Definitions of resilience and resilience resource use as described by adults with congenital heart disease

Steiner, Jill M.; Blakeney, Erin Abu-Rish; Baden, Andrea Corage; Freeman, Vea; Yi‐Frazier, Joyce P.; Curtis, J. Randall; Engelberg, Ruth A.; Rosenberg, Abby R.

doi:10.1016/j.ijcchd.2023.100447

Cited by 2 publications

(1 citation statement)

References 28 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…When asked what helps young people with heart disease build resilience, a majority spoke to the importance of maintaining optimism and positivity, as well as social support, which is consistent with qualitative findings in adult CHD. 29 Similarly, when asked to give advice to peers with similar heart conditions, key themes centred around self-identity beyond one's heart disease (e.g., "don't let heart disease define you"), maintaining optimism and positivity (e.g., "it gets easier"; Glenn et al, manuscript under review).…”

Section: Patient-informed Intervention Componentsmentioning

confidence: 99%

Developing the WE BEAT Well-Being Education Programme to foster resilience and build connection in paediatric heart disease

Cousino,

Dusing,

Rea

et al. 2024

Cardiol Young

View full text Add to dashboard Cite

Background: The study of psychological well-being and related resilient outcomes is of increasing focus in cardiovascular research. Despite the critical importance of psychological well-being and related resilient outcomes in promoting optimal cardiac health, there have been very few psychological interventions directed towards children with heart disease. This paper describes the development and theoretical framework of the WE BEAT Wellbeing Education Program, a group-based psychoeducation and coping skills training intervention designed to improve psychological well-being and resilience in adolescents with paediatric heart disease. Methods: Program development was informed by patient and family needs and input gathered via large, international survey methods as well as qualitative investigation, a theoretical framework, and related resilience intervention research. Results: An overview of the WE BEAT intervention components and structure of the programme is provided. Conclusions: The WE BEAT Wellbeing Education Program was developed as one of the first resiliency-focused interventions in paediatric heart disease with an overall objective to foster positive psychological well-being and resilient outcomes through a health promotion and prevention lens in an accessible format while providing access to safe, peer-to-peer community building. Feasibility pilot results are forthcoming. Future directions include mobile app-based delivery and larger-scale efficacy and implementation trials.

show abstract

Section: Patient-informed Intervention Componentsmentioning

confidence: 99%