Decision‐making about pregnancy for women with cystic fibrosis

Simcox, Angela; Hewison, Jenny; Duff, Alistair; Morton, Alison; Conway, S.P.

doi:10.1348/135910708x332927

Cited by 24 publications

(32 citation statements)

References 40 publications

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“…For these women, coping may be directed at reducing anxiety rather than minimizing the health threat, leading to an avoidance of information and care seeking. This purposeful avoidance of knowledge acquisition about pregnancy issues has also been described among some women with cystic fibrosis who fear being put off childbearing 29 …”

Section: Discussionmentioning

confidence: 87%

Pregnancy Planning and Diabetes: A Qualitative Exploration of Women's Attitudes Toward Preconception Care

McCorry¹,

Hughes²,

Spence³

et al. 2012

J Midwife Womens Health

101

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These findings raise questions about how preconception care should be provided to women with diabetes and highlight the pivotal importance of supportive, familiar relationships between health professionals and women with diabetes in the provision of individualized care and advice. By improving the quality of relationships and communication between health care providers and patients, we will be better able to provide care and advice that is perceived as relevant to the individual, whatever her stage of family planning.

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Section: Discussionmentioning

confidence: 87%

Pregnancy Planning and Diabetes: A Qualitative Exploration of Women's Attitudes Toward Preconception Care

McCorry¹,

Hughes²,

Spence³

et al. 2012

J Midwife Womens Health

101

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“…Participants noted the desire for psychosocial information relating to motherhood prior to, and during, pregnancy, but a significant lack of this and focus on medical issues. The need for psychosocial information relating to chronic illness and motherhood is well-established [10, 25]; however it is generally agreed that such information is lacking. The present study appeared to suggest this.…”

Section: Discussionmentioning

confidence: 99%

“…To date there has been little exploration of the psychosocial impact of motherhood on women with CF [25]. This is in spite of it being well known that information is crucial in informing preconceptual counselling and postpartum psychosocial support [22].…”

Section: Introductionmentioning

confidence: 99%

When Women with Cystic Fibrosis Become Mothers: Psychosocial Impact and Adjustments

et al. 2016

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Advances in the treatment and life expectancy of cystic fibrosis (CF) patients mean that motherhood is now a realistic option for many women with CF. This qualitative study explored the psychosocial impact and adjustments made when women with CF become mothers. Women with CF (n = 11) were recruited via an online forum and participated in semistructured telephone interviews about their experiences of becoming a mother. Transcriptions were analysed using Grounded Theory. Analysis revealed three core categories: (i) “Living with CF”: how becoming a mother impacted on health and treatment adherence, requiring a change in support from the CF team, (ii) “Becoming a Mother”: balancing issues common to new mothers with their CF, and (iii) “Pooling Personal Resources”: coping strategies in managing the dual demands of child and CF care. Participants experienced a variety of complex psychosocial processes. Most participants acknowledged an initial negative impact on CF care; however over time they reported successful adaptation to managing dual commitments and that adherence and motivation to stay well had improved. This study highlights the need for preconceptual psychosocial counselling and postpartum adjustment to CF care.

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“…Fertility, contraception and family planning for patients with CF People with CF are as likely as peers to consider starting a family, 35,36 however, significant knowledge deficits in sexual and reproductive health in people with CF have been identified. [37][38][39] Thus, pregnancy planning should include a detailed discussion between the patient, the multi-disciplinary CF team and the multi-disciplinary obstetrics team.…”

Section: Impact Of Cf On Maternal Outcomesmentioning

confidence: 99%

“…There is consensus that screening of partners for carriage of a CFTR mutation should be offered. 40 Patients with CF are generally supportive of carrier screening, 52 however this is not universal 35,53 and discussions should be handled with sensitivity.…”

Section: Genetic Counsellingmentioning

confidence: 99%

Pregnancy and cystic fibrosis: Approach to contemporary management

et al. 2014

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Over the previous 50 years survival of patients with cystic fibrosis has progressively increased. As a result of improvements in health care, increasing numbers of patients with cystic fibrosis are now considering starting families of their own. For the health care professionals who look after these patients, the assessment of the potential risks, and the process of guiding prospective parents through pregnancy and beyond can be both challenging and rewarding. To facilitate appropriate discussions about pregnancy, health care workers must have a detailed understanding of the various important issues that will ultimately need to be considered for any patient with cystic fibrosis considering parenthood. This review will address these issues. In particular, it will outline pregnancy outcomes for mothers with cystic fibrosis, issues that need to be taken into account when planning a pregnancy and the management of pregnancy for mothers with cystic fibrosis or mothers who have undergone organ transplantation as a result of cystic fibrosis.

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Decision‐making about pregnancy for women with cystic fibrosis

Abstract: The findings extend the current knowledge in this area. We recommend development of guidelines for supporting and advising chronically ill young women about the psychosocial and emotional issues.

Cited by 24 publications

References 40 publications

Pregnancy Planning and Diabetes: A Qualitative Exploration of Women's Attitudes Toward Preconception Care

Pregnancy Planning and Diabetes: A Qualitative Exploration of Women's Attitudes Toward Preconception Care

When Women with Cystic Fibrosis Become Mothers: Psychosocial Impact and Adjustments

Pregnancy and cystic fibrosis: Approach to contemporary management

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