Dementia Family Caregiver Training: Affecting Beliefs About Caregiving and Caregiver Outcomes

Hepburn, Kenneth; Tornatore, Jane B.; Center, Bruce; Ostwald, Sharon W.

doi:10.1046/j.1532-5415.2001.49090.x

Cited by 252 publications

(216 citation statements)

References 64 publications

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“…One of them (medium methodological quality) found lower levels of depression and burden of caregivers beside less severe reactions to behavioral problems. There was, however, no decrease in the frequency of problem behaviors of recipients [72]. In contrast, an educational program of high methodological quality followed by group meetings to learn communication techniques and structured problem solving, did decrease behavioral and psychological symptoms (primary outcome) of recipients in a subgroup of female intervention caregivers.…”

Section: Group Based Multicomponent Interventionsmentioning

confidence: 83%

Effectiveness of Supporting Informal Caregivers of People with Dementia: A Systematic Review of Randomized and Non-Randomized Controlled Trials

Vandepitte

Noortgate

Putman

et al. 2016

JAD

102

118

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Abstract.Background: Dementia is known as a major public health problem affecting both patients and caregivers, and placing a high financial strain upon society. In community-dwelling patients, it is important to support informal caregivers in order to help them sustain their demanding role. Previous reviews about effectiveness of such supporting strategies often included a small number of studies, focused only on particular supportive types, particular outcomes, or solely on caregivers. Objective: A general systematic review was conducted investigating effectiveness of different supportive strategies on at least the well-being of the caregiver or the care-recipient. Methods: A systematic literature search was conducted in Web of Science and PubMed. An adapted version of the Downs and Black (1998) checklist was used to assess methodological quality. A new classification was developed to group different types of caregiver support. Results: Fifty-three papers met the inclusion criteria. Although 87% of the interventions were to some extent effective, methods and findings were rather inconsistent. Psychoeducational interventions generally lead to positive outcomes for caregivers, and delay permanent institutionalization of care-recipients. Cognitive behavioral therapy decreases dysfunctional thoughts among caregivers. Occupational therapy decreases behavioral problems among patients and improves self-efficacy of caregivers. In general, those interventions tailored on individual level generate better outcomes. Comparative research on respite care was very rare. Conclusions: Despite methodological inconsistency, supporting caregivers appears to be an effective strategy often improving well-being of caregiver or care-recipient and resulting in additional benefits for society. However, there is a need for more research on the (cost)-effectiveness of respite care.

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Section: Group Based Multicomponent Interventionsmentioning

confidence: 83%

Effectiveness of Supporting Informal Caregivers of People with Dementia: A Systematic Review of Randomized and Non-Randomized Controlled Trials

Vandepitte

Noortgate

Putman

et al. 2016

JAD

102

118

View full text Add to dashboard Cite

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“…These interventions could be specifically designed to strengthen intrapersonal skills and resources in order to prevent the worsening of psychiatric symptoms as some of these caregivers progress to become dementia caregivers. For example, to the extent that caregiver burden contributes to psychiatric morbidity, interventions designed to promote affective self-management and adaptive coping skills training, implemented very early in the caregiving trajectory, hold promise for contributing to more positive mental health outcomes in these spousal caregivers (Areán et al, 1993;Hosaka and Sugiyama, 1999;Gallagher-Thompson et al, 2000;Hepburn et al, 2001;Alexopoulos, et al, 2003). Self-management interventions, with their focus on promoting self-efficacy (i.e.…”

Section: Discussionmentioning

confidence: 99%

Caregiving burden and psychiatric morbidity in spouses of persons with mild cognitive impairment

Garand

Dew

Eazor

et al. 2005

Int J Geriat Psychiatry

146

122

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SUMMARYBackground-While the deleterious psychosocial and mental health effects of dementia caregiving are firmly established, very little is known about the burdens or psychiatric outcomes of providing care to a spouse with less severe cognitive impairment, such as mild cognitive impairment (MCI). We characterized the nature and level of caregiver burden and psychiatric morbidity in spouses of persons diagnosed with MCI.

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“…Other studies, not included in this systematic review because they were not randomized trials, also showed a statistically significant positive impact of educational programs in reducing caregiver burden (28)(29)(30)(31) .…”

Section: * Ig -Intervention Group and Cg -Control Groupmentioning

confidence: 99%

Effectiveness of educational programs on reducing the burden of caregivers of elderly individuals with dementia: a systematic review

Marim¹,

Silva²,

Taminato³

et al. 2013

Rev. Latino-Am. Enfermagem

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Objective: This study's objective was to analyze the effectiveness of educational and support programs for caregivers on reducing their burden. Method: The method used was a systematic review. The following were searched; MEDLINE, LILACS, Embase, Cochrane, Web of Science, SciELO and CINAHL. Results: Seven randomized clinical studies were included. These studies compared an educational program with standard care delivery, assessing the burden of caregivers through the Zarit Burden Interview. After the analysis of sensitivity, four studies were grouped in the meta-analysis showing a statistically significant reduction in caregiver burden among the participants of educational and support programs. Conclusion: The evidence obtained in this study suggests that educational and support programs have a positive impact on the reduction of caregiver burden when compared to standard care. Therefore, the inclusion of these programs in institutions providing care to the elderly is effective and should be encouraged. These programs should also share non-pharmacological management strategies for the behavioral and psychological symptoms of dementia.Descriptors: Dementia; Caregivers; Aged; Geriatric Nursing. Descritores: Demência; Cuidadores; Idoso; Enfermagem Geriátrica. Efectividad de programas educativos en la sobrecarga de cuidadores de pacientes con diagnóstico de demencia: revisión sistemáticaObjetivo: El objetivo de este estudio fue analizar la eficacia de programas de educación y apoyo a cuidadores para reducir su sobrecarga. Método: El método utilizado fue una revisión sistemática. Consultamos el MEDLINE, LILACS, Embase, Cochrane, CINAHL y Web of Science.Resultados: Se incluyeron los ensayos controlados aleatorios que compararon el programa de educación con la atención habitual, con evaluación de la carga del cuidador a través de la Escala de Zarit Burden. Tras el análisis de sensibilidad, cuatro estudios se combinaron en un metaanálisis, que muestra una mayor reducción de la carga del cuidador entre los participantes de los programas educativos y de apoyo, con significación estadística. Conclusión: La evidencia en este estudio indica que los programas educativos y de apoyo son favorables para la reducción de la carga del cuidador. La inclusión de este tipo de programas en las instituciones dedicadas al cuidado de los ancianos es eficaz y debe fomentarse. Se puede inferir que estos programas deben incluir el intercambio de estrategias de manejo no-farmacológico para los síntomas conductuales y psicológicos de la demencia.Descriptores: Demencia; Cuidadores; Anciano; Enfermería Geriátrica. IntroductionPopulation aging in Brazil has been increasingly evident throughout recent decades, i.e. the elderly population has been growing faster than other age groups. According to the census published by the Brazilian Institute of Geography and Statistics (IBGE) in 2002, the population over 60 years-old had increased 35.6% between 1999 and that year, with this age group coming to represent 7.9% of the Brazilian population.The ce...

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Dementia Family Caregiver Training: Affecting Beliefs About Caregiving and Caregiver Outcomes

Abstract: A caregiver training intervention focused on the work of caregiving and targeted at knowledge, skills, and beliefs benefits caregivers in important outcome dimensions. The results suggest the benefits of providing information, linkage, and role coaching to dementia family caregivers.

Cited by 252 publications

References 64 publications

Effectiveness of Supporting Informal Caregivers of People with Dementia: A Systematic Review of Randomized and Non-Randomized Controlled Trials

Effectiveness of Supporting Informal Caregivers of People with Dementia: A Systematic Review of Randomized and Non-Randomized Controlled Trials

Caregiving burden and psychiatric morbidity in spouses of persons with mild cognitive impairment

Effectiveness of educational programs on reducing the burden of caregivers of elderly individuals with dementia: a systematic review

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