Day One Talk: parent preferences when learning that their child has cancer

Kessel, Rachel; Roth, Michael; Moody, Karen; Levy, Adam

doi:10.1007/s00520-013-1874-8

Cited by 32 publications

(51 citation statements)

References 28 publications

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“…The preference for the use of the word “cancer” during the diagnosis consultation varied from culture to culture. Parents in the United States wanted providers to use the word “cancer” whereas South African parents thought the word had negative connotations and could startle the children if used …”

Section: Resultsmentioning

confidence: 99%

“…The Content theme contains topic suggestions parents may prefer in addition to the standard diagnostic consultation topics. Studies used three approaches to obtain parent's content preferences: (1) ranking topics in order of importance; (2) assessing degree of importance of specific items; and (3) open discussion where parents volunteered content items . There was no consensus in terms of a preferred order of topics presented during the diagnosis meeting .…”

Section: Resultsmentioning

confidence: 99%

“…There was no consensus in terms of a preferred order of topics presented during the diagnosis meeting . Similarly, parents found all standard diagnostic consultation topics assessed to be important and necessary to the diagnosis discussion: cure rate, cause of disease, short and long‐term therapy details including side effects, and support services . A culturally sensitive communication item was the presentation of cure rate.…”

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

Parent‐centered communication at time of pediatric cancer diagnosis: A systematic review

Hentea

Bauer

Mueller

2018

Pediatric Blood & Cancer

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There are limited data focused on parental communication needs surrounding the time when a child is diagnosed with cancer. In this systematic review, we synthesized current literature on communication preferences of parents at the time of their child's diagnosis of cancer. We identified 16 studies that yielded 4 major themes parents recognized as important: communication style, content, logistics, and healthcare team. We further identified several concepts that inform parent-centered communication practice. The ensuing pediatric oncology parent-centered communication concept map is meant as a tool to expand providers' communication experience at the time of a new cancer diagnosis.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Parent‐centered communication at time of pediatric cancer diagnosis: A systematic review

Hentea

Bauer

Mueller

2018

Pediatric Blood & Cancer

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“…In terms of access to care, most children and families are not seen on the first day of diagnosis. The diagnostic meeting is an extremely difficult event for families; psychosocial assessment and intervention can begin at this early point to support the child and family in navigating the treatment ahead . Perhaps more importantly, although the majority of programs report that social workers and child life specialists are seeing all families, not all programs are indicating this.…”

Section: Discussionmentioning

confidence: 99%

Implementing the psychosocial standards in pediatric cancer: Current staffing and services available

Scialla

Canter

Chen

et al. 2017

Pediatric Blood & Cancer

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Background Fifteen evidence-based Standards for Psychosocial Care for Children with Cancer and their Families were published in 20151. The Standards cover a broad range of topics and circumstances and require qualified multidisciplinary staff to be implemented. This paper presents data on the availability of psychosocial staff and existing practices at pediatric oncology programs in the United States, providing data that can be used to advocate for expanded services and prepare for implementation of the Standards. Procedure Up to three healthcare professionals from 144 programs (72% response rate) participated in an online survey conducted June – December 2016. There were 99 pediatric oncologists with clinical leadership responsibility (Medical Director/Clinical Director), 132 psychosocial leaders in pediatric oncology (Director of Psychosocial Services/Manager/most senior staff member), and 58 administrators in pediatric oncology (Administrative Director/Business Administrator/Director of Operations). The primary outcomes were number and type of psychosocial staff, psychosocial practices, and identified challenges in the delivery of psychosocial care. Results Over 90% of programs have social workers and child life specialists who provide care to children with cancer and their families. Fewer programs have psychologists (60%), neuropsychologists (31%) or psychiatrists (19%). Challenges in psychosocial care are primarily based on pragmatic issues related to funding and reimbursement. Conclusion Most participating pediatric oncology programs appear to have at least the basic level of staffing necessary to implement of some of the Standards. However, the lack of a more comprehensive multidisciplinary team is a likely barrier in the implementation of the full set of Standards.

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“…23,24 Providing prognostic information can be challenging because communication must not only provide data but also meet the unique needs of parents over time. Although parents view this talk as important, 25 they also are under enormous stress and may feel overloaded with information. Although parents view this talk as important, 25 they also are under enormous stress and may feel overloaded with information.…”

Section: Introductionmentioning

confidence: 99%

Prognostic disclosures over time: Parental preferences and physician practices

Sisk

Kang

Mack

2017

Cancer

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The majority of parents wanted detailed, longitudinal prognostic conversations; nearly none of the parents preferred less prognostic information. A return to these conversations over time can help rather than hurt parents. Future studies should assess the ideal contents of these longitudinal discussions, and the communication preferences of pediatric patients. Cancer 2017;123:4031-8. © 2017 American Cancer Society.

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Day One Talk: parent preferences when learning that their child has cancer

Abstract: These results suggest that parents of children with cancer have certain preferences regarding the Day One Talk. When conducting the Day One Talk, providers should elicit parent preferences regarding these issues in order to best meet families' needs.

Cited by 32 publications

References 28 publications

Parent‐centered communication at time of pediatric cancer diagnosis: A systematic review

Parent‐centered communication at time of pediatric cancer diagnosis: A systematic review

Implementing the psychosocial standards in pediatric cancer: Current staffing and services available

Prognostic disclosures over time: Parental preferences and physician practices

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