2016
DOI: 10.2989/16085906.2016.1256330
|View full text |Cite
|
Sign up to set email alerts
|

Dealing with disclosure: Perspectives from HIV-positive children and their older carers living in rural south-western Uganda

Abstract: Dusabe-Richards, E.; Rutakumwa, R.; Zalwango, F.; Asiimwe, A.; Kintu, E.; Ssembajja, F.; Seeley, J. (2016) Abstract: There are limited data on the challenges faced by carers, in particular older carers, in managing the difficult task of status disclosure for HIV positive children. We report findings from qualitative interviews with 18 care dyads of older people and HIV positive children living in rural southwest Uganda. Our data provide insights into perceptions and norms influencing communication during and… Show more

Help me understand this report

Search citation statements

Order By: Relevance

Paper Sections

Select...
2
1
1
1

Citation Types

1
20
0

Year Published

2018
2018
2023
2023

Publication Types

Select...
7

Relationship

1
6

Authors

Journals

citations
Cited by 12 publications
(21 citation statements)
references
References 30 publications
(44 reference statements)
1
20
0
Order By: Relevance
“…Evidence from other studies [6,12,16,28] and in this study, shows that informing children about their HIV diagnosis can have positive psychosocial and clinical outcomes like improved adherence to both clinic attendance and antiretroviral drugs, improved relationship with caregivers, decreased psychological effects and acquisition of coping skills. Mburu, et al [13] observed that disclosure created opportunities for adolescents to access adherence support and other forms of psychosocial support from family members and peers.…”
Section: Fig 2 Major Concerns About Being Hiv-infectedsupporting
confidence: 52%
See 2 more Smart Citations
“…Evidence from other studies [6,12,16,28] and in this study, shows that informing children about their HIV diagnosis can have positive psychosocial and clinical outcomes like improved adherence to both clinic attendance and antiretroviral drugs, improved relationship with caregivers, decreased psychological effects and acquisition of coping skills. Mburu, et al [13] observed that disclosure created opportunities for adolescents to access adherence support and other forms of psychosocial support from family members and peers.…”
Section: Fig 2 Major Concerns About Being Hiv-infectedsupporting
confidence: 52%
“…For these children, learning about their HIV diagnosis is necessary to building trusting family relationships and an important step towards long-term disease management and transition from paediatric/ adolescent care into adult care settings. Dusabe-Richards, et al [6] in their study observed that children whose status was disclosed to them took charge of their healthcare, visiting a health facility unaccompanied, ensuring adherence to their antiretroviral drugs and communicated better with their caregivers.…”
Section: Introductionmentioning
confidence: 99%
See 1 more Smart Citation
“…Most studies described the manifestations of HIV-related stigma in terms of experienced stigma, which was encountered in relationships with mothers [112,113], family members [101,114], learners and educators (102Mutumba et al, 2015,107,115), and HCWs [115] [113]. Authors also described how stigma intersected with gendered attitudes towards sexuality and self-acceptance among young women [101,[115][116][117], including cultural norms such as respect for elders [113,118,119].…”
Section: Specific Analytical Themesmentioning
confidence: 99%
“…Other merits of disclosure on the child observed by other workers include better control of their healthcare and medications, better communication, increased opportunities to access adherence support and other forms of psychosocial support from family members and peers as well as develop coping strategies to conceal the medicines and the disease [27,28].…”
Section: Severalmentioning
confidence: 99%