Demonstrating Value: Registries and Beyond

Walters, Samuel R.

doi:10.1016/j.giec.2011.08.010

Cited by 3 publications

(3 citation statements)

References 2 publications

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“…There is increasing evidence that registries demonstrate good value for money, that is, improved health outcomes at lower cost 38 . ‐ 40 In 2012, Larsson and colleagues calculated that if the US had a registry for hip replacement surgery that encouraged reductions in surgical revision rates comparable with those attributed, in part, to the presence of the Swedish registry, the US might have avoided $2 billion of an expected $24 billion in total costs in 2015 for these surgeries 39 …”

Section: Opportunities That Registries Providementioning

confidence: 99%

“…The establishment of a number of national clinical quality registries for high burden, high variance conditions or interventions is a cost‐effective 38 ‐ 40 way of addressing Australia's information gaps in order to effectively monitor the appropriateness and effectiveness of health care. The development of one national registry per clinical domain — rather than multiple state and territory‐based registries all attempting to monitor similar indicators — has obvious efficiencies and is more likely to attract funding.…”

Section: Beyond the Barriersmentioning

confidence: 99%

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Clinical quality registries have the potential to drive improvements in the appropriateness of care

Wilcox

McNeil

2016

Medical Journal of Australia

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Summary The provision of timely, relevant and reliable information on patient care to clinicians has been shown to drive improvements in health care quality. Well constructed clinical quality registries collect and report information on both the appropriateness of care (process) in keeping with clinical practice guidelines and the effectiveness of care (outcomes). Notwithstanding the successful establishment of several new registries and improvements in established registries, barriers persist for clinical groups wishing to improve the quality of information and level of participation in registries in Australia. To address these barriers, the Australian Commission on Safety and Quality in Health Care has developed the Framework for Australian Clinical Quality Registries. The Framework describes a mechanism by which government jurisdictions and private hospital groups can authorise and secure record‐level data, within high priority clinical domains, to measure, monitor and report the appropriateness and effectiveness of health care. The provision of benchmarked information back to clinicians on the appropriateness and outcomes of care is expected to improve adherence to evidence‐based practice and drive improvement in outcomes.

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Section: Opportunities That Registries Providementioning

confidence: 99%

Section: Beyond the Barriersmentioning

confidence: 99%

Clinical quality registries have the potential to drive improvements in the appropriateness of care

Wilcox

McNeil

2016

Medical Journal of Australia

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“…purposes'' (Gliklich & Dryer, 2010, Executive Summary). Registries are particularly useful for cancer researchers as they provide opportunities to generate research questions, examine profiles of patients related to a specific characteristic, and provide data elements for sophisticated modeling (Walters, 2012).…”

mentioning

confidence: 99%

Facilitating Enrollment in a Cancer Registry Through Modified Consent Procedures: A Pilot Study

Mazanec

Daly

Step

2012

Journal of Empirical Research on Human Research Ethics

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Research registries are increasingly important in medical research and are essential to the mission of cancer centers. However, designing enrollment and data collection procedures that are consistent with ethical norms and regulatory requirements yet are efficient and cost effective is a major challenge. Current standard consent forms can be a barrier to enrollment because of their length, multiple components, and technical language. We pilot tested an IRB-approved registry booklet and simplified one-page, tiered consent form, allowing for choice of extent of participation. The booklet was mailed to patients with breast cancer as part of their routine information packet prior to the first clinic appointment. A research nurse met with 27 patients at initial treatment to review the booklet, answer questions, obtain informed consent, and collect quality of life data. The consent rate was 78% with 21 patients enrolling in the study. Twelve of the 21 patients (57%) did not read the booklet prior to the visit. The 9 patients (43%) who had read the booklet prior to arrival found it easy to understand. The multi-stage, simplified consent process and data collection were acceptable to these patients and readily integrated into clinical operations. An easy-to-read registry booklet may be an effective guide for discussion, but in-person consent procedures and further testing of the approach are required.

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Quality assurance for gastrointestinal endoscopy

Allen¹

2012

Current Opinion in Gastroenterology

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The United States national quality improvement agenda recently became organized into a more coordinated effort spearheaded by several public and private entities. They comprise the infrastructure by which performance measures are developed and implemented as accountability standards. Understanding wherein a gastroenterology (GI) practice fits into this infrastructure and learning ways we can improve our endoscopic practice is important for physicians who provide this vital service to patients. This article will provide a roadmap for developing a quality assurance program for endoscopic practice.

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Demonstrating Value: Registries and Beyond

Cited by 3 publications

References 2 publications

Clinical quality registries have the potential to drive improvements in the appropriateness of care

Clinical quality registries have the potential to drive improvements in the appropriateness of care

Facilitating Enrollment in a Cancer Registry Through Modified Consent Procedures: A Pilot Study

Quality assurance for gastrointestinal endoscopy

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