Dementia and representative democracy: Exploring challenges and implications for democratic citizenship

Sonnicksen, Jared

doi:10.1177/1471301216638998

Cited by 12 publications

(15 citation statements)

References 59 publications

(55 reference statements)

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“…However, a more critical approach may argue that this “flexible” and “contradictory” picture may reflect the lack of clear and coherent legal policy when it comes to individuals with dementia. In the last 20 years, and especially since the adoption of the Convention of the Rights of Persons with Disabilities (CRPD), there is a strong foundation for citizenship and human-rights based approaches toward the rights of persons with dementia (Mann, Bradley, & Sahakian, 2016; Sonnicksen, 2016; Williamson, 2015). Such an approach suggests that a “flexible” or “contradictory” legal rhetoric should not be accepted; it does not permit unlimited judicial discretion.…”

Section: Discussionmentioning

confidence: 99%

Court rulings involving individuals with dementia in Israel: A qualitative perspective

et al. 2018

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Background Individuals with dementia may appear before the courts in different roles. Despite the growing interest in the rights of older persons with dementia, relatively little empirical data exist regarding their actual interactions and experiences in court. Methods This study used a qualitative, textual analysis methodology. A total of 281 Israeli legal court cases, which addressed issues relating to dementia, were analyzed. Results Four key themes were found in the legal texts: (1) The legal construction of dementia and its relationships to old age; (2) The importance of procedural justice; (3) The implications and outcomes of the legal process; and (4) The legal implications to the society as a whole. Conclusions The legal narratives, which surround legal cases that deal with dementia in Israel, reveal an internal tension between stigmatic and anti-stigmatic narratives. This complex reality raises the need for further research and for a clearer judicial policy.

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Section: Discussionmentioning

confidence: 99%

Court rulings involving individuals with dementia in Israel: A qualitative perspective

et al. 2018

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“…Engagement in the planning process is one example of involvement in participatory democracy and one way to express citizenship. A key feature of citizenship in a democracy is guaranteeing "vote and voice" through three principles: congruence (match between being affected by policy and having the right to comment on it); responsiveness (ability of a government to respond to citizen comments); and representation (providing opportunity to express opinions [in]directly; Sonnicksen, 2016). However, for PLWD, there is the misconception that they should not be able to vote or access government processes due to a perceived lack of cognitive capacity and because they are not citizen enough (Bartlett & O'Connor, 2010).…”

Section: Introductionmentioning

confidence: 99%

The Right to (Re)Shape the City

Biglieri¹

2021

Journal of the American Planning Association

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Problem, research strategy and findings: The number of people living with dementia (PLWD) is set to increase to 132 million by 2050, with most expected to reside in their own homes, not congregate living settings. Limited research on the impact of the built environment on PLWD has focused on planning outcomes, with no research on access to the planning process that shapes the places they live in. In this study I ask: what are the barriers and facilitators to participation for PLWD at open houses? I accompanied seven PLWD (individually or in pairs) to open houses, a commonly used public engagement tool, in Waterloo (Canada). To capture the experiences, I used audio recordings, field notes and sketches, photographs, and a postexperience interview with participants. Accessibility of public engagement tools for PLWD can be improved by ensuring respectful and patient communication (not rushing attendees, using plain language); providing clear, concise presentation materials (less is more, offering in-the-moment feedback opportunities); and using a familiar, comfortable physical location (sensitive to sensory overstimulation through acoustics and lighting). The sense of inclusion participants felt in attending the open houses was unexpected. Takeaway for practice:The open house is already well suited to the accessibility needs of PLWD, with peripheral, circular layouts allowing participants to learn at their own pace and interact one on one with practitioners. However, the recommendations that would make public engagement tools more accessible to PLWD are easily implementable, and by educating planners in these techniques there could be an opportunity for the profession to help dismantle the stigma associated with dementia. The commonly used public engagement tools used during the planning process need to be universally accessible so PLWD and other people with disabilities can attend any meeting they choose and have an impact on decision making in their communities.

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“…This is not only task‐shifting, which aims to meet the shortage of medical/healthcare professionals and to train volunteers to support people with dementia, but also provides support for people with dementia to participate in socioeconomic activities to explore new values that meet the needs of a super aging society . In order not to exclude people with dementia from socioeconomic activities, more discussion is required to understand ways to protect their rights and ensure access to activities …”

Section: Introductionmentioning

confidence: 99%

Promoting dementia‐friendly communities to improve the well‐being of individuals with and without dementia

Maki

Takao

Hattori

et al. 2020

Geriatrics Gerontology Int

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A community is the totality of human relationships, in which individuals live with and for others. This article discusses promoting dementia‐friendly community from the perspective of human relationships within a community. Improving the social well‐being of aging people is important; it is especially important for people with dementia, as dementia is a life‐changing syndrome that affects all aspects of one's life, including human relationships. Dementia‐friendly community requires support from the community in improving the social adaptation of people with dementia, as they experience greater difficulties in social interaction as a result of cognitive decline, especially deterioration of social cognition. They need to be empowered to stay motivated for the opportunity to maintain an active and meaningful life, despite dementia. Flexible provisions of such tailored support can be effective to improve the support network in the community to meet the individual's needs. As social and human resources are limited, it is also necessary to discuss how to share socioeconomic burdens to meet both social sustainability demands and the welfare of aging adults. More discussions that include people with dementia and their family members are required to achieve the purpose of dementia‐friendly community. This is important to enhance the well‐being of individuals with and without dementia, as well as the society as a whole, through dementia support and dementia prevention activities. Geriatr Gerontol Int 2020; ••: ••–••.

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Dementia and representative democracy: Exploring challenges and implications for democratic citizenship

Cited by 12 publications

References 59 publications

Court rulings involving individuals with dementia in Israel: A qualitative perspective

Court rulings involving individuals with dementia in Israel: A qualitative perspective

The Right to (Re)Shape the City

Promoting dementia‐friendly communities to improve the well‐being of individuals with and without dementia

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