Decisional needs assessment regarding Down syndrome prenatal testing: a systematic review of the perceptions of women, their partners and health professionals

St‐Jacques, Sylvie; Grenier, Sonya; Charland, Marc; Forest, Jean‐Claude; Rousseau, François

doi:10.1002/pd.2059

Cited by 65 publications

(70 citation statements)

References 63 publications

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“…We used a vote-counting method [39] which consists of the count of the significant effect directions by considering the same operational definition of the dependent variable. This method has been previously used in systematic reviews in medicine [40,41,42]. Our review shows that 60% of the categories of variables were considered in studies that integrated RP and RC in a comprehensive process.…”

Section: Resultsmentioning

confidence: 99%

Medical Genetic Counseling for Breast Cancer in Primary Care: A Synthesis of Major Determinants of Physicians' Practices in Primary Care Settings

Jbilou¹,

Halilem²,

Blouin-Bougie³

et al. 2014

Public Health Genomics

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Objectives: This paper aims to identify relevant potential predictors of medical genetic counseling for breast cancer (MGC-BC) in primary care and to develop a comprehensive questionnaire to study MGC-BC. Methods: A scoping review was conducted to identify the predictors of MGC-BC among primary care physicians. Relevant articles were identified in selected databases (PubMed, Embase, CINAHL, ISI Web of Science, PsycINFO, and Cochrane CENTRAL) and 4 selected relevant electronic journals. Results: An inductive analysis of the 193 quantitatively tested variables, conducted by 3 researchers, showed that 6 conceptual categories of determinants, namely (1) demographic, (2) organizational, (3) experiential, (4) professional, (5) psychological, and (6) cognitive, influence MGC-BC practices. Conclusion: There is a scarcity of literature addressing the medical behavior determinants of MGC-BC. Future research is needed to identify effective strategies put into action to support the integration of MGC-BC in primary care medical practices and routines. However, our results shed light on 2 levels of actions that could improve genetic counseling services in primary care: (1) medical training and educational efforts emphasizing family history collection (individual level), and (2) clarification of roles and responsibilities in ordering and referral practices in genetic counseling and genetic testing for better healthcare management (organizational level).

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Section: Resultsmentioning

confidence: 99%

Medical Genetic Counseling for Breast Cancer in Primary Care: A Synthesis of Major Determinants of Physicians' Practices in Primary Care Settings

Jbilou¹,

Halilem²,

Blouin-Bougie³

et al. 2014

Public Health Genomics

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“…Research on attitudes towards parenting a child with a disability has found that the perceived lack of rewards associated with parenting an affected child predicts intentions to using prenatal diagnosis (Lawson, 2006). Holding clear views about the acceptability or non-acceptability of the birth of a disabled child has been shown to ease prenatal test decision making (St-Jacques et al, 2008). Qualitative work has also shown that women may talk about their experiences of disabled people and their views on parenting a disabled child when being interviewed about why they accepted or rejected prenatal testing (Etchegary et al, 2008;Leuzinger-Bohleber, Engels, & Tsiantis, 2008;Lewando-Hundt et al, 2006).…”

Section: Introductionmentioning

confidence: 99%

The role of attitudes towards the targets of behaviour in predicting and informing prenatal testing choices

Bryant

Green

Hewison

2010

Psychology & Health

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Research considering the role of attitudes in prenatal testing choices has commonly focused on the relationship between the attitude towards undergoing testing and actual testing behaviour. In contrast, this study focused on the relationship between testing behaviour and attitudes towards the targets of the behaviour (in this case people with Down syndrome (DS) and having a baby with DS). A cross-sectional, prospective survey of 197 pregnant women measured attitudes towards the targets of prenatal testing along with intentions to use screening and diagnostic testing, and termination of an affected pregnancy. Screening uptake was established via patient records. Although attitudes towards DS and having a baby with DS were significantly associated with screening uptake and testing and termination intentions, unfavourable attitudes were better than favourable ones at predicting these outcomes. For example, in the quartile of women with the "most favourable" attitude towards people with DS 67% used screening although only 8% said they would terminate an affected pregnancy. Qualitative data suggested that not all women considered personal attitudes towards DS to be relevant to their screening decisions. This finding has implications for the way in which informed choice is currently understood and measured in the prenatal testing context.

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“…Regarding the men's participation in decisions concerning amniocentesis, our findings were consistent with those of Kenen et al (2000) where expectant fathers describe this decision as a joint enterprise with their female partner. Nevertheless, very little is known about decisional needs of partners regarding prenatal testing (St-Jacques et al, 2008). However, recent research indicates that men's desire to be more involved in consultations before prenatal screening, both for their own needs prior to becoming fathers, but also to enable them to support their spouse when dealing with difficult issues (Williams et al, in press).…”

Section: The Decision Concerning Amniocentesis or Notmentioning

confidence: 97%

Facts first, then reaction—Expectant fathers' experiences of an ultrasound screening identifying soft markers

2012

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Decisional needs assessment regarding Down syndrome prenatal testing: a systematic review of the perceptions of women, their partners and health professionals

Cited by 65 publications

References 63 publications

Medical Genetic Counseling for Breast Cancer in Primary Care: A Synthesis of Major Determinants of Physicians' Practices in Primary Care Settings

Medical Genetic Counseling for Breast Cancer in Primary Care: A Synthesis of Major Determinants of Physicians' Practices in Primary Care Settings

The role of attitudes towards the targets of behaviour in predicting and informing prenatal testing choices

Facts first, then reaction—Expectant fathers' experiences of an ultrasound screening identifying soft markers

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