Defining cancer survivors, their needs, and perspectives on survivorship health care in the USA

Mayer, Deborah K.; Nasso, Shelly Fuld; Earp, Jo Anne

doi:10.1016/s1470-2045(16)30573-3

Cited by 246 publications

(203 citation statements)

References 65 publications

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“…Such teachable moments can lead to increased health promotion behaviors (Bluethmann et al, 2015; McBride, Emmons, & Lipkus, 2003). Survivors prefer these discussions to come from their oncologist and express concern about their primary-care providers’ ability to address their unique needs (Mayer, Nasso, & Earp, 2017). …”

Section: Resultsmentioning

confidence: 99%

Communication between oncologists and lymphoma survivors during follow-up consultations: A qualitative analysis

Franco

Shuk

Philip

et al. 2017

Journal of Psychosocial Oncology

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Cancer survivors often experience both short- and long-term challenges as a result of their cancer treatment. Many patients report feeling “lost in transition” following cancer treatment. The oncologist plays a key role in helping the patient to transition to survivorship. The purpose of this paper is to provide a descriptive understanding of the clinical care delivered during follow-up visits for lymphoma patients transitioning from active therapy into survivorship. We used thematic text analysis to identify themes in transcripts of audio recordings of 21 physicians and their patients in follow-up visits within 3 years of completing lymphoma treatment. Conversations between oncologists and patients during follow-up visits addressed a variety of themes, including specific health concerns, follow-up care, health promotion, prior treatment and test results, overall health status, emotional communication and affective tone, post-treatment rehabilitation, discussions occurring in the patient’s physical examination, and social issues. However, the frequency with which these themes were discussed varied. In addition, there did not appear to be a consistent framework for these visits. The varied nature of the follow-up visits analyzed in this study suggests the need for increased structure in survivorship-care consultations.

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Section: Resultsmentioning

confidence: 99%

Communication between oncologists and lymphoma survivors during follow-up consultations: A qualitative analysis

Franco

Shuk

Philip

et al. 2017

Journal of Psychosocial Oncology

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“…Previous work has found that survivors have unmet needs regarding management of persistent complications from cancer therapy, practical assistance in daily living, and help with psychosocial problems such as anxiety and fear of recurrence . However, the level and type of needs differ across survivor populations and settings . Identifying needs clusters, as opposed to focusing only on distinct individual symptoms and problems, may provide insight into the challenges faced by cancer survivors and the best way to address them.…”

Section: Introductionmentioning

confidence: 99%

“…However, SCPs may be beneficial for subgroups of patients, particularly underserved populations . Consequently, debates on how best to address the needs of cancer survivors persist .…”

Section: Introductionmentioning

confidence: 99%

Cluster Analysis Demonstrates the Need to Individualize Care for Cancer Survivors

et al. 2018

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The characterization of patients as having few needs, predominantly physical needs, predominantly psychological needs, or substantial needs that are both physical and psychological provides a productive framework for clinical care of cancer survivors and to guide further research in this field. Further research is needed to define the tailored information and services appropriate for each group of patients and to define optimal screening tools to efficiently identify the needs of individuals in oncology practice.

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“…Cancer survivors today live to an older age and are at higher risk for long-term effects of the disease and/or its treatment [3]. Cancer-related symptoms such as fatigue, insomnia, neuropathy, and pain can persist for years after the completion of treatment, yet these symptoms often remain underdiagnosed and undertreated, causing impaired function and diminishing quality of life [4].…”

Section: Introductionmentioning

confidence: 99%

Physical symptoms in long-term survivors of rare cancer

et al. 2018

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Purpose: Advances in cancer detection and treatment have resulted in a growing population of long-term survivors, but even years after treatment has concluded many survivors report physical symptoms that interfere with daily living. While there are studies of late effects following common cancers, less is known about these complications in rare cancers. This study focuses on the physical symptoms reported by long-term survivors enrolled in the NIH-sponsored Rare Cancer Genetics Registry. Methods: The Rotterdam Symptom Checklist-Modified was administered to evaluate the severity of physical symptoms commonly reported by long-term cancer survivors. Logistic regression was used to assess association between symptoms and demographic and clinical factors. Results: In 309 subjects with a median time of 7.6 years from a diagnosis of one or more rare cancers the median number of symptoms present per participant was 7. The most prevalent symptom reported was tiredness/lack of energy, which was present/very bothersome in 70%/25% of registrants. Women, non-whites, current smokers, and upper GI cancer survivors are particularly affected. Overall, symptom prevalence was similar across rare cancer types, time since diagnosis, and type of treatment. Conclusions: Rare cancer survivors continue to experience troublesome symptoms many years after diagnosis, regardless of cancer type or treatment modality. Impact for Cancer Survivors: There is a need for continued emphasis on smoking cessation in cancer survivors as well as enhanced monitoring of long-term complications in female, non-white, and upper GI cancer survivors.

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Defining cancer survivors, their needs, and perspectives on survivorship health care in the USA

Cited by 246 publications

References 65 publications

Communication between oncologists and lymphoma survivors during follow-up consultations: A qualitative analysis

Communication between oncologists and lymphoma survivors during follow-up consultations: A qualitative analysis

Cluster Analysis Demonstrates the Need to Individualize Care for Cancer Survivors

Physical symptoms in long-term survivors of rare cancer

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