2017
DOI: 10.1111/chso.12218
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Decision‐Making in Paediatric Rehabilitation: Exploring Professionals' and Children's Views on Decision‐Making Involvement

Abstract: The article explores the distinction that professionals make between difficult and less difficult decisions in paediatric rehabilitation interventions. This distinction is explored by looking at the involvement of two children in decisions regarding paediatric rehabilitation interventions. The article argues for a clinical practice where children's experiences are extensively used to improve practice and to accommodate the child's right to participate in medical decisions concerning their own body and life. Th… Show more

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Cited by 9 publications
(4 citation statements)
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References 26 publications
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“…They were nevertheless left out in certain contexts, such as in the schoolyard. Similar to other studies' findings (Andersen and Dolva 2014;Bekken 2017), initially, the younger participants were not very critical of their limited possibilities for participation and appeared to take the status quo for granted. However, when faced with new options, such as PA, they emphasised the positive impacts of these supports on helping them lead better lives and participate along with others.…”
Section: Discussionsupporting
confidence: 84%
“…They were nevertheless left out in certain contexts, such as in the schoolyard. Similar to other studies' findings (Andersen and Dolva 2014;Bekken 2017), initially, the younger participants were not very critical of their limited possibilities for participation and appeared to take the status quo for granted. However, when faced with new options, such as PA, they emphasised the positive impacts of these supports on helping them lead better lives and participate along with others.…”
Section: Discussionsupporting
confidence: 84%
“…This is consistent with our critical approach and foregrounds the importance of designing studies around building trust with participants and transparency of goals and strategies through partnerships and dialogues between researchers and disability communities. Our study was inspired by the fact that, although Article 7 in the Convention on the Rights of Persons with Disabilities (United Nations, 2007) states that disabled children’s perspectives are to be given due weight, on an equal basis, with those of other children, there are indications that, they may not be heard or their concerns may not be acted upon in research and practice (Andersen & Dolva, 2014, Bekken, 2017; Einarsdóttir & Egilson, 2016; Wickenden, 2019). In our study, we specifically aimed to include children and young people who are typically excluded from research and to learn from their experiences as a basis for societal change.…”
Section: Theoretical Perspectivementioning
confidence: 99%
“…Exploring clinician’s perspectives of electrical stimulation would help to identify any barriers of use and maximize knowledge translation. Similarly, the child’s perspective on the use of FES for UE rehabilitation would be important to capture as a child’s view on their rehabilitation may not align with that of their parents’ [ 34 ] or their health care team [ 35 ]. Further, consideration of the challenges identified by parents such as cost, availability, and proximity of this therapy will be important to ensure equitable and effective implementation.…”
Section: Discussionmentioning
confidence: 99%