Demenzerkrankungen bei Menschen mit Migrationshintergrund und ethische Konflikte im medizinischen und pflegerischen Alltag

Intercultural care for people of migrant origin with dementia – A literature analysis

“…They can raise awareness of dementia and build trust with people of migrant origin (Vissenberg et al, 2018). The importance of such collaborations with healthcare professionals (Tezcan-Güntekin, 2018; Vissenberg et al, 2018) and among people of migrant origin with dementia, their families and healthcare professionals is mentioned throughout the literature (Casado et al, 2015; Gillespie et al, 2015; Lawrence et al, 2008; Sagbakken, Spilker, & Ingebretsen, 2018). The encouragement of a ‘strong collaboration between primary organisations, specialised memory clinics, and governmental organizations’ is needed ‘to optimise healthcare, to strengthen the provision of information, to enhance the availability of culturally sensitive facilities and to invest in the training and education of professionals’ (Vissenberg et al, 2018).…”

“…It is helpful for healthcare professionals to work closely with other professionals who care for/work with people of migrant origin with dementia and their families (Vissenberg et al, 2018; Xiao et al, 2015). The use of interprofessional case analysis can support the development of culturally and diversity-sensitive attitudes among professionals (Tezcan-Güntekin, 2018). Collaborations could assist in monitoring behaviour and symptoms over the course of the disease and support ongoing discussions among healthcare professionals, family members and the person of migrant origin with dementia (Sagbakken, Spilker, & Nielsen, 2018).…”

“…These could help to break down negative opinions regarding healthcare services and build rapport with and understanding of the healthcare system among affected people of migrant origin (Hossain & Khan, 2020). These include multi-lingual low-threshold regional information and consultation services (Piechotta & Matter, 2008; Tezcan-Güntekin, 2018; Tillmann et al, 2019), culturally relevant support groups/services and psychosocial interventions in different languages, all of which give family members the opportunity to obtain information and support, alleviate caregiver burden and stress and provide opportunities to exchange experiences (Casado et al, 2015; Gillespie et al, 2015; Herat-Gunaratne et al, 2020; Tezcan-Güntekin, 2018; Vissenberg et al, 2018). There is a need for networks, including caregiver networks where family caregivers can get together to socialise and share their emotions (Boughtwood et al, 2011) and networks for people with dementia that provide information about available healthcare services and how to utilise them (Regan, 2016).…”

“…It is important to make clear that services are meant to provide support for caring for the person with dementia and are not meant to replace family care (Herat-Gunaratne et al, 2020; Lawrence et al, 2008). Such information could help to increase acceptance and utilisation of professional care (Tezcan-Güntekin, 2018).…”

Ethical and Methodological Challenges in Research With Hard-to-Reach Groups: Examples From Research on Family Caregivers for Migrant Older Adults Living With Dementia

“…An increased awareness of migration-related topics has emerged in medical ethics discourses in recent years, for instance in relation to palliative care ( Ilkilic, 2016 ) or culturally sensitive care ( Agbih, 2014 ). To a lesser extent, ethics-focused research has also begun to take into consideration family caregivers of people with dementia with a migration background ( Alzheimer Europe, 2018 ; Tezcan-Güntekin, 2018a ). However, ethical challenges specifically related to the practice of conducting research with hard-to-reach groups have predominantly been examined in relation to nonmigrant target populations ( Locher et al, 2006 ; Phipps, 2002 ; Sims, 2020 ) or indigenous people living in Australia ( National Health and Medical Research Council, 2018 ).…”