Death at Home: Challenges for Families and Directions for the Future

Stajduhar, Kelli; Davies, Betty

doi:10.1177/082585979801400304

Cited by 86 publications

(73 citation statements)

References 47 publications

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“…This multiplicity of health care providers potentially hinders the development of trusting relationships between caregiver and professional. 7 While health care recipients value continuity of care and relationships promoting trust and confidence, unfortunately continuity is a benefit that few receive. 25 In fact, a caregiver in one study 56 requested discontinuation of the palliative care service because of his frustration with the number of different care providers giving input.…”

Section: Continuity Of Carementioning

confidence: 99%

“…4 The impact of caring for a family member in need of palliative cancer care has been well reported in the literature. [5][6][7][8] These authors assert that caregivers are often prone to negative physical, social and emotional sequelae. Moreover, research conducted for more than a decade has demonstrated that caregivers themselves report unmet needs.…”

Section: Introductionmentioning

confidence: 99%

“…Moreover, research conducted for more than a decade has demonstrated that caregivers themselves report unmet needs. 7,[9][10][11] Commonly these needs encompass a desire for more information and support from health care professionals. 10,[12][13][14] As a consequence of the substantive body of literature on the impact of being a caregiver and the unmet needs of caregivers, there has been an urgent request by many authors for the development of supportive interventions to assist family caregivers.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Meeting the Supportive Needs of Family Caregivers in Palliative Care: Challenges for Health Professionals

Hudson

Aranda

Kristjanson

2004

Journal of Palliative Medicine

170

132

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Caring for a dying relative is demanding, and family caregivers have acknowledged many unmet needs associated with their caregiver role. Consistently, caregivers of dying patients with cancer have reported that they need more support and information from health care professionals. Moreover, a number of palliative care clinicians and researchers have called for interventions to enhance the support offered to family caregivers. However, before researchers can develop and test palliative care interventions directed to families, it is important to identify barriers that may confront health care professionals with regard to the provision of supportive family care. For new interventions to be feasible they must be applicable within the constraints of current palliative care service delivery environments. This paper provides an account of issues that may impinge on optimal transference of supportive strategies from health care professionals to family caregivers of patients receiving palliative care. By acknowledging these barriers to supportive care, researchers and health care professionals can begin to design and implement interventions that are clinically relevant and more likely to be effective.

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Section: Continuity Of Carementioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Meeting the Supportive Needs of Family Caregivers in Palliative Care: Challenges for Health Professionals

Hudson

Aranda

Kristjanson

2004

Journal of Palliative Medicine

170

132

View full text Add to dashboard Cite

show abstract

“…Evidence suggests that carers are prone to negative physical, social and emotional effects [35][36][37]. Many studies have reported the unmet needs of carers [38,39], ranging from information that specifically addresses the issues relevant to them at the particular time [40,41] to the need for physical day-to-day care help [42,43] and information on community resources, including domestic, financial and bereavement support [25,40,44]. Such needs are not static but, instead, the caregiver's role changes and evolves throughout the disease trajectory [45].…”

Section: Introductionmentioning

confidence: 99%

“…However, there are large variations in the provision of such care [21], resulting in an uncoordinated approach [22], inequality of access to generalist and specialist palliative care services and gaps in provision of care, especially that which is out of hours [6,15,23,24]. In addition, research has highlighted problems relating to the coordination of care [25,26] and a lack of communication and liaison between professionals [27,28], lack of awareness of hospice services [29,30] and problems relating to lack of communication and provision of information and support for patients and their carers [31,32]. In addition, the success of home-based palliative care usually depends on the availability and involvement of the carer [33,34].…”

Section: Introductionmentioning

confidence: 99%

Hospice at Home service: the carer’s perspective

McLaughlin

Sullivan

Hasson

2006

Support Care Cancer

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The bereaved caregivers were thankful for the Hospice at Home service; however, the need for practical support, increased awareness of the Hospice at Home service and bereavement support were also identified. Although the bereaved caregivers provided a valuable insight in evaluating service provision, it is acknowledged that some caregivers are often so grateful for the treatment and care received that they tend to forget or ignore their less pleasant experiences. Further research is therefore required using an in-depth qualitative approach investigating on the carers' views and experiences of accessing the Hospice at Home service.

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Predictors of place of death for Japanese patients with advanced‐stage malignant disease in home care settings: A nationwide survey

Fukui

Kawagoe

2004

Cancer

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BACKGROUNDAlthough the place of death for patients with advanced malignancy is influenced by multiple factors, few studies have systematically investigated the determinants of place of death. The objective of the current retrospective study was to clarify the predictors of home death throughout the duration of home palliative care for Japanese patients with advanced malignant disease.METHODSIn the current nationwide survey, the authors investigated predictors involving patient demographics and clinical profiles, the roles and status of family caregivers, and the support provided by the healthcare system in the introductory phase (during the first week of home care), the stable phase (between the introductory and dying phases), and the dying phase (during the final week before death) of home care service in Japan.RESULTSMultivariate logistic regression models clarified that 1) patient‐related clinical variables (e.g., functional status and rehospitalization); 2) the support of the healthcare system (e.g., provision of information on the dying process and visitation by home care nurses); and 3) the status and roles of family caregivers (e.g., psychologic distress levels, assistance with patient evacuation, etc.) have an effect on place of death throughout all three phases of home palliative care. Overall, the model used in the current study was able to predict 94% of home deaths accurately.CONCLUSIONSA clearer understanding of factors that may influence place of death for patients with advanced‐stage malignant disease would allow healthcare professionals to modify healthcare systems and tailor effective interventions to help patients die in their preferred location. Cancer 2004. © 2004 American Cancer Society.

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Death at Home: Challenges for Families and Directions for the Future

Cited by 86 publications

References 47 publications

Meeting the Supportive Needs of Family Caregivers in Palliative Care: Challenges for Health Professionals

Meeting the Supportive Needs of Family Caregivers in Palliative Care: Challenges for Health Professionals

Hospice at Home service: the carer’s perspective

Predictors of place of death for Japanese patients with advanced‐stage malignant disease in home care settings: A nationwide survey

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