middle Income Countries

Bright

Kuper

2018

IJERPH

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“…Articles were evenly distributed between qualitative and quantitative study designs. Fourteen studies were qualitative [ 22 , 23 , 24 , 25 , 26 , 27 , 28 , 29 , 30 , 31 , 32 , 33 , 34 , 35 ], eleven were quantitative [ 36 , 37 , 38 , 39 , 40 , 41 , 42 , 43 , 44 , 45 , 46 ], and five were mixed methods [ 20 , 47 , 48 , 49 , 50 ]. Investigators in six studies completed secondary analyses, four using data from the National Survey of Children with Special Health Care Needs (NS-CSHCN) [ 51 , 52 , 53 , 54 ], one completing a chart review [ 7 ], and one using the Intellectual Disability Exploring Answers (IDEA) database [ 55 ].…”

Section: Resultsmentioning

confidence: 99%

“…Each of these measures was used in two studies included in the review [ 20 , 36 , 38 , 48 , 56 , 57 ]. Additionally, two studies used the Oral assessment in DS Questionnaire [ 37 , 44 ]. The Emotionality, Activity, Sociability Survey, Family Adaptability and Cohesion Evaluation Scale, the brief Family Assessment Measure (FAM), Family Support Scale (FSS), Family Coping Index (FCI), Family Environment Scale, Family Index of Regeneratively and Adaptation (FIRA-G), Parent-caregiver Perception Questionnaire (P-CPQ), Perceived Social Support Scale (PSSS), Family Assessment Device (FAD), Beck Depression Inventory (BDI), Index of Social Competence (ISC) and Family APGAR were each used in one study [ 36 , 38 , 40 , 43 , 56 , 57 ].…”

Section: Resultsmentioning

confidence: 99%

Care Coordination Needs of Families of Children with Down Syndrome: A Scoping Review to Inform Development of mHealth Applications for Families

et al. 2021

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Care coordination is a critical component of health management aimed at linking care providers and health-information-involved care management. Our intent in this scoping review was to identify care coordination needs of families of children with Down syndrome (DS) and the strategies they used to meet those needs, with the goal of contributing to the evidence base for developing interventions by using an mHealth application (mHealth apps) for these families. Using established guidelines for scoping reviews, we searched five databases, yielding 2149 articles. Following abstract and full-text review, we identified 38 articles meeting our inclusion criteria. Studies incorporated varied in regard to research designs, samples, measures, and analytic approaches, with only one testing an intervention by using mHealth apps. Across studies, data came from 4882 families. Common aspects of families’ care coordination needs included communication and information needs and utilization of healthcare resources. Additional themes were identified related to individual, family, and healthcare contextual factors. Authors also reported families’ recommendations for desirable characteristics of an mHealth apps that addressed the design of a personal health record, meeting age-specific information needs, and ensuring access to up-to-date information. These results will further the development of mHealth apps that are tailored to the needs of families with a child with DS.

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“…Although DS individuals’ families may encounter more challenges in daily life, their OHRQoL was not different from families of individuals without DS. The results suggest that the impact of oral conditions may be considered less relevant by the family members of individuals with DS compared with all the daily care that this population needs …”

Section: Discussionmentioning

confidence: 99%

“…Moreover, dental caries and the clinical consequences of untreated dental caries can cause pain and functional limitations during chewing and speech, which results in changes in the daily life of the children/adolescents and their families . Parents/caregivers of children/adolescents with DS also encounter additional issues with respect to dental access for their children, given the small number of practitioners well trained to provide dental services to this population, resulting in frequent unfavorable dental treatment experiences for the children/adolescents and for their guardians …”

Section: Discussionmentioning

confidence: 99%

Impact of oral conditions of children/adolescents with Down syndrome on their families’ quality of life

Carrada

Scalioni

Abreu

et al. 2019

Special Care in Dentistry

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Aims To assess the impact of oral conditions among children/adolescents with Down syndrome (DS) on the Oral Health‐related Quality of Life (OHRQoL) of their families in comparison with a group without DS. Methods and results Families of 144 children/adolescents with DS aged 4‐18 years were compared with families of individuals without DS. Dental caries experience (DMFT/dmft), clinical consequences of untreated dental caries (PUFA/pufa), gingival bleeding (GBI), visible plaque (VPI), and malocclusion were evaluated. Parents/caregivers answered the Family Impact Scale (FIS) and questionnaires on sociodemographic conditions and the health of children/adolescents. Data analysis included chi‐square test and Poisson regression. There was no difference between groups regarding the impact of the children's/adolescents' oral condition on their families’ OHRQoL for all domains and the total FIS score (P > 0.05). A negative impact on the OHRQoL of families of children/adolescents with DS was determined by dental caries (PR = 3.95, CI = 2.09‐7.46), clinical consequences of untreated dental caries (PR = 1.83, CI = 1.18‐2.84), defined malocclusion (PR = 2.75, CI = 1.23‐6.13), and severe malocclusion (PR = 2.82, CI = 1.02‐7.74). Conclusion There is no difference on the OHRQoL of families of children/adolescents with and without DS. Dental caries experience, clinical consequences of untreated dental caries, defined malocclusion, and severe malocclusion determined the negative impact on the OHRQoL of families of children/adolescents with DS.

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Dental care access among individuals with Down syndrome: a Malaysian scenario

Abstract: A high proportion of parents appear to be able to access dental and medical care for their DS child. However, some parents perceived difficulty in finding oral healthcare.

Cited by 11 publications

References 16 publications

A Systematic Review of Access to General Healthcare Services for People with Disabilities in Low and Middle Income Countries

A Systematic Review of Access to General Healthcare Services for People with Disabilities in Low and Middle Income Countries

Care Coordination Needs of Families of Children with Down Syndrome: A Scoping Review to Inform Development of mHealth Applications for Families

Impact of oral conditions of children/adolescents with Down syndrome on their families’ quality of life

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