Dementia caregiver burden association with community participation aspect of social capital

Papastavrou, Evridiki; Andreou, Panayiota; Middleton, Nicos; Tsangari, Haritini; Papacostas, Savvas

doi:10.1111/jan.12762

Cited by 35 publications

(29 citation statements)

References 84 publications

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“…Seven studies reported evidence of the association between social support and carer outcomes . Social support was examined from a number of different perspectives.…”

Section: Context Of Caringmentioning

confidence: 99%

Resilience in family caregiving for people with dementia: A systematic review

Teahan

Lafferty

McAuliffe

et al. 2018

Int J Geriat Psychiatry

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The results indicate that there is no single approach to enhancing resilience among family carers of people with dementia. Resilience is a multifaceted response to the caregiving role, and is influenced by a multitude of interrelated factors. However, the factors and resources outlined have been addressed, with limited success in some cases, by psychosocial interventions in the field. While the work conducted to date to develop resilience-enhancing interventions has been marked with some success, the next wave of carer research could usefully examine ecological perspectives on carer outcomes, including carer resilience.

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“…Seven studies reported evidence of the association between social support and carer outcomes . Social support was examined from a number of different perspectives.…”

Section: Context Of Caringmentioning

confidence: 99%

Resilience in family caregiving for people with dementia: A systematic review

Teahan

Lafferty

McAuliffe

et al. 2018

Int J Geriat Psychiatry

View full text Add to dashboard Cite

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“…Social stress is one of the factors affecting the burden on the family caregiver [10,12]. Therefore, helping families to address their need for 'social capital' (contact that gives access to social, emotional, and practical support) has a positive impact on the caregiver burden [49]. To meet these needs, DCCs should be open during holidays and weekends, and opening hours should be longer and more flexible.…”

Section: Limited Opening Hours -Consequences For the Caregiver's Socimentioning

confidence: 99%

The influence of day care centres for people with dementia on family caregivers: an integrative review of the literature

Tretteteig

Vatne

Rokstad

2015

Aging & Mental Health

104

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“…1 Family carers play a crucial role in supporting the well-being of people with dementia and their ability to remain living at home. Caring for someone with dementia can increase the carer's risk of social isolation 3 and can cause carers to give up their holidays and hobbies and spend less time with their family and friends. Caring for someone with dementia can increase the carer's risk of social isolation 3 and can cause carers to give up their holidays and hobbies and spend less time with their family and friends.…”

Section: Introductionmentioning

confidence: 99%

Identifying support needs to improve rural dementia services for people with dementia and their carers: A consultation study in Victoria, Australia

Bauer

Fetherstonhaugh

Blackberry

et al. 2019

Australian J Rural Health

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Objective: The support and service needs of people with dementia and their carers are not always addressed in rural regions, yet family carers play an important role in supporting the person living with dementia to remain living in their own home. This study sought to identify and prioritise service and support needs of people with dementia and carers. Design: A two-phase mixed methods study involving qualitative focus groups and a survey. Setting: A rural region in Victoria, Australia. Participants: People living with dementia, carers and health professionals. Results: Focus groups identified 12 areas of need. A follow-up survey reached consensus on the priority areas for service improvement. These included diagnosis and information access, dementia training, community understanding and carer support. Conclusion: Living in a rural region imposes significant challenges on people with dementia and carers. We need to find ways to address gaps in service provision for carers and people with dementia in rural settings and examine their applicability in other rural regions more broadly.

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Dementia caregiver burden association with community participation aspect of social capital

Abstract: Understanding the relation between caregiver burden and social capital will enhance nurses' capacity to explore the concept, the meaning and the politics of social capital to the benefit of dementia caregivers in the community.

Cited by 35 publications

References 84 publications

Resilience in family caregiving for people with dementia: A systematic review

Resilience in family caregiving for people with dementia: A systematic review

The influence of day care centres for people with dementia on family caregivers: an integrative review of the literature

Identifying support needs to improve rural dementia services for people with dementia and their carers: A consultation study in Victoria, Australia

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