Dementia: Stigma, Language, and Dementia-friendly

Swaffer, Kate

doi:10.1177/1471301214548143

Cited by 187 publications

(215 citation statements)

References 19 publications

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“…The effect of stigma in relation to participation in research has been documented (Batsch & Mittelman, 2012;Swaffer, 2014). One implication is that research activity might need to explore models of enquiry that embrace and empower communication and capability rather than cognitive failure or impairment.…”

Section: How Is Meaning Communicated and Interpreted?mentioning

confidence: 99%

Critical reflections on methodological challenge in arts and dementia evaluation and research

et al. 2017

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Methodological rigour, or its absence, is often a focus of concern for the emerging field of evaluation and research around arts and dementia. However, this paper suggests that critical attention should also be paid to the way in which individual perceptions, hidden assumptions and underlying social and political structures influence methodological work in the field. Such attention will be particularly important for addressing methodological challenges relating to contextual variability, ethics, value judgement, and signification identified through a literature review on this topic. Understanding how, where and when evaluators and researchers experience such challenges may help to identify fruitful approaches for future evaluation.

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Section: How Is Meaning Communicated and Interpreted?mentioning

confidence: 99%

Critical reflections on methodological challenge in arts and dementia evaluation and research

et al. 2017

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“…Dementia-friendly and age-friendly initiatives entail a similar approach, which is the creation of supportive, inclusive and enabling environments that maximise independence through collaboration with diverse community stakeholders (Turner & Morken, 2016). Through this approach, both dementia-friendly and age-friendly initiatives also shift the narrative from deficit and burden to contribution and inclusion, and to mitigation against stigma, prejudice and discrimination (Swaffer, 2014).…”

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confidence: 99%

Assets-based approaches and dementia-friendly communities

Rahman

Swaffer

2018

Dementia

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“…In understanding the limitations experienced by people with dementia, co-design activities allow developers to reduce challenges introduced by technology use, while empowering the persons. A positive impact is the increased caregivers awareness of their remaining abilities and reducing the potential of a person to be seen as a victim (Jury, 2016;Swaffer, 2014). AAL environments can be designed to support informal caregivers in fashioning "do-it-yourself" solutions that complement tacitly improvised care strategies and enable them to try, observe, and adapt to solutions over time, decide which activities to entrust to technology support, how a system should provide support and when adaptations are needed (Hwang, Truong, Cameron, Lindqvist, Nygård and Mihailidis, 2015).…”

Section: Design and Development Of Technologies For People With Dementiamentioning

confidence: 99%

Assistive Technologies to Address Capabilities of People with Dementia: From Research to Practice

et al. 2017

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Assistive technologies (AT) became pervasive and virtually present in all our life domains. They can be either an enabler or an obstacle leading to social exclusion. The Fondation Médéric Alzheimer gathered international experts of dementia care, with backgrounds in biomedical, human and social sciences, to analyse how AT can address the capabilities of people with dementia, on the basis of their needs. Discussion covered the unmet needs of people with dementia, the domains of daily life activities where AT can provide help to people with dementia, the enabling and empowering impact of technology to improve their safety and wellbeing, barriers and limits of use, technology assessment, ethical and legal issues. The capability approach (possible freedom) appears particularly relevant in person-centered dementia care and technology development. The focus is not on the solution, rather on what the person can do with it: seeing dementia as disability, with technology as an enabler to promote capabilities of the person, provides a useful framework for both research and practice. This article summarizes how these concepts took momentum in professional practice and public policies in the past fifteen years (2000)(2001)(2002)(2003)(2004)(2005)(2006)(2007)(2008)(2009)(2010)(2011)(2012)(2013)(2014)(2015), discusses current issues in the design, development and economic model of AT for people with dementia, and covers how these technologies are being used and assessed.

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Dementia: Stigma, Language, and Dementia-friendly

Cited by 187 publications

References 19 publications

Critical reflections on methodological challenge in arts and dementia evaluation and research

Critical reflections on methodological challenge in arts and dementia evaluation and research

Assets-based approaches and dementia-friendly communities

Assistive Technologies to Address Capabilities of People with Dementia: From Research to Practice

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