Data work in healthcare: An Introduction

Bossen, Claus; Pine, Kathleen H.; Cabitza, Federico; Ellingsen, Gunnar; Piras, Enrico Maria

doi:10.1177/1460458219864730

Cited by 81 publications

(55 citation statements)

References 46 publications

(60 reference statements)

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“…In line with this, the concept of data work has been growing in interest. Data work in healthcare outlines work, supported by data, performed by both healthcare professionals and patients [16,17]. When work is shifted from healthcare professionals, and when patients take on larger responsibilities, they also conduct work.…”

Section: Related Workmentioning

confidence: 99%

Invisible Work Meets Visible Work: Infrastructuring from the Perspective of Patients and Healthcare Professionals

Íslind¹,

Hult²,

Johansson³

et al. 2021

Proceedings of the Annual Hawaii International Conference on System Sciences

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Increased patient engagement and the use of new types of data, such as patient-generated health data (PGHD) is shifting how work is performed in relation to healthcare. This change enables healthcare professionals to delegate parts of work previously conducted by them to patients. There is a consensus regarding the need for nurses and physicians to work seamlessly together to make healthcare flow, but the role and responsibility of patients are less researched. In this paper, we aim to fill that gap by focusing on the shift of work from healthcare professionals to patients from the perspective of i) patients and ii) healthcare professionals. We use infrastructuring as a lens to understand the design of everyday work and actions from both perspectives. The main contribution is an analysis of, and insights into, how the work of patients can support healthcare professionals along with a conceptualization of how infrastructuring processes within and outside of healthcare are interconnected.

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Section: Related Workmentioning

confidence: 99%

Invisible Work Meets Visible Work: Infrastructuring from the Perspective of Patients and Healthcare Professionals

Íslind¹,

Hult²,

Johansson³

et al. 2021

Proceedings of the Annual Hawaii International Conference on System Sciences

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“…Most recently in a special issue on data work in health care (Bossen et al . 2019a) it is suggested that ‘data work [is] a substantial element of contemporary care delivery practices’ (Grisot et al . 2019), and that it is important to understand data as the outcome of human effort – not a free‐floating resource (Bossen et al .…”

Section: Introductionmentioning

confidence: 99%

“…2019), and that it is important to understand data as the outcome of human effort – not a free‐floating resource (Bossen et al . 2019a). Particular focus is directed towards the data work carried out by professionals within clinical settings (Bjørnstad and Ellingsen 2019, Bonde et al .…”

Section: Introductionmentioning

confidence: 99%

Patient data work: filtering and sensing patient‐reported outcomes

Torenholt

Saltbæk

Langstrup

2020

Sociology Health & Illness

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With digital patient‐reported outcome (PRO) tools in clinical practice, patients are given new tasks of providing data that aim at supporting and individualising care, simultaneously reducing unnecessary clinical visits. While the innovative potential of mobilising PRO data for care is increasingly explored, little attention is given to the efforts that the provision of PRO data rests on – that of the patients. Based on ethnographic fieldwork carried out among cancer patients receiving PRO‐based follow‐up care, we argue that with the increased reliance on patient‐generated health data, we need to consider patients’ data work. Drawing on emerging literature on healthcare professionals’ data work and the rich work in sociology and Science and Technology Studies (STS) on patients’ active engagement in shaping and managing care, we conceptualise PRO patient data work as two simultaneous processes: the process of data filtering – patients filter information to fit the envisaged recipient and purpose; and the process of data sensing – patients evaluate their embodied experiences. By doing so, we show that patients’ data work has implications beyond simply providing data that represent their experiences.

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“…In addition to investment in additional ICT systems, improvements in the use of health informatics also require a reorientation of healthcare organisations around the production of data (Bossen et al, 2019). While this is often overlooked, it means that there are many new occupation groups within healthcare systems that are centred on data work and that current healthcare workers will need to further develop skills in health data management (Bossen et al, 2019). This has been recognised by many groups.…”

Section: Using His and Big Data To Learn Understand And Inform Decision-makingmentioning

confidence: 99%

Developments in healthcare information systems in Ireland and internationally

Walsh¹,

Domhnaill²,

Mohan³

2021

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The mission of the Economic and Social Research Institute is to advance evidencebased policymaking that supports economic sustainability and social progress in Ireland. ESRI researchers apply the highest standards of academic excellence to challenges facing policymakers, focusing on 12 areas of critical importance to 21st Century Ireland.The Institute was founded in 1960 by a group of senior civil servants led by Dr T.K. Whitaker, who identified the need for independent and in-depth research analysis to provide a robust evidence base for policymaking in Ireland.Since then, the Institute has remained committed to independent research and its work is free of any expressed ideology or political position. The Institute publishes all research reaching the appropriate academic standard, irrespective of its findings or who funds the research.The quality of its research output is guaranteed by a rigorous peer review process. ESRI researchers are experts in their fields and are committed to producing work that meets the highest academic standards and practices.The work of the Institute is disseminated widely in books, journal articles and reports. ESRI publications are available to download, free of charge, from its website. Additionally, ESRI staff communicate research findings at regular conferences and seminars.The ESRI is a company limited by guarantee, answerable to its members and governed by a Council, comprising 14 members who represent a cross-section of ESRI members from academia, civil services, state agencies, businesses and civil society. The Institute receives an annual grant-in-aid from the Department of Public Expenditure and Reform to support the scientific and public interest elements of the Institute's activities; the grant accounted for an average of 30 per cent of the Institute's income over the lifetime of the last Research Strategy. The remaining funding comes from research programmes supported by government departments and agencies, public bodies and competitive research programmes.

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Data work in healthcare: An Introduction

Cited by 81 publications

References 46 publications

Invisible Work Meets Visible Work: Infrastructuring from the Perspective of Patients and Healthcare Professionals

Invisible Work Meets Visible Work: Infrastructuring from the Perspective of Patients and Healthcare Professionals

Patient data work: filtering and sensing patient‐reported outcomes

Developments in healthcare information systems in Ireland and internationally

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