Decision‐making processes behind seeking regular cardiac checkups for individuals with Marfan syndrome: A grounded theory study
Sayoko Haruyama,
Masako Torishima,
Hidenori Kawasaki
et al.
Abstract:Patients with Marfan syndrome (MFS) present with various symptoms, such as aortic aneurysm/dissection, tall stature, and lens deviation. Among them, acute aortic dissection is a complication that leads to sudden death. Some individuals with MFS are reluctant to see a cardiologist and discontinue regular checkups until they develop life‐threatening complications. We conducted a grounded theory study to investigate how individuals with MFS decided whether to adhere to healthcare recommendations, specifically to … Show more
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