Deemed consent for deceased organ donation

Weiss, Matthew J.; Dirk, Jade

doi:10.1503/cmaj.210621

Cited by 8 publications

(7 citation statements)

References 7 publications

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“…At its core, organ and tissue donation relies on the public’s trust in donation systems 28 29. In this study, specific issues differed across communities, yet the findings clearly demonstrate the need to build and maintain trust in many communities as it relates to deemed consent legislation.…”

Section: Discussionmentioning

confidence: 74%

Views of leaders in under-represented and equity-denied communities on organ and tissue donation in Nova Scotia, Canada, in light of the Human Organ and Tissue Donation Act: a qualitative descriptive study

Urquhart

Kendell

Weiss³

et al. 2023

BMJ Open

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ObjectiveTo explore the views of underserved and equity-denied communities in Nova Scotia, Canada, regarding organ and tissue donation and deemed consent legislation.DesignA qualitative descriptive study was undertaken, employing both interviews and focus groups.SettingThe province of Nova Scotia, Canada—the first jurisdiction in North America to implement deemed consent legislation for organ and tissue donation.ParticipantsLeaders of African Nova Scotian, Lesbian, Gay, Bisexual, Trans, Queer, Two Spirit (LGBTQ2S+) and Faith-based communities (Islam and Judaism) were invited to participate (n=11). Leaders were defined as persons responsible for community organisations or in other leadership roles, and were purposively recruited by the research team.ResultsThrough thematic analysis, four main themes were identified: (1) alignment with personal values as well as religious beliefs and perspectives; (2) trust and relationships, which need to be acknowledged and addressed in the context of deemed consent legislation; (3) cultural competence, which is essential to the roll-out of the new legislation and (4) communication and information to combat misconceptions and misinformation, facilitate informed decision-making, and mitigate conflict within families.ConclusionsLeaders of African Nova Scotian, LGBTQ2S+ and Faith-based communities in Nova Scotia are highly supportive of deemed consent legislation. Despite this, many issues exemplify the need for cultural competence at all levels. These findings should inform ongoing implementation of the legislation and other jurisdictions considering a deemed consent approach to organ and tissue donation.

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Section: Discussionmentioning

confidence: 74%

Views of leaders in under-represented and equity-denied communities on organ and tissue donation in Nova Scotia, Canada, in light of the Human Organ and Tissue Donation Act: a qualitative descriptive study

Urquhart

Kendell

Weiss³

et al. 2023

BMJ Open

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“…Deemed consent legislation alone does not guarantee an increase in organ transplantation. Indeed, donation rates in many countries that have implemented deemed consent have been shown to be primarily influenced by other factors (e.g., health care expenditures) (10,19). As such, joint strategies, appropriate infrastructure, and public trust are needed to overcome the various obstacles to organ donation (5,8,10,18,20,25).…”

Section: Discussionmentioning

confidence: 99%

“…The perceived positive implications of implementing deemed consent legislation in Canada suggest that deemed consent policies may have utility in the Canadian context. However, the intricacies behind deemed consent span beyond a simple decision to opt in or opt out (8,18,19). Commenters in our study raised complex issues and ethical concerns that hindered public trust for this legislation.…”

Section: Discussionmentioning

confidence: 99%

A Qualitative Content Analysis of Comments on Press Articles on Deemed Consent for Organ Donation in Canada

Fox

Donald

Chong

et al. 2022

CJASN

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Background and objectivesIn 2019, two Canadian provinces became the first jurisdictions in North America to pass deemed consent legislation to increase deceased organ donation and transplantation rates. We sought to explore the perspectives of the deemed consent legislation for organ donation in Canada from the viewpoint of individuals commenting on press articles.Design, setting, participants, & measurementsIn this qualitative descriptive study, we extracted public comments regarding deemed consent from online articles published by four major Canadian news outlets between January 2019 and July 2020. A total of 4357 comments were extracted from 35 eligible news articles. Comments were independently analyzed by two research team members using a conventional content analysis approach.ResultsCommenters’ perceptions of the deemed consent legislation for organ donation in Canada predominantly fit within three organizational groups: perceived positive implications of the bills, perceived negative implications of the bills, and key considerations. Three themes emerged within each group that summarized perspectives of the proposed legislation. Themes regarding the perceived positive implications of the bills included majority rules, societal effect, and prioritizing donation. Themes regarding the perceived negative implications of the bills were a right to choose, the potential for abuse and errors, and a possible slippery slope. Improving government transparency and communication, clarifying questions and addressing concerns, and providing evidence for the bills were identified as key considerations.ConclusionsIf deemed consent legislation is meant to increase organ donation and transplantation, addressing public concerns will be important to ensure successful implementation.

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“…LEADDR currently has multiple articles in various stages of publication: eleven published, one accepted, three under peer review, and nine publications in progress. 10,15,[21][22][23][24][25][26][27][28][29] Included in those projects is an ongoing interrupted time series evaluating the quantitative impact of legislative change on donation and transplantation rates. Intentionally, this data has not been reported at this time, based on experiences from other jurisdictions that the full impact of such a change often does not occur until three to five years post implementation.…”

Section: Evaluation Of Successmentioning

confidence: 99%

Development of a consortium to examine organ donation legislative and system reforms: A report from the LEADDR consortium

Isenor,

Weiss,

Beed

et al. 2023

Healthc Manage Forum

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In April 2019, the province of Nova Scotia became the first jurisdiction in North America to pass legislation that incorporated deemed consent for deceased organ donation. The reform included many other important updates, including the hierarchy for consent, enabled donor and recipient contact, and mandatory referral of potential deceased donors. Additionally, system reforms were implemented to improve the deceased donation system in Nova Scotia. A collection of national colleagues identified the magnitude of the opportunity to develop a comprehensive strategy to measure and evaluate the impact of the legislative and system reforms. This article describes the successful development of a consortium from both national and provincial jurisdictions that included experts from a variety of backgrounds and clinical and administrative disciplines. In describing the creation of this group, we hope to offer our case example as a model for the evaluation of other health system reforms from a multidisciplinary perspective.

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Deemed consent for deceased organ donation

Cited by 8 publications

References 7 publications

Views of leaders in under-represented and equity-denied communities on organ and tissue donation in Nova Scotia, Canada, in light of the Human Organ and Tissue Donation Act: a qualitative descriptive study

Views of leaders in under-represented and equity-denied communities on organ and tissue donation in Nova Scotia, Canada, in light of the Human Organ and Tissue Donation Act: a qualitative descriptive study

A Qualitative Content Analysis of Comments on Press Articles on Deemed Consent for Organ Donation in Canada

Development of a consortium to examine organ donation legislative and system reforms: A report from the LEADDR consortium

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