Decisional outcomes following use of an interactive web-based decision aid for prostate cancer screening

Tomko, Catherine; Davis, Kimberly M.; Ludin, Samantha; Kelly, Scott P.; Stern, Aaron; Luta, George; Taylor, Kathryn L.

doi:10.1007/s13142-014-0301-0

Cited by 8 publications

(5 citation statements)

References 43 publications

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“…Our findings confirm that the DEFINE online DA ( www.defineau.org ) improves knowledge and in principle acceptance of a risk-stratified breast screening approach as well as allowing for informed decision-making. These results are in keeping with assessments of other DAs which consistently report significant improvements in knowledge 39 – 47 and were confirmed in a Cochrane review of 105 studies reporting on DAs which have a significant impact on knowledge 48 .…”

Section: Discussionsupporting

confidence: 84%

Impact of a risk based breast screening decision aid on understanding, acceptance and decision making

et al. 2023

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Internationally, population breast cancer screening is moving towards a risk-stratified approach and requires engagement and acceptance from current and future screening clients. A decision aid (www.defineau.org) was developed based on women’s views, values, and knowledge regarding risk-stratified breast cancer screening. This study aims to evaluate the impact of the decision aid on women’s knowledge, risk perception, acceptance of risk assessment and change of screening frequency, and decision-making. Here we report the results of a pre and post-survey in which women who are clients of BreastScreen Victoria were invited to complete an online questionnaire before and after viewing the decision aid. 3200 potential participants were invited, 242 responded with 127 participants completing both surveys. After reviewing the decision aid there was a significant change in knowledge, acceptance of risk-stratified breast cancer screening and of decreased frequency screening for lower risk. High levels of acceptance of risk stratification, genetic testing and broad support for tailored screening persisted pre and post review. The DEFINE decision aid has a positive impact on acceptance of lower frequency screening, a major barrier to the success of a risk-stratified program and may contribute to facilitating change to the population breast screening program in Australia.

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Section: Discussionsupporting

confidence: 84%

Impact of a risk based breast screening decision aid on understanding, acceptance and decision making

et al. 2023

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“…Of those, we selected the ‘Making the Best Choice’ decision aid because it was presented in two different formats (paper and web, link: https://decisionaid.ohri.ca/Azsumm.php?ID=1776 - accessed 9 September 2018). ‘Making the best choice’ is an English language prostate cancer screening decision aid which has been rigorously developed26 and extensively tested27–31 by a workgroup from Georgetown University (USA). We sought permission to translate and adapt the decision aid to the Portuguese population.…”

Section: Methodsmentioning

confidence: 99%

Translation and cultural adaptation of a prostate cancer screening decision aid: a qualitative study in Portugal

et al. 2020

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ObjectivesTo translate and culturally adapt an English language patient decision aid addressing prostate cancer screening, so it can be used by Portuguese men.DesignQualitative study. We followed the European Centre for Disease Prevention and Control’s (ECDC) five-step, stakeholder-based approach to adapting health communication materials: (1) selection of materials and process coordinators, (2) early review, (3) translation and back translation, (4) comprehension testing with cognitive semi-structured interviews and (5) proofreading. Content analysis was performed using Ligre software.Setting and participantsCognitive interviews with 15 men to refine a decision aid after its translation. Eligible participants were Portuguese native-speaking men aged 55–69 years old recruited from the local community (urban and suburban) of Oporto district through advertisements in social media and senior universities between January and March 2019. A previous diagnosis of prostate cancer was the single exclusion criterion.ResultsFive main themes are presented: informational content, information comprehension, sociocultural appropriateness, feelings and main message and personal perspective concerning prostate cancer screening. Most men found the translated version of the decision aid to be clear, comprehensive and appropriate for its target population, although some suggested that medical terms could be a barrier. The data collected from men’s interviews afforded the researchers the opportunity to clarify concepts and expand existing content.ConclusionsA decision aid was successfully translated and adapted to the Portuguese cultural setting. Our ECDC based approach can be replicated by other workgroups to translate and culturally adapt decision aids.

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“…Of those, we selected the ‘Making the Best Choice’ decision aid because it was presented in two different formats (paper and web). ‘Making the best choice’ is an English language prostate cancer screening decision aid which has been rigorously developed26 and extensively tested27–31 by a workgroup from Georgetown University (USA). We sought permission to translate and adapt the decision aid to the Portuguese population.…”

Section: Methods and Analysismentioning

confidence: 99%

Translation and cultural adaptation of the web and printed versions of a decision aid to support men’s prostate cancer screening choice: a protocol

et al. 2019

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IntroductionProstate cancer is one of the most frequent cancers among men. However, screening for prostate cancer carries many risks and a small benefit. Thus, based on the available evidence, most medical organisations advocate a shared decision-making process, in which decision aids may play an important role. Nevertheless, to date there is no such instrument to be used by Portuguese men. Our goal is to translate and perform the cultural adaptation of an English language prostate cancer screening decision aid called ‘Making the best choice’, in web and printed formats, which has been developed and tested by a workgroup from Georgetown University (USA).Methods and analysisCulturally and technically inappropriate recommendations in the original decision aid will be reviewed by the process coordinator and a linguistic expert. Two forward translations from English to Portuguese will be done, followed by a back-translation and an independent expert review. We will further improve the decision aid through an iterative process of data collection, data analysis and decision aid review. Individual semistructured cognitive interviews will be conducted and audiotaped with 55–69-year-old men recruited from the local community (urban and suburban) of Oporto district. We plan a total sample size of 30 participants (15 interviews per format). All participants will receive written information about the study and will sign individual consent forms. After verbatim transcription of the audiofiles, a thematic categorical analysis will be conducted using Ligre Software.Ethics and disseminationThe study protocol was approved by the Health Ethics Committee from Centro Hospitalar de São João/Faculdade de Medicina da Universidade do Porto. Results from this study will be disseminated in peer-reviewed publications and the Portuguese decision aid will available to Portuguese men.

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Decisional outcomes following use of an interactive web-based decision aid for prostate cancer screening

Cited by 8 publications

References 43 publications

Impact of a risk based breast screening decision aid on understanding, acceptance and decision making

Impact of a risk based breast screening decision aid on understanding, acceptance and decision making

Translation and cultural adaptation of a prostate cancer screening decision aid: a qualitative study in Portugal

Translation and cultural adaptation of the web and printed versions of a decision aid to support men’s prostate cancer screening choice: a protocol

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