Democracy and dilemmas of self‐determination

‘You have to care.’ perceptions of promoting autonomy in support settings for adults with intellectual disability

“…; Jingree et al . ; Karlsson & Nilholm ). For example, support workers may construct choice in a limited or repressive way for people with intellectual disability that does not allow for expression of autonomy (Antaki et al .…”

“…Antaki et al . ; Karlsson & Nilholm ; Lakin et al . ), none have sought perspectives from both support workers and people with intellectual disability about how the support relationship explicitly contributes to or hinders the autonomy of people with intellectual disability.…”

“…The support services that they receive may actually lead to compromised autonomy (Barron 2001;Stainton 1994). Although people with disabilities are capable of being self-determined advocates (Ippoliti et al 1994;Stancliffe 2001), research has shown that even attempts to increase autonomy for people with intellectual disability by providing choice and decision-making opportunities can pose barriers to promoting autonomy, self-determination and self-advocacy Jingree et al 2006;Karlsson & Nilholm 2006). For example, support workers may construct choice in a limited or repressive way for people with intellectual disability that does not allow for expression of autonomy Wareing & Newell 2002).…”

“…Although several studies have examined components of autonomy, such as self-advocacy, choice and decisionmaking (e.g. Antaki et al 2006;Karlsson & Nilholm 2006;Lakin et al 2008), none have sought perspectives from both support workers and people with intellectual disability about how the support relationship explicitly contributes to or hinders the autonomy of people with intellectual disability. The purpose of this study was to understand the perceptions of support workers and people with intellectual disability regarding how and why autonomy of people with intellectual disability is promoted or inhibited within the support relationship.…”

Menneskesyn og verdier; utgangspunkt for selvbestemmelse — En kvalitativ studie om erfaringer fra psykisk helsearbeid i førstelinjetjenesten, sett fra et personalperspektiv

“…I forhold til spørsmål om selvbestemmelse påpeker nasjonale føringer at brukermedvirkning er en rettighet for alle mennesker (2). Studier knyttet til brukermedvirkning viser at dette kan vaere et retorisk spørsmål mer enn en realitet i mange kliniske sammenhenger (3,9,11). Det reises fundamentale spørsmål knyttet til brukermedvirkning, og utfordringer knyttet til å finne ut av hva «problemet» handler om, hvem som har makt til å definere den «virkelige sannhet», blir satt på dagsorden.…”